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This book provides a comprehensive research-based source of material, which focuses on the important issue of dementia and family care. It critically examines how dementia is defined, diagnosed and "treated" and provides a new environmentally focused approach to this challenging and growing issue for nurses and other care givers.
People with dementia have often played a passive role in the investigation of their condition. The contributors to this book look at ways of redressing the balance and involving them in the research process. They describe the skills that researchers and care staff need, and the methods they can use, when seeking to draw out and validate the views of people with dementia successfully, and discuss the ways in which such views can be included in debates about dementia methodology and policy. The book focuses on a number of projects which have taken different approaches to working with people with dementia in research, including a chapter examining the difficult process of interviewing people with dementia whose first language is not English and a chapter describing a project which encourages people with dementia to participate in the analysis of the research findings. This varied and innovative book will help those in the fields of health and social policy, dementia research and dementia care to hear the voices of people with dementia more clearly, and to include their opinions more effectively in the provision of services.
*Winner in the Health and Social Care category at the 2012 British Medical Association Book Awards* Risk is central to professional practice, assessment and decision-making in dementia care. Yet theories of risk are often complex and difficult to translate into everyday practice. This book outlines some of the key issues in risk perception, assessment and management in dementia care in a way that is both practical and accessible to a wide range of practitioners. It develops an approach to risk that promotes choice for people with dementia whilst also acknowledging the complex challenges care providers face. The authors provide an overview of the legislative framework currently in place, and of the ethical dilemmas which may emerge in practice. Frameworks for informed and balanced decision-making are offered, and the importance of including the person with dementia, their family, and care providers in decision-making is emphasised. Throughout the book, case studies are used to illustrate effective negotiation and practical solutions to risk dilemmas in practice. This book highlights principles of good practice for managing risk in dementia care, and presents a rounded approach that will help practitioners negotiate some of the complex issues this entails.
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