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In People with Dementia Speak Out, twenty-three people from diverse
backgrounds share their experiences of living with dementia. The
contributors are honest about the frustrations and fears they face,
but overall there is remarkably little self-pity and a great deal
of optimism. The personal accounts demonstrate that with the right
support at the right time, and above all with opportunities to
continue to contribute to society in a meaningful way, it is
possible to live well with dementia. These fascinating stories
bring to life the characters behind the collective term 'people
with dementia', and show that each person with dementia is a unique
individual with their own personality, history, beliefs, cultural
affinities and sense of humour, and their own way of adapting to
the disabilities and opportunities which this condition confers.
This unique collection of personal testimonies will be reassuring
and encouraging for those coming to terms with a diagnosis of
dementia, for their families and carers, and is essential reading
for health and social care professionals at all levels.
How does it feel when someone you love develops dementia? How do
you cope with the shock, the stress and the grief? Can you be sure
that you and your family will receive the support you need? In
Telling Tales About Dementia, thirty carers from different
backgrounds and in different circumstances share their experiences
of caring for a parent, partner or friend with dementia. They speak
from the heart about love and loss: 'I still find it hard to
believe that Alzheimer's has happened to us,' writes one
contributor, 'as if we were sent the wrong script.' The stories
told here vividly reflect the tragedy of dementia, the gravity of
loss, and instances of unsatisfactory diagnosis, treatment and
care. But they contain hope and optimism too: clear indications
that the quality of people's lives can be enhanced by sensitive
support services, by improved understanding of the impact of
dementia, by recognising the importance of valuing us all as human
beings, and by embracing and sustaining the connections between us.
This unique collection of personal accounts will be an engaging
read for anyone affected by dementia in a personal or professional
context, including relatives of people with dementia, social
workers, medical practitioners and care staff.
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