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Prenatal Genetic Testing, Abortion, and Disability Justice (Hardcover, Prenatal Genetic Testing, Abortion, An)
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Prenatal Genetic Testing, Abortion, and Disability Justice (Hardcover, Prenatal Genetic Testing, Abortion, An)
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The routinization of non-invasive prenatal genetic testing (NIPT)
raises urgent questions about disability rights and reproductive
justice. Supporters defend NIPT on the grounds that genetic
information about the fetus helps would-be parents make better
family planning choices. Prenatal Genetic Testing, Abortion, and
Disability Justice challenges that assessment by exploring how NIPT
can actually constrain pregnant women's options. Prospective
parents must balance a complicated array of factors, including the
familial, social, and financial support they can reasonably expect
to receive if they choose to carry a disabled fetus to term and
raise after birth, causing many pregnant women to "choose"
termination. Focusing on the US, the book explores the intent and
effects of prenatal screening in connection to women's bodily
autonomy and disability rights, addressing themes at the
intersection of genetic medicine, policymaking, critical
disabilities studies, and political theory. Knight and Miller shift
debates about reprogenetics from bioethics to political practice,
as well as thoroughly critiquing the neoliberal state and the
eugenic technologies that support it. Providing concrete
suggestions for reforming medical practice, welfare policy, and
cultural norms surrounding disability, this book highlights sites
of necessary reform to envision how prospective parents can make
truly free choices about prenatal genetic testing and selection
abortion.
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