Brenda Currey Lewis was a typical, active child. But when she was
seven years old her life changed dramatically. Generalized dystonia
(dystonia musculorum deformans) turned her muscles against her.
This rare neurological movement disorder causes muscle groups to
tug and twist the body into abnormal postures. Brenda started
walking on the outer edge of her right foot, and within a year she
was wheelchair bound. The symptoms gradually spread through most of
her body. For almost forty years Brenda has experienced
uncontrollable muscle movements that have wreaked havoc in her
body, but not her spirit. This is a story of resilience in the face
of a little-known, confusing, and debilitating condition. The
author takes you on a journey from skating rinks to surgical
suites, from bicycles to wheelchairs, from doubt to determination.
Brenda's quirky sense of humour makes this candid account of life
with dystonia a thought-provoking and an entertaining read.
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