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This book is about the journey of dealing with ALS (Lou Gehrig's
Disease). My wife Kenni Spencer, contacted this "evil disease" in
2009 and none of us even knew what it was nor what to expect. As
with all terminal diseases, the print journey, is usually defined
in words of hope, thankfulness, and new experiences. STOP...this
book is about the "real face" of ALS. It charts the known's, the
unknowns, the fears, the hopelessness, and the frustrations. This
book shares the rawness and frankness of the ALS disease journey.
It shares the whole dynamics that this disease manifests itself
within the family structure. This book, the true face of ALS (Lou
Gehrig's Disease), is not to enjoy, but to clarify and understand
the reality of it's impact. There is this huge degree of
hopelessness for ALS victims. I am hoping that by writing this
book, and explaining the journey, some bits of hope can be realized
for futures to come.
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