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COVID-19 has once again illuminated the ways in which health risks
and negative health outcomes are tied to economic and social
inequalities. Disabled people rank among those most disadvantaged
in terms of education, income, and social inclusion and this
exacerbated their risk of negative pandemic-related outcomes. From
the start, it was clear that disabled people would be
disproportionately affected by the pandemic and this solidified as
the pandemic unfolded. Disability in the Time of Pandemic is a
timely exploration of emerging research into the implications of
the COVID-19 pandemic for people with disabilities in their varied
communities and across their complex identities. Using the
insights, perspectives, and methods of a variety of disciplines
including Anthropology, Disability Studies, Education, Physical and
Rehabilitation Therapies, Public Health, Psychology, Sociology, and
Women's and Gender Studies, authors explore the initial and ongoing
effects of the global pandemic on people with disabilities in
Canada, India, Poland, and the United States. The Research in
Social Science and Disability series is essential reading for
researchers and students across the social sciences interested in
disability, social movements, activism, and identity.
A mother whose child has had a cochlear implant tells Laura Mauldin
why enrollment in the sign language program at her daughter's
school is plummeting: "The majority of parents want their kids to
talk." Some parents, however, feel very differently, because
"curing" deafness with cochlear implants is uncertain, difficult,
and freighted with judgment about what is normal, acceptable, and
right. Made to Hear sensitively and thoroughly considers the
structure and culture of the systems we have built to make deaf
children hear. Based on accounts of and interviews with families
who adopt the cochlear implant for their deaf children, this book
describes the experiences of mothers as they navigate the health
care system, their interactions with the professionals who work
with them, and the influence of neuroscience on the process. Though
Mauldin explains the politics surrounding the issue, her focus is
not on the controversy of whether to have a cochlear implant but on
the long-term, multiyear undertaking of implantation. Her study
provides a nuanced view of a social context in which science,
technology, and medicine are trusted to vanquish disability-and in
which mothers are expected to use these tools. Made to Hear reveals
that implantation has the central goal of controlling the
development of the deaf child's brain by boosting synapses for
spoken language and inhibiting those for sign language, placing the
politics of neuroscience front and center. Examining the
consequences of cochlear implant technology for professionals and
parents of deaf children, Made to Hear shows how certain
neuroscientific claims about neuroplasticity, deafness, and
language are deployed to encourage compliance with medical
technology.
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