This is the story of one woman's courageous struggle against the
relentless encroachment of darkness. Helen Harris, after a
childhood marked by unplanned clumsiness, skinned knees, and being
known as the class klutz, discovered she was a victim of retinitis
pigmentosa (RP), a disease causing progressive blindness and having
no known cure. Devastated by this prognosis of ever-growing
darkness, this brave and stoic young girl determined nonetheless to
make the most of her future.
She was galvanized to furious activity, driven by anger at the
abysmal absence of knowledge of RP in the medical community and, in
fact, this world. But what could one woman do? Plenty. For someone
with no experience in business, public relations, volunteerism, or
recruitment, Helen Harris undertook to master them all. One lone
woman with the mission to move the mountains of ignorance about a
disease even Helen had never heard about, all the while trying to
cope with the ever-growing darkness surrounding her and her sons.
She came to know that RP was one of a family of related genetic
diseases, one more terrifying than the other. These diseases, being
of genetic origin, often strike multiple siblings in a family.
This book will lead you through Helen's amazing success in
recruiting celebrities to their cause and shedding light into the
darkness of RP, involving the medical world in the fight, and
garnering support from the political world up to and including a
president of the United States. Information on all the new
technology that has been developed since Helen's journey began are
enclosed within the pages of the book.
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