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Bioinformation (Hardcover)
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Bioinformation (Hardcover)
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From DNA sequences stored on computer databases to archived
forensic samples and biomedical records, bioinformation comes in
many forms. Its unique provenance the fact that it is 'mined' from
the very fabric of the human body makes it a mercurial resource;
one that no one seemingly owns, but in which many have deeply
vested interests. Who has the right to exploit and benefit from
bioinformation? The individual or community from whom it was
derived? The scientists and technicians who make its extraction
both possible and meaningful or the commercial and political
interests which fund this work? Who is excluded or even at risk
from its commercialisation? And what threats and opportunities
might the generation of 'Big Bioinformational Data' raise? In this
groundbreaking book, authors Bronwyn Parry and Beth Greenhough
explore the complex economic, social and political questions
arising from the creation and use of bioinformation. Drawing on a
range of highly topical cases, including the commercialization of
human sequence data; the forensic use of retained bioinformation;
biobanking and genealogical research, they show how demand for this
resource has grown significantly driving a burgeoning but often
highly controversial global economy in bioinformation. But, they
argue, change is afoot as new models emerge that challenge the
ethos of privatisation by creating instead a dynamic open source
'bioinformational commons' available for all future generations.
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