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Making Their Days Happen - Paid Personal Assistance Services Supporting People with Disability Living in Their Homes and Communities (Paperback)
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Making Their Days Happen - Paid Personal Assistance Services Supporting People with Disability Living in Their Homes and Communities (Paperback)
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Most Americans-even those with significant disability-want to live
in their homes and communities. Unpaid family members or friends
often work as "informal" caregivers, helping those who need
assistance- and many feel they have no option but to serve. In
contrast, paid personal assistance services workers (PAS) provide a
lifeline to those consumers with complex needs and limited social
networks. However, there is a crisis looming in the increasing
needs for paid PAS and the limited available PAS workforce. Making
Their Days Happen explores disability, health, and civil rights,
along with relevant federal and state labor policies related to
personal assistance services. Lisa Iezzoni addresses the legal
context of paid PAS as well as financing mechanisms for obtaining
home-based personal assistance. She also draws upon interviews she
conducted with paid PAS consumers and PAS workers to explore PAS
experiences and their perspectives about their work. Offering
recommendations for improving future experiences of PAS consumers
and providers, Iezzoni emphasizes that people with disabilities
want to be a part of society, and PAS workers who do this low-wage
work find satisfaction in helping them achieve their goals.
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