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Insights and information from a study of twelve human tissue
repositories; Case studies of twelve existing human biospecimen
repositories performed to evaluate their utility for genomics- and
proteomics-based cancer research and to identify 3best practices2
in collection, processing, annotation, storage, privacy, ethical
concerns, informed consent, business plans, operations,
intellectual property rights, public relations, marketing, and
education that would be useful in designing a national biospecimen
network.
Federal government operates several large-scale research facilities
that enable scientific inquiry in a range of fields. This study was
designed to help the Office of Science and Technology Policy (OSTP)
to address issues surrounding the planning, operation and
management of selected facilities.
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