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Books > Medicine > General issues > Medical ethics
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Genetic Privacy: An Evaluation Of The Ethical And Legal Landscape (Hardcover, New)
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Genetic Privacy: An Evaluation Of The Ethical And Legal Landscape (Hardcover, New)
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Privacy is an unwieldy concept that has eluded an essentialised
definition despite its centrality and importance in the body of
bioethics. The compilation presented in this volume represents
continuing discussions on the theme of privacy in the context of
genetic information. It is intended to present a wide range of
expert opinion in which the notion of privacy is examined from many
perspectives, in different contexts and imperatives, and in
different societies, with the hope of advancing an understanding of
privacy through the examination and critique of some of its
evolving component concepts such as notions of what constitute the
personal, the context of privacy, the significance and impact of
the relational interests of others who may share the same genetic
inheritance, and mechanisms for the protection of privacy (as well
as of their limitations), among others. More specifically, the
discussions in this volume encourages us to think broadly about
privacy, as encompassing values that are entailed in the sociality
of context and of relations, and also as freedom from illegitimate
and excessive surveillance. A long-standing question that continues
to challenge us is whether genetic information should be regarded
as exceptional, as it is often perceived. A conclusion that could
be derived from this volume is that while genetic information may
be significant, it is not exceptionally so. The work presented in
this volume underlines the continuing and growing relevance of
notions of privacy to genomic science, and the need to take
ownership of a genetic privacy for the future through broad,
rigorous and open discussion.Contributors: Alastair V Campbell,
Benjamin Capps, Jacqueline JL Chin, Oi Lian Kon, Kenji Matsui,
Thomas H Murray, Nazirudin Mohd Nasir, Dianne Nicol, Anh Tuan
Nuyen, Onora O'Neill, Margaret Otlowski, Yvette van der Eijk,
Chunshui Wang, Ross S White.
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