Following the boom in population databases in recent years there
has been sustained and intense international debate about political
processes and legal and ethical issues surrounding the protection
and use of genetic data. As a result, several national and
international organizations and committees have published widely
differing guidelines and statements concerning genetic databases
and biobanks. Ethical Issues of Human Genetic Databases compares
the new area of biobanking with the tradition of ethically accepted
classical research and highlights the distinctive features of
existing databases and guidelines. The volume identifies areas of
consensus and controversy while investigating the challenges posed
to classical health research ethics by the existence of genetic
databases, analyzing the reasons for such varying guidelines. The
book will be essential to academics, biobankers, policy-makers and
researchers in the field of medical ethics.
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