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Disclosure Dilemmas - Ethics of Genetic Prognosis after the 'Right to Know/Not to Know' Debate (Paperback)
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Disclosure Dilemmas - Ethics of Genetic Prognosis after the 'Right to Know/Not to Know' Debate (Paperback)
Series: Medical Law and Ethics
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There exists today a fast growing availability of personal genetic
information. Its prognostic impact and value for an individual or
family member's health is sometimes unclear, whilst at other times
it is clear-cut. The issue of whether to disclose genetic
information does however have wide ranging implications. Avoiding
the rhetoric of 'genetic exceptionalism', and drawing on an
expanded field of bioethical, sociological and anthropological
research, this book sets a new agenda for discussing the ethics
surrounding the disclosure of prognostic genetic information. A
hermeneutical approach reconsiders the ethics of disclosure in a
variety of contexts in which genetic information is generated,
requested, interpreted or communicated - from the provider
perspective, but also from the moral perspectives of clients and
their families. It is in situations of disclosure, in these
different contexts, that genetic information meets morality.
Providers and recipients can become vulnerable to the revelation or
concealment of information, and the forms in which it may be
provided. Disclosure Dilemmas invites readers to explore these
contexts from an ethical viewpoint and will be a valuable resource
for anyone with an interest in biomedical ethics.
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