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Many critical analyses of disability address important 'macro'
concerns, but are often far removed from an interactional and
micro-level focus. Written by leading scholars in the field, and
containing a range of theoretical and empirical contributions from
around the world, this book focuses on the taken-for-granted,
mundane human activities at the heart of how social life is
reproduced, and how this impacts on the lives of those with a
disability, family members, and other allies. It departs from
earlier accounts by making sense of how disability is lived,
mobilised, and enacted in everyday lives. Although broad in focus
and navigating diverse social contexts, chapters are united by a
concern with foregrounding micro, mundane moments for making sense
of powerful discourses, practices, affects, relations, and
world-making for disabled people and their allies. Using different
examples - including learning disabilities, cerebral palsy,
dementia, polio, and Parkinson's disease - contributions move
beyond a simplified narrow classification of disability which
creates rigid categories of existence and denies bodily variation.
Disability, Normalcy, and the Everyday should be considered
essential reading for disability studies students and academics, as
well as professionals involved in health and social care. With
contributions located within new and familiar debates around
embodiment, stigma, gender, identity, inequality, care, ethics,
choice, materiality, youth, and representation, this book will be
of interest to academics from different disciplinary backgrounds
including sociology, anthropology, humanities, public health,
allied health professions, science and technology studies, social
work, and social policy.
Nominated for the Foundation of Sociology of Health and Illness
Book Prize 2018 In the UK and beyond, Down's syndrome screening has
become a universal programme in prenatal care. But why does
screening persist, particularly in light of research that
highlights pregnant women's ambivalent and problematic experiences
with it? Drawing on an ethnography of Down's syndrome screening in
two UK clinics, Thomas explores how and why we are so invested in
this practice and what effects this has on those involved. Informed
by theoretical approaches that privilege the mundane and micro
practices, discourses, materials, and rituals of everyday life,
Down's Syndrome Screening and Reproductive Politics describes the
banal world of the clinic and, in particular, the professionals
contained within it who are responsible for delivering this
programme. In so doing, it illustrates how Down's syndrome
screening is 'downgraded' and subsequently stabilised as a
'routine' part of a pregnancy. Further, the book captures how this
routinisation is deepened by a systematic, but subtle, framing of
Down's syndrome as a negative pregnancy outcome. By unpacking the
complex relationships between professionals, parents, technology,
policy, and clinical practice, Thomas identifies how and why
screening is successfully routinised and how it is embroiled in
both new and familiar debates surrounding pregnancy, ethics,
choice, diagnosis, care, disability, and parenthood. The book will
appeal to academics, students, and professionals interested in
medical sociology, medical anthropology, science and technology
studies (STS), bioethics, genetics, and/or disability studies.
Nominated for the Foundation of Sociology of Health and Illness
Book Prize 2018 In the UK and beyond, Down's syndrome screening has
become a universal programme in prenatal care. But why does
screening persist, particularly in light of research that
highlights pregnant women's ambivalent and problematic experiences
with it? Drawing on an ethnography of Down's syndrome screening in
two UK clinics, Thomas explores how and why we are so invested in
this practice and what effects this has on those involved. Informed
by theoretical approaches that privilege the mundane and micro
practices, discourses, materials, and rituals of everyday life,
Down's Syndrome Screening and Reproductive Politics describes the
banal world of the clinic and, in particular, the professionals
contained within it who are responsible for delivering this
programme. In so doing, it illustrates how Down's syndrome
screening is 'downgraded' and subsequently stabilised as a
'routine' part of a pregnancy. Further, the book captures how this
routinisation is deepened by a systematic, but subtle, framing of
Down's syndrome as a negative pregnancy outcome. By unpacking the
complex relationships between professionals, parents, technology,
policy, and clinical practice, Thomas identifies how and why
screening is successfully routinised and how it is embroiled in
both new and familiar debates surrounding pregnancy, ethics,
choice, diagnosis, care, disability, and parenthood. The book will
appeal to academics, students, and professionals interested in
medical sociology, medical anthropology, science and technology
studies (STS), bioethics, genetics, and/or disability studies.
Many critical analyses of disability address important 'macro'
concerns, but are often far removed from an interactional and
micro-level focus. Written by leading scholars in the field, and
containing a range of theoretical and empirical contributions from
around the world, this book focuses on the taken-for-granted,
mundane human activities at the heart of how social life is
reproduced, and how this impacts on the lives of those with a
disability, family members, and other allies. It departs from
earlier accounts by making sense of how disability is lived,
mobilised, and enacted in everyday lives. Although broad in focus
and navigating diverse social contexts, chapters are united by a
concern with foregrounding micro, mundane moments for making sense
of powerful discourses, practices, affects, relations, and
world-making for disabled people and their allies. Using different
examples - including learning disabilities, cerebral palsy,
dementia, polio, and Parkinson's disease - contributions move
beyond a simplified narrow classification of disability which
creates rigid categories of existence and denies bodily variation.
Disability, Normalcy, and the Everyday should be considered
essential reading for disability studies students and academics, as
well as professionals involved in health and social care. With
contributions located within new and familiar debates around
embodiment, stigma, gender, identity, inequality, care, ethics,
choice, materiality, youth, and representation, this book will be
of interest to academics from different disciplinary backgrounds
including sociology, anthropology, humanities, public health,
allied health professions, science and technology studies, social
work, and social policy.
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