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As prenatal tests proliferate, the medical and broader communities perceive that such testing is a logical extension of good prenatal care -- it helps parents have healthy babies. But prenatal tests have been criticized by the disability rights community, which contends that advances in science should be directed at improving their lives, not preventing them. Used primarily to decide to abort a fetus that would have been born with mental or physical impairments, prenatal tests arguably reinforce discrimination against and misconceptions about people with disabilities. In these essays, people on both sides of the issue engage in an honest and occasionally painful debate about prenatal testing and selective abortion. The contributors include both people who live with and people who theorize about disabilities, scholars from the social sciences and humanities, medical geneticists, genetic counselors, physicians, and lawyers. Although the essayists don't arrive at a consensus over the disability community's objections to prenatal testing and its consequences, they do offer recommendations for ameliorating some of the problems associated with the practice.
"The Double-Edged Helix" explores the impact of recent genetic discoveries on both different population segments and society as a whole. The authors address the medical and ethical implications of the new technologies, outlining potential positive and negative effects of genetic research on minorities, individuals with disabilities, and those of diverse sexual orientations. Presenting a wide array of perspectives, this book emphasizes the need to ensure that research into genetics research does not result in discrimination against people on the basis of their DNA.
Disability and gender, terms that have previously seemed so clear-cut, are becoming increasingly complex in light of new politics and scholarship. These words now suggest complicated sets of practices and ways of being. Contributors to this innovative collection explore the intersection of gender and disability in the arts, consumer culture, healing, the personal and private realms, and the appearance of disability in the public sphere-both in public fantasies and in public activism. Beginning as separate enterprises that followed activist and scholarly paths, gender and disability studies have reached a point where they can move beyond their boundaries for a common landscape to inspire new areas of inquiry. Whether from a perspective in the humanities, social sciences, sciences, or arts, the shared subject matter of gender and disability studies-the body, social and cultural hierarchy, identity, discrimination and inequality, representation, and political activism-insistently calls for deeper conversation. This volume provides fresh findings not only about the discrimination practiced against women and people with disabilities, but also about the productive parallelism between these two categories.
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