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Consumer Genetic Technologies - Ethical and Legal Considerations (Hardcover)
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Consumer Genetic Technologies - Ethical and Legal Considerations (Hardcover)
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For the average person, genetic testing has two very different
faces. The rise of genetic testing is often promoted as the
democratization of genetics by enabling individuals to gain
insights into their unique makeup. At the same time, many have
raised concerns that genetic testing and sequencing reveal
intensely personal and private information. As these technologies
become increasingly available as consumer products, the ethical,
legal, and regulatory challenges presented by genomics are ever
looming. Assembling multidisciplinary experts, this volume
evaluates the different models used to deliver consumer genetics
and considers a number of key questions: How should we mediate
privacy and other ethical concerns around genetic databases? Does
aggregating data from genetic testing turn people into products by
commercializing their data? How might this data reduce or
exacerbate existing healthcare disparities? Contributing authors
also provide guidance on protecting consumer privacy and safety
while promoting innovation.
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