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Sharing Linked Data for Health Research - Toward Better Decision Making (Hardcover)
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Sharing Linked Data for Health Research - Toward Better Decision Making (Hardcover)
Series: Cambridge Bioethics and Law
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Health research around the world relies on access to data, and much
of the most valuable, reliable, and comprehensive data collections
are held by governments. These collections, which contain data on
whole populations, are a powerful tool in the hands of researchers,
especially when they are linked and analyzed, and can help to
address "wicked problems" in health and emerging global threats
such as COVID-19. At the same time, these data collections contain
sensitive information that must only be used in ways that respect
the values, interests, and rights of individuals and their
communities. Sharing Linked Data for Health Research provides a
template for allowing research access to government data
collections in a regulatory environment designed to build social
license while supporting the research enterprise.
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