"With Lous Heshusius as a guide, pain patients can learn much
about the perils of a modern health-care odyssey. Health
professionals can learn how an articulate middle-class female white
patient thinks (with all that thinking entails) when her world is
irreversibly altered by pain. She does not promise happy endings.
Chronic pain is like that. From the rare intersection in this text
between patient narrative and physician response, however, readers
may construct a dialogue on pain in our time that cannot fail to
bring plentiful opportunities for personal insight and professional
enlightenment." from the Foreword by David B. Morris
Chronic pain, which affects 70 million people in the United
States alone more than diabetes, cancer, and heart disease combined
is a major public health issue that remains poorly understood both
within the health care system and by those closest to the people it
afflicts. This book examines the experience of pain in ways that
could significantly improve how patients and practitioners deal
with pain. It is the first volume of a new collection of titles
within the acclaimed Culture and Politics of Health Care Work
series called How Patients Think, intended to give voice to the
concerns of patients about their own medical care and the
formulation of health policy.
Since surviving a near-fatal car accident, Lous Heshusius has
suffered from chronic pain for more than a decade, forcing her to
give up her career as a professor of education. Inside Chronic
Pain, based in part on the pain journal Heshusius keeps, is a
stunning memoir of a life lived in constant pain as well as an
insightful and often critical account of the inadequacies of the
health care system from physicians to hospitals and health
insurance companies to understand chronic pain and treat those who
suffer from it. Through her own frequently frustrating experiences,
she shows how health care providers often ignore, deny, or
incorrectly treat chronic pain at immense cost to both the patient
and the health care system. She also offers cogent suggestions on
improving the quality and outcome of chronic pain care and
management, using her encounters with exceptional medical
professionals as models.
Inside Chronic Pain deals with pain's dramatic and destructive
effects on one's sense of self and identity. It chronicles the
chaos that takes place, the paralyzing effect of severe pain, the
changes in personality that ensue, and the corrosive effects of
severe pain on the ability to attend to day-to-day tasks. It
describes how one's social life falls apart and isolation takes
over. It also relates moments of happiness and beauty and describes
how rooting the self in the present is crucial in managing
pain.
A unique feature of Inside Chronic Pain is the clinical
commentary by Dr. Scott M. Fishman, president of the American Pain
Foundation. Fishman has long tried to improve the lives of patients
like Heshusius. His medical perspective on her very human narrative
will help physicians and other clinicians better understand and
treat patients with chronic pain."
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