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Dorothy Wertz and John Fletcher pioneered the first
international study of ethical and social issues in genetics in 18
nations. This book reports and discusses their second and more
representative study in 36 nations. The survey focused on actual
situations that occur in the practice of medical genetics,
presented as case vignettes that can also be used in teaching and
policy discussion. Among the issues discussed are privacy, prenatal
diagnosis, patient autonomy, directiveness in counseling, sex
selection, forensic DNA banking, "genetic discrimination," and
"eugenics."
This is Dorothy Wertz's final book, as she died in April, 2003. It
is a one of a kind cross-cultural study of complex ethical issues
in the uses of genetic information. No one else has attempted to
look at the international aspects of medical genetics on such a
broad scale. The results provide a resource for discussion both
within and among nations. Much bioethical and policy discussion now
occurs in an information vacuum. The survey showed that what people
would do, and their reasons for doing it, differed considerably
from what ethicists think they "should" do. Many will be surprised
at the results, especially in nations where bioethical discussion
is just beginning.
Genetics and Ethics in Global Perspective is of interest to medical
geneticists, genetic counselors, social scientists and
anthropologists who study cross-cultural issues, bioethicists and
bioethics centers and health policy makers.
Based in part on a survey of ethical decision-marking among 682
medical geneticists worldwide, this book includes a chapter
authored by a geneticistand an ethicist in 19 nations, describing
genetic services, counselling, screening, prenatal diagnosis, and
major ethical problems and social controversies faced by
geneticists. The concluding chapter describes ethical and policy
issues that exist worldwide, and offerssome possible resolutions.
Dorothy Wertz and John Fletcher pioneered the first
international study of ethical and social issues in genetics in 18
nations. This book reports and discusses their second and more
representative study in 36 nations. The survey focused on actual
situations that occur in the practice of medical genetics,
presented as case vignettes that can also be used in teaching and
policy discussion. Among the issues discussed are privacy, prenatal
diagnosis, patient autonomy, directiveness in counseling, sex
selection, forensic DNA banking, "genetic discrimination," and
"eugenics."
This is Dorothy Wertz's final book, as she died in April, 2003. It
is a one of a kind cross-cultural study of complex ethical issues
in the uses of genetic information. No one else has attempted to
look at the international aspects of medical genetics on such a
broad scale. The results provide a resource for discussion both
within and among nations. Much bioethical and policy discussion now
occurs in an information vacuum. The survey showed that what people
would do, and their reasons for doing it, differed considerably
from what ethicists think they "should" do. Many will be surprised
at the results, especially in nations where bioethical discussion
is just beginning.
Genetics and Ethics in Global Perspective is of interest to medical
geneticists, genetic counselors, social scientists and
anthropologists who study cross-cultural issues, bioethicists and
bioethics centers and health policy makers.
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