critically ill and unlikely to survive. A recent Harvard University
study on pediatric end-of-life care has shown that the medical
community is failing such children and their families. Indeed, in
their effort to be ever-hopeful and cure-oriented in the face of a
child's terminal illness, they neglect to advise parents on the
basics of emotional support for all family members, pediatric pain
medication, and the need for making plans and worst-case
preparations.Based on the National Advanced Illness Coordinated
Care program and the stories and advice gleaned from co-author
Joanne Hilden's years of work as a pediatric oncologist, Shelter
from the Storm fills this advice-and-caregiving void. A
compassionate road map to what the family may have to face, what
they may be asked to decide, and how they might want to involve
their child in the decision-making, Shelter from the Storm will
help parents and caregivers make informed, loving, and protective
choices on behalf of their children in the most trying of times.
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