|
Showing 1 - 4 of
4 matches in All Departments
Written for students interested in learning about multiple
sclerosis, this book describes how this frequently disabling
disease affects patients, exploring its effects on minds, bodies,
and daily lives. Written by a professor of medicine who is also
personally affected by the disease, Multiple Sclerosis offers an
overview of every aspect of the condition. It begins by introducing
the central nervous system and describing how multiple sclerosis
affects the brain and spinal cord. The author then reviews early
understanding of MS, how it was first recognized as a disease, and
the discoveries that have helped explain its causes. Moving to
contemporary understanding of multiple sclerosis, the book explores
the epidemiology of MS in the United States and around the world,
describes MS symptoms, and reviews today's treatments and research
directions. Perhaps most important, it presents the experiences of
persons living with multiple sclerosis, concluding with a
discussion of factors affecting these individuals in their homes,
families, and communities. A timeline of key discoveries and events
relating to MS over the last 500 years Medical drawings and
schematics showing causes and possible effects of MS A schematic
map of the world showing the gradient of MS prevalence rates
Nearly twenty percent of Americans live today with some sort of
disability, and this number will grow in coming decades as the
population ages. Despite this, the U.S. health care system is not
set up to provide care comfortably, safely, and efficiently to
persons with disabilities. Individuals with disabilities can
therefore face significant barriers to obtaining high quality
health care. Some barriers result from obvious impediments, such as
doors without automatic openers and examining tables that are too
high. Other barriers arise from faulty communication between
patients and health care professionals, including misconceptions
among clinicians about the daily lives, preferences, values, and
abilities of persons with disabilities. Yet additional barriers
relate to health insurance limits on items and services essential
to maximizing health and independence. This book examines the
health care experiences of persons who are blind, deaf, hard of
hearing, or who have difficulties using their legs, arms, or hands.
The book then outlines strategies for overcoming or circumventing
barriers to care, starting by just asking persons with disabilities
about workable solutions. Creating safe and accessible health care
for persons with disabilities will likely benefit everyone at some
point. This book has three parts. The first part looks at the
historical roots of healthcare access for persons with disabilities
in the United States. The second part discusses the current
situation and the special challenges for those with disabilities.
The third part looks forward to discuss the ways in which
healthcare quality and access can improve.
Most Americans-even those with significant disability-want to live
in their homes and communities. Unpaid family members or friends
often work as "informal" caregivers, helping those who need
assistance- and many feel they have no option but to serve. In
contrast, paid personal assistance services workers (PAS) provide a
lifeline to those consumers with complex needs and limited social
networks. However, there is a crisis looming in the increasing
needs for paid PAS and the limited available PAS workforce. Making
Their Days Happen explores disability, health, and civil rights,
along with relevant federal and state labor policies related to
personal assistance services. Lisa Iezzoni addresses the legal
context of paid PAS as well as financing mechanisms for obtaining
home-based personal assistance. She also draws upon interviews she
conducted with paid PAS consumers and PAS workers to explore PAS
experiences and their perspectives about their work. Offering
recommendations for improving future experiences of PAS consumers
and providers, Iezzoni emphasizes that people with disabilities
want to be a part of society, and PAS workers who do this low-wage
work find satisfaction in helping them achieve their goals.
Most Americans-even those with significant disability-want to live
in their homes and communities. Unpaid family members or friends
often work as "informal" caregivers, helping those who need
assistance- and many feel they have no option but to serve. In
contrast, paid personal assistance services workers (PAS) provide a
lifeline to those consumers with complex needs and limited social
networks. However, there is a crisis looming in the increasing
needs for paid PAS and the limited available PAS workforce. Making
Their Days Happen explores disability, health, and civil rights,
along with relevant federal and state labor policies related to
personal assistance services. Lisa Iezzoni addresses the legal
context of paid PAS as well as financing mechanisms for obtaining
home-based personal assistance. She also draws upon interviews she
conducted with paid PAS consumers and PAS workers to explore PAS
experiences and their perspectives about their work. Offering
recommendations for improving future experiences of PAS consumers
and providers, Iezzoni emphasizes that people with disabilities
want to be a part of society, and PAS workers who do this low-wage
work find satisfaction in helping them achieve their goals.
|
You may like...
Loot
Nadine Gordimer
Paperback
(2)
R205
R168
Discovery Miles 1 680
|