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This book focuses on two areas of substantial and growing
importance to the human development and capability approach: health
and disability. The research on disability, health and the
capability approach has been diverse in the topics it covers, and
the conceptual frameworks and methodologies it uses, beginning over
a decade and a half ago in health and more than a decade ago in
disability. This book shares a set of contributions in these two
areas: the first set of chapters focusing on disability; and the
second set focusing on health and the health capability paradigm
(HCP), in particular. This book was originally published as a
special issue of the Journal of Human Development and Capabilities.
This book focuses on two areas of substantial and growing
importance to the human development and capability approach: health
and disability. The research on disability, health and the
capability approach has been diverse in the topics it covers, and
the conceptual frameworks and methodologies it uses, beginning over
a decade and a half ago in health and more than a decade ago in
disability. This book shares a set of contributions in these two
areas: the first set of chapters focusing on disability; and the
second set focusing on health and the health capability paradigm
(HCP), in particular. This book was originally published as a
special issue of the Journal of Human Development and Capabilities.
Health and Social Justice provides a theoretical framework for
health ethics, public policy and law in which Dr Ruger introduces
the health capability paradigm, an innovative and unique approach
which considers the capability of health as a moral imperative.
This book is the culmination of more than a decade and a half of
work to develop the health capability paradigm, with a vision of a
world where all have the capability to be healthy. This vision is
grounded in the Aristotelian view of human flourishing and also
Amartya Sen's capability approach. In this new paradigm, not just
health care, or even just health alone, but the capability for
health itself is a moral imperative, as is ensuring the conditions
that allow all individuals the means to achieve central health
capabilities. Key tenets of health capability include health
agency, shared health governance, where individuals, providers and
institutions work together to create a social system enabling all
to be healthy, and the use of theorized agreements and shared
reasoning to guide social choice and shape health policy and
decision-making. This book provides philosophical justification for
the direct moral importance of health and the capability for health
and follows a norms-based approach to health promotion. It employs
a joint scientific and deliberative approach to guide health system
development and reform, and the allocation of scarce health
resources. The health capability paradigm integrates both
proceduralist and consequentialist approaches to justice, and both
moral and political legitimacy are critical.
Societies make decisions and take actions that profoundly impact
the distribution of health. Why and how should collective choices
be made, and policies implemented, to address health inequalities
under conditions of resource scarcity? How should societies
conceptualize and measure health disparities, and determine whether
they've been adequately addressed? Who is responsible for various
aspects of this important social problem? In Health and Social
Justice, Jennifer Prah Ruger elucidates principles to guide these
decisions, the evidence that should inform them, and the policies
necessary to build equitable and efficient health systems
world-wide. This book weaves together original insights and
disparate constructs to produce a foundational new theory, the
health capability paradigm.
Ruger's theory takes the ongoing debates about the theoretical
underpinnings of national health disparities and systems in
striking new directions. It shows the limitations of existing
approaches (utilitarian, libertarian, Rawlsian, communitarian), and
effectively balances a consequentialist focus on health outcomes
and costs with a proceduralist respect for individuals' health
agency. Through what Ruger calls shared health governance, it
emphasizes responsibility and choice. It allows broader assessment
of injustices, including attributes and conditions affecting
individuals' "human flourishing," as well as societal structures
within which resource distribution occurs. Addressing complex
issues at the intersection of philosophy, economics, and politics
in health, this fresh perspective bridges the divide between the
collective and the individual, between personal freedom and social
welfare, equality and efficiency, and science and economics.
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