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The unique demands on dementia care of remote and rural settings
are explored in this first dedicated analysis. Drawing on evidence
from the UK, Australia, Europe and North America, it examines the
experiences and needs of those living with the condition and those
caring for them, and sets out opportunities for future research,
policy and practice in dementia services.
Dementia: The Basics provides the reader with a clear and
compassionate introduction to dementia and an accessible guide to
dealing with different parts of the dementia journey, from
pre-diagnosis and diagnosis to post-diagnostic support, increasing
care needs and end of life care. Co-authored by an academic, a
person living with dementia and a family carer, the book endeavours
to raise awareness of dementia, challenge stereotypical and
negative ideas about what it means to have dementia and champion a
society where people living with dementia can be active as they
wish for as long as possible. The authors present an overview of
current research at each step of the dementia journey as well as
including knowledge from lived experience, enhancing understanding
and challenging thinking about what it might be like to live with a
diagnosis or to care for a loved one. As a whole, the book
emphasises the importance of prioritising the person living with
dementia, as well as considering the impact of what any initiative
or action might mean for them, their families and their care
supporters. Offering both an accessible introduction to dementia
and practical tools, this book will be ideal for health and social
care professionals, students of social care, health care and
nursing, people with dementia, carers and anyone wanting to
understand more about the condition.
Dementia: The Basics provides the reader with a clear and
compassionate introduction to dementia and an accessible guide to
dealing with different parts of the dementia journey, from
pre-diagnosis and diagnosis to post-diagnostic support, increasing
care needs and end of life care. Co-authored by an academic, a
person living with dementia and a family carer, the book endeavours
to raise awareness of dementia, challenge stereotypical and
negative ideas about what it means to have dementia and champion a
society where people living with dementia can be active as they
wish for as long as possible. The authors present an overview of
current research at each step of the dementia journey as well as
including knowledge from lived experience, enhancing understanding
and challenging thinking about what it might be like to live with a
diagnosis or to care for a loved one. As a whole, the book
emphasises the importance of prioritising the person living with
dementia, as well as considering the impact of what any initiative
or action might mean for them, their families and their care
supporters. Offering both an accessible introduction to dementia
and practical tools, this book will be ideal for health and social
care professionals, students of social care, health care and
nursing, people with dementia, carers and anyone wanting to
understand more about the condition.
Focusing on theoretical, policy and practice issues which are
increasingly identified as key priorities, the contributors to this
important book examine the ways in which dementia care is evolving
around the globe. They explore the latest theory underpinning
dementia care, the applications of this theory in dementia care
research and how this research is influencing and shaping practice.
Written by practitioners, policy influencers and researchers who
draw on case studies from the UK, the USA, Canada, Australia,
France, India and Malta, the book forms the basis for a worldwide
dialogue of interdisciplinary initiatives and ideas. Insights into
how policy and regional and national dementia strategies are
developed, and the range of innovative approaches that can be taken
in practice, mark a positive step towards ensuring that the needs
of people with dementia around the world are met, both now and in
the future. This book makes essential reading for practitioners,
researchers, policy makers and students in the field of dementia
care.
This authoritative collection sets out the critical role and
application of evaluation in identifying and developing good
practice in a range of dementia care settings. The contributors
discuss the evaluation of care at different levels and in various
settings, particularly long stay care, covering evaluation methods,
ethics, use of technology and the user's role in the evaluation
process itself. Their contributions on evaluating aspects of
dementia care ranging from life story work and environmental
considerations to medication and dementia care mapping is a useful
basis for the discussion of future challenges in evaluation of
dementia care. Practical and theoretical, this wide-ranging text is
essential reading for dementia care practitioners at all levels, as
well as students and researchers interested in dementia care
practice.
There has been a considerable and welcome growth of publications
about dementia care and Jessica Kingsley Publishers has certainly
played a very useful part in this growth... we need more not less
of this quality of work and writing if society is to include those
with dementia as full citizens.' - Christian Council on Ageing 'The
editors are to be congratulated on assembling a collection of
contributions which make this book a milestone in the literature on
dementia research and practice... [They] have collected papers on
extraordinarily diverse issues and from a very diverse set of
authors. Each of the chapters can be seen as an invaluable
introduction to the topic area as well as addressing the main theme
of the book. It is a milestone book because it manages to provide a
snapshot of dementia studies at this moment in time and will, in my
view, be widely quoted by policy makers, practice developers,
researchers and trainers for the next few years... In such a
treasure trove of approaches and issues it is hard to pick out the
most striking... I would recommend this book: all readers of the
journal will find chapters that they can use to improve dementia
care.' - Journal of Dementia Care 'What makes this particularly
notable is that Innes, Archibald and Murphy have harnessed such
individual voices to address so cogently. Together they address the
core issues, all too often neglected or marginalized, in dementia
research and care. Sexuality, communication, risk taking,
ethnicity, incontinence and practices within remote rural
communities are all subjects that draw threads from the very fabric
of our society, and it is indicative of how wide the spectrum has
broadened that these historically dispirit strands can be tackled
constructively.' - Signpost 'A diverse range of subjects are
covered in a series of papers written by numerous professionals of
standing from various disciplines... The subjects covered include
ethnicity, spirituality, sexuality, dying with dementia (palliative
care), faecal incontinence and risk-taking. There is a section
addressing aspects of communicating with people with dementia and
another covering the medical aspects of dementia that have not had
much focus in recent years, such as hypertension and diabetes.
Finally, there is a social science perspective, including
discussing ways that people with dementia can be involved in the
research process. I found the book easy to read and it is well
written and clearly presented. Covering marginalized areas of
practice, it offers food for thought for the reader and is a
welcome addition to current literature'. - British Journal of
Occupational Therapy 'This book provides invaluable research
results and innovative thinking which professionals studying
gerontology and dementia care will find very useful throughout
their careers.' - London Centre for Dementia Care Newsletter 'The
contributors to this volume examine the barriers to the
consideration of social inclusion in the field of dementia studies
and argue for the necessity of acknowledging the personhood of all
individuals with dementia. The papers discuss the sexuality of
people with dementia, communication and risk taking, and dementia
care in remote rural communities, among other topics. The volume
ends with suggestions for more inclusive values, service
development, theory and research'. - Book News 'The book,
commendably, tries to look at marginalized issues within dementia,
such as death and dying, sexuality and faecal incontinence.' -
Mental Health Today 'This is a book for the connoisseur. I wish I
had contributed a paper. I wish I had read it even earlier. It will
be appreciated by many people, from many backgrounds. This is the
study of dementia and dementia-care grown to a new maturity.
Chapters are original research papers, communicating new findings
and analyses, set in the context of previous knowledge, well
reviewed... Thanks to the editors and authors for this little gift.
Let's be sure it is read widely.' - David Jolley, director of
Dementiaplus Examining important issues in dementia research and
care that are often neglected or marginalized, the contributors to
this book provide fresh perspectives on current practice. The
authors put dementia care into a socio-cultural framework,
highlighting the impact of social change on dementia care over the
last two decades and challenging current stereotypes. The
contributors address the implications of power relationships
between carers and people with dementia and discuss a broad
spectrum of issues, including: * the sexuality of people with
dementia * communication and risk taking * people with dementia
from minority ethnic groups * faecal incontinence * dementia care
and practice in remote rural communities. Taking an in-depth look
at dementia research and service development, this book makes
essential reading for practitioners, researchers and students
working in the field of dementia care.
Using the latest ideas on good practice from the Bradford Dementia
Group, Anthea Innes provides a complete and concise guide to
running a training programme for dementia care workers. She begins
with a brief outline of the key factors to consider prior to the
design, delivery and implementation of a programme. In particular
the book stresses the importance of getting to know the care
setting in which the trainees will practise, to ensure that the
training has direct relevance to participants. The author then
discusses the theoretical and practical issues involved in
designing the training programme, including advice on how best to
tailor it to the audience, and highlighting the practical points a
trainer needs to consider when delivering a programme. She
considers the problems that arise when attempting to convert theory
into practice, as well as factors that can help training be
relevant and acted upon. The book concludes with a discussion about
the best means of evaluating a training programme and its impact on
practice.
Offering practical advice for arts therapists and health care
professionals, this book emphasizes the importance of putting the
individual before the illness to provide holistic, person-centred
support for people with dementia. The contributors are all
practising healing arts therapists who show how music, dance and
the visual arts can be used in partnership with person-centred care
to promote improved memory, reduced anxiety, increased self-esteem,
better communication and successful group interaction. They use
case studies to demonstrate the ways in which therapists can
encourage engagement of those with dementia with sound, touch,
movement and visual forms, making this a positive and practical
book for all those working to provide person-centred dementia
What is dementia? How should we organize dementia care? This
comprehensive book critically examines the main approaches to
understanding dementia (bio-medical, social-psychological and
socio-gerontological) and the main principles and ideologies of
care. The book: * provides clarity on the gap between the utopian
aspirations of care and the reality of care * opens up a series of
questions about knowledge and treatment of dementia * argues for a
transition from positions that place emphasis upon the individual
or particular care services to the social, cultural and economic
context Lively, informative and challenging, the book will be of
interest to students of nursing, sociology of health & illness,
social work and social gerontology. Anthea Innes teaches at the
Dementia Services Development Centre, University of Stirling
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