Every parent wants the same thing: for their child to enjoy a long
and fulfilling life. But what happens when things don't go
according to plan? What happens when parents have to become
advocates for their child's healthcare needs? Who decides what is
in a child's 'best interests'? Stephanie Nimmo faced these
questions first-hand when her daughter, Daisy, was diagnosed with a
life-limiting condition as a baby. Seen through the lens of
Stephanie's own experiences, this sensitive book delves into the
complex world of medical ethics and paediatric palliative care.
From recognising tipping points to the importance of building
relationships with palliative care teams well before crisis, this
book explores how medical professionals can better support families
throughout their child's care. Interviews with clinicians and
snapshots from the lives of patients' families provide insight into
the realities of life on both sides of the hospital bed.
Compassionate explanations of the conflicting pressures in the
hospital system foster understanding and help medical professionals
and families work together.
General
Imprint: |
Jessica Kingsley Publishers
|
Country of origin: |
United Kingdom |
Release date: |
November 2023 |
Authors: |
Stephanie Nimmo
|
Dimensions: |
216 x 138mm (L x W) |
Pages: |
272 |
ISBN-13: |
978-1-80501-027-2 |
Categories: |
Books
|
LSN: |
1-80501-027-1 |
Barcode: |
9781805010272 |
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