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The Disability Bioethics Reader is the first introduction to the
field of bioethics presented through the lens of critical
disability studies and the philosophy of disability. Introductory
and advanced textbooks in bioethics focus almost entirely on issues
that disproportionately affect disabled people and that centrally
deal with becoming or being disabled. However, such textbooks
typically omit critical philosophical reflection on disability.
Directly addressing this omission, this volume includes 36
chapters, most appearing here for the first time, that cover key
areas pertaining to disability bioethics, such as:
state-of-the-field analyses of modern medicine, bioethics, and
disability theory health, disease, and the philosophy of medicine
issues at the edge- and end-of-life, including
physician-aid-in-dying, brain death, and minimally conscious states
enhancement and biomedical technology invisible disabilities,
chronic pain, and chronic illness implicit bias and epistemic
injustice in health care disability, quality of life, and
well-being race, disability, and healthcare justice connections
between disability theory and aging, trans, and fat studies
prenatal testing, abortion, and reproductive justice. The
Disability Bioethics Reader, unlike traditional bioethics
textbooks, also engages with decades of empirical and theoretical
scholarship in disability studies-scholarship that spans the social
sciences and humanities-and gives serious consideration to the
history of disability activism.
The Disability Bioethics Reader is the first introduction to the
field of bioethics presented through the lens of critical
disability studies and the philosophy of disability. Introductory
and advanced textbooks in bioethics focus almost entirely on issues
that disproportionately affect disabled people and that centrally
deal with becoming or being disabled. However, such textbooks
typically omit critical philosophical reflection on disability.
Directly addressing this omission, this volume includes 36
chapters, most appearing here for the first time, that cover key
areas pertaining to disability bioethics, such as:
state-of-the-field analyses of modern medicine, bioethics, and
disability theory health, disease, and the philosophy of medicine
issues at the edge- and end-of-life, including
physician-aid-in-dying, brain death, and minimally conscious states
enhancement and biomedical technology invisible disabilities,
chronic pain, and chronic illness implicit bias and epistemic
injustice in health care disability, quality of life, and
well-being race, disability, and healthcare justice connections
between disability theory and aging, trans, and fat studies
prenatal testing, abortion, and reproductive justice. The
Disability Bioethics Reader, unlike traditional bioethics
textbooks, also engages with decades of empirical and theoretical
scholarship in disability studies-scholarship that spans the social
sciences and humanities-and gives serious consideration to the
history of disability activism.
A philosophical challenge to the ableist conflation of disability
and pain More than 2,000 years ago, Aristotle said: "let there be a
law that no deformed child shall live." This idea is alive and well
today. During the past century, Supreme Court Justice Oliver
Wendell Holmes Jr. argued that the United States can forcibly
sterilize intellectually disabled women and philosopher Peter
Singer argued for the right of parents to euthanize certain
cognitively disabled infants. The Life Worth Living explores how
and why such arguments persist by investigating the exclusion of
and discrimination against disabled people across the history of
Western moral philosophy. Joel Michael Reynolds argues that this
history demonstrates a fundamental mischaracterization of the
meaning of disability, thanks to the conflation of lived
experiences of disability with those of pain and suffering.
Building on decades of activism and scholarship in the field,
Reynolds shows how longstanding views of disability are misguided
and unjust, and he lays out a vision of what an anti-ableist moral
future requires. The Life Worth Living is the first sustained
examination of disability through the lens of the history of moral
philosophy and phenomenology, and it demonstrates how lived
experiences of disability demand a far richer account of human
flourishing, embodiment, community, and politics in philosophical
inquiry and beyond.
Addressing Ableism is a set of philosophical meditations outlining
the scale and scope of ableism. By explicating concepts like
experience, diagnosis, precariousness, and prosthesis, Scuro maps
out the institutionalized and intergenerational forms of this bias
as it is analogous and yet also distinct from other kinds of
dehumanization, discrimination, and oppression. This project also
includes a dialogical chapter on intersectionality with Devonya
Havis and Lydia Brown, a philosopher and writer/activist
respectively. Utilizing theorists like Judith Butler, Tobin
Siebers, Emmanuel Levinas, and Hannah Arendt to address ableism,
Scuro thoroughly critiques the neoliberal culture and politics that
underwrites ableist affections and phobias. This project exposes
the many material and non-material harms of ableism, and it offers
multiple avenues to better confront and resist ableism in its many
forms. Scuro provides crucial insights into the many uninhabitable
and unsustainable effects of ableism and how we might revise our
intentions and desires for the sake of a less ableist world.
Addressing Ableism is a set of philosophical meditations outlining
the scale and scope of ableism. By explicating concepts like
experience, diagnosis, precariousness, and prosthesis, Scuro maps
out the institutionalized and intergenerational forms of this bias
as it is analogous and yet also distinct from other kinds of
dehumanization, discrimination, and oppression. This project also
includes a dialogical chapter on intersectionality with Devonya
Havis and Lydia Brown, a philosopher and writer/activist
respectively. Utilizing theorists like Judith Butler, Tobin
Siebers, Emmanuel Levinas, and Hannah Arendt to address ableism,
Scuro thoroughly critiques the neoliberal culture and politics that
underwrites ableist affections and phobias. This project exposes
the many material and non-material harms of ableism, and it offers
multiple avenues to better confront and resist ableism in its many
forms. Scuro provides crucial insights into the many uninhabitable
and unsustainable effects of ableism and how we might revise our
intentions and desires for the sake of a less ableist world.
A philosophical challenge to the ableist conflation of disability
and pain More than 2,000 years ago, Aristotle said: "let there be a
law that no deformed child shall live." This idea is alive and well
today. During the past century, Supreme Court Justice Oliver
Wendell Holmes Jr. argued that the United States can forcibly
sterilize intellectually disabled women and philosopher Peter
Singer argued for the right of parents to euthanize certain
cognitively disabled infants. The Life Worth Living explores how
and why such arguments persist by investigating the exclusion of
and discrimination against disabled people across the history of
Western moral philosophy. Joel Michael Reynolds argues that this
history demonstrates a fundamental mischaracterization of the
meaning of disability, thanks to the conflation of lived
experiences of disability with those of pain and suffering.
Building on decades of activism and scholarship in the field,
Reynolds shows how longstanding views of disability are misguided
and unjust, and he lays out a vision of what an anti-ableist moral
future requires. The Life Worth Living is the first sustained
examination of disability through the lens of the history of moral
philosophy and phenomenology, and it demonstrates how lived
experiences of disability demand a far richer account of human
flourishing, embodiment, community, and politics in philosophical
inquiry and beyond.
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