Books > Social sciences > Politics & government > Political activism
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For Ava - An incurable illness, A reluctant activist, An ongoing campaign (Paperback)
Loot Price: R334
Discovery Miles 3 340
You Save: R51
(13%)
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For Ava - An incurable illness, A reluctant activist, An ongoing campaign (Paperback)
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List price R385
Loot Price R334
Discovery Miles 3 340
You Save R51 (13%)
Supplier out of stock. If you add this item to your wish list we will let you know when it becomes available.
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What would you do to save your child? When Vera Twomey's daughter
Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy
that causes multiple seizures a day, the family's life was thrown
into chaos. Where they hoped to find treatment and support in the
medical system, they found only frustration. The only medication
that would have any effect on Ava's condition is a form of
medicinal cannabis that was unavailable in Ireland. Thus began the
family's fight to alleviate their daughter's suffering and give her
a chance at life. Faced with an intransigent system and political
establishment, Vera's campaign eventually culminated in her
decision to walk from Cork to Leinster House in Dublin in protest
to ask health minister Simon Harris for help in person. For Ava
tells the story of the campaign for Ava's medication and the
family's move to the Netherlands in order to legally access the
medication that would save her life. It also pays tribute to the
people who helped Vera achieve her goal. Above all, this is a
moving story about the lengths a parent will go to for their
child's health and happiness.
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