On average, black Americans are sicker and die earlier than white
Americans. "Uncertain Suffering" provides a richly nuanced
examination of what this fact means for health care in the United
States through the lens of sickle cell anemia, a disease that
primarily affects blacks. In a wide ranging analysis that moves
from individual patient cases to the compassionate yet distanced
professionalism of health care specialists to the level of national
policy, Carolyn Moxley Rouse uncovers the cultural assumptions that
shape the quality and delivery of care for sickle cell patients.
She reveals a clinical world fraught with uncertainties over how to
treat black patients given resource limitations and ambivalence.
Her book is a compelling look at the ways in which the politics of
racism, attitudes toward pain and suffering, and the reliance on
charity for healthcare services for the underclass can create
disparities in the U.S. Instead of burdening hospitals and clinics
with the task of ameliorating these disparities, Rouse argues that
resources should be redirected to community-based health programs
that reduce daily forms of physical and mental suffering.
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