There exists today a fast growing availability of personal genetic information. Its prognostic impact and value for an individual or family member's health is sometimes unclear, whilst at other times it is clear-cut. The issue of whether to disclose genetic information does however have wide ranging implications. Avoiding the rhetoric of 'genetic exceptionalism', and drawing on an expanded field of bioethical, sociological and anthropological research, this book sets a new agenda for discussing the ethics surrounding the disclosure of prognostic genetic information. A hermeneutical approach reconsiders the ethics of disclosure in a variety of contexts in which genetic information is generated, requested, interpreted or communicated - from the provider perspective, but also from the moral perspectives of clients and their families. It is in situations of disclosure, in these different contexts, that genetic information meets morality. Providers and recipients can become vulnerable to the revelation or concealment of information, and the forms in which it may be provided. Disclosure Dilemmas invites readers to explore these contexts from an ethical viewpoint and will be a valuable resource for anyone with an interest in biomedical ethics.

There exists today a fast growing availability of personal genetic information. Its prognostic impact and value for an individual or family member's health is sometimes unclear, whilst at other times it is clear-cut. The issue of whether to disclose genetic information does however have wide ranging implications. Avoiding the rhetoric of 'genetic exceptionalism', and drawing on an expanded field of bioethical, sociological and anthropological research, this book sets a new agenda for discussing the ethics surrounding the disclosure of prognostic genetic information. A hermeneutical approach reconsiders the ethics of disclosure in a variety of contexts in which genetic information is generated, requested, interpreted or communicated - from the provider perspective, but also from the moral perspectives of clients and their families. It is in situations of disclosure, in these different contexts, that genetic information meets morality. Providers and recipients can become vulnerable to the revelation or concealment of information, and the forms in which it may be provided. Disclosure Dilemmas invites readers to explore these contexts from an ethical viewpoint and will be a valuable resource for anyone with an interest in biomedical ethics.

Soll eine werdende Mutter die Moeglichkeiten der Pranatalen Diagnostik umfassend nutzen? Wie soll eine AErztin mit der Frau die damit einhergehenden Risiken diskutieren? Und wie teilt der Gynakologe einem betroffenen Paar einen negativen Befund mit? Solche Fragen zeigen: Fur die betroffenen Paare ist die Pranatale Diagnostik nicht nur ein willkommenes medizinisches Angebot, um ihrem Schicksal zu begegnen. Sie ist haufig auch eine beachtliche Burde. Der Entscheidungsprozess wird durch den unweigerlichen Zeitdruck und die Ungewissheit, was eine bestimmte Diagnose fur das ungeborene Kind bedeutet, belastet. Somit ist eine einfuhlsame, wissenschaftlich korrekte und umfassende Beratung gefragt. Dieses Buch beleuchtet das Entscheidungsproblem der Pranatalen Diagnostik aus medizinischer, psychologischer, rechtlicher und philosophischer Perspektive. Es bietet Hilfestellung fur betroffene Paare wie auch fur Fachpersonen, welche im Bereich der Pranatalen Diagnostik arbeiten. Besondere Schwerpunkte bilden die Praxis der Beratung und die Analyse der grundlegenden Rahmenbedingungen, um die zuweilen schwierigen Entscheide im Bereich Pranataler Diagnostik zum Wohle aller Beteiligten treffen zu koennen.