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Governing Biobanks - Understanding the Interplay between Law and Practice (Paperback, New)
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Governing Biobanks - Understanding the Interplay between Law and Practice (Paperback, New)
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Biobanks are proliferating rapidly worldwide because they are
powerful tools and organisational structures for undertaking
medical research. By linking samples to data on the health of
individuals, it is anticipated that biobanks will be used to
explore the relationship between genes, environment and lifestyle
for many diseases, as well as the potential of
individually-tailored drug treatments based on genetic
predisposition. However, they also raise considerable challenges
for existing legal frameworks and research governance structures.
This book critically examines the current governance structures in
place for biobanks in England and Wales. It shows that the
technologies, techniques and practices involved in biobanking do
not always conform neatly to existing legal principles and
frameworks that apply to other areas of medical research. Using a
socio-legal approach, including interview data gathered from the
scientific community, this book provides unique insights and makes
recommendations about appropriate governance mechanisms for
biobanking in the future. It also explores the issues around the
secondary use of information, such as consent and how to protect
privacy, when biobanks are accessed by a number of different third
parties. These issues have relevance both within England and Wales
and to a wide international audience, as well as for other areas
where large datasets are used.
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