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For the average person, genetic testing has two very different
faces. The rise of genetic testing is often promoted as the
democratization of genetics by enabling individuals to gain
insights into their unique makeup. At the same time, many have
raised concerns that genetic testing and sequencing reveal
intensely personal and private information. As these technologies
become increasingly available as consumer products, the ethical,
legal, and regulatory challenges presented by genomics are ever
looming. Assembling multidisciplinary experts, this volume
evaluates the different models used to deliver consumer genetics
and considers a number of key questions: How should we mediate
privacy and other ethical concerns around genetic databases? Does
aggregating data from genetic testing turn people into products by
commercializing their data? How might this data reduce or
exacerbate existing healthcare disparities? Contributing authors
also provide guidance on protecting consumer privacy and safety
while promoting innovation.
"International Law and The Future of Freedom" is the late John
Barton's exploration into ways to protect our freedoms in the new
global international order. This book forges a unique approach to
the problem of democracy deficit in the international legal system
as a whole--looking at how international law concretely affects
actual governance. The book draws from the author's unparalleled
mastery of international trade, technology, and financial law, as
well as from a wide array of other legal issues, from espionage
law, to international criminal law, to human rights law.
The book defines the new and changing needs to assert our freedoms
and the appropriate international scopes of our freedoms in the
context of the three central issues that our global system must
resolve: the balance between security and freedom, the balance
between economic equity and opportunity, and the balance between
community and religious freedom. Barton explores the institutional
ways in which those rights can be protected, using a globalized
version of the traditional balance of powers division into the
global executive, the global legislature, and the global judiciary.
"Will the future confront us with human GMOs? Greely provocatively
declares yes, and, while clearly explaining the science, spells out
the ethical, political, and practical ramifications."-Paul Berg,
Nobel Laureate and recipient of the National Medal of Science
Within twenty, maybe forty, years most people in developed
countries will stop having sex for the purpose of reproduction.
Instead, prospective parents will be told as much as they wish to
know about the genetic makeup of dozens of embryos, and they will
pick one or two for implantation, gestation, and birth. And it will
be safe, lawful, and free. In this work of prophetic scholarship,
Henry T. Greely explains the revolutionary biological technologies
that make this future a seeming inevitability and sets out the deep
ethical and legal challenges humanity faces as a result. "Readers
looking for a more in-depth analysis of human genome modifications
and reproductive technologies and their legal and ethical
implications should strongly consider picking up Greely's The End
of Sex and the Future of Human Reproduction... [It has] the
potential to empower readers to make informed decisions about the
implementation of advancements in genetics technologies." -Dov
Greenbaum, Science "[Greely] provides an extraordinarily
sophisticated analysis of the practical, political, legal, and
ethical implications of the new world of human reproduction. His
book is a model of highly informed, rigorous, thought-provoking
speculation about an immensely important topic." -Glenn C.
Altschuler, Psychology Today
For the average person, genetic testing has two very different
faces. The rise of genetic testing is often promoted as the
democratization of genetics by enabling individuals to gain
insights into their unique makeup. At the same time, many have
raised concerns that genetic testing and sequencing reveal
intensely personal and private information. As these technologies
become increasingly available as consumer products, the ethical,
legal, and regulatory challenges presented by genomics are ever
looming. Assembling multidisciplinary experts, this volume
evaluates the different models used to deliver consumer genetics
and considers a number of key questions: How should we mediate
privacy and other ethical concerns around genetic databases? Does
aggregating data from genetic testing turn people into products by
commercializing their data? How might this data reduce or
exacerbate existing healthcare disparities? Contributing authors
also provide guidance on protecting consumer privacy and safety
while promoting innovation.
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