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This book addresses an unmet need in the care of adolescents and
young adults with lung disease. The increasing survival of young
adults with childhood-onset pulmonary conditions is a testament to
major advances in treatments and health care delivery. With the
increase in survival of children with chronic respiratory
conditions, there is a need for formalized transition programs to
integrate adolescents and young adults into the adult model of
care. This book helps fill gaps in knowledge to best achieve that
initiative. This book takes a comprehensive approach to transition
care in pulmonary medicine by satisfying the following objectives:
1) Understand the barriers and developmental challenges in the
transition from pediatric to adult care for patients with chronic
childhood-onset pulmonary disease; 2) Learn about successful
evidence based transition models in pulmonary disease populations,
focusing on key process and outcome measures for success; and 3)
Develop knowledge to design, implement, and measure a transition
program based on evidence and expert opinion. In the first section,
the book outlines general principles of transition care that are
applicable to all patients regardless of underlying disease process
and describe best practices for performing necessary research in
transition care. In the second section, the book explores
psychosocial factors known to play a role in affecting transition
outcomes, including parental support, psychological development,
and socioeconomic factors. In the final section, transition
outcomes and best practices in specific respiratory diseases are
outlined. With a focus on populations with chronic pulmonary
disease, this book highlights the challenges and barriers of
transition, reviews model systems to understand the essential
components of a transition program, and provides evidence-based
information to navigate these barriers and achieve successful
outcomes during transition to adulthood. This is an ideal guide for
pediatric and adult pulmonary providers caring for patients who are
transition age, as well as multidisciplinary care team members who
work with these providers in care models on transition projects to
improve the transition process.
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