Patient organizations and social health movements offer one of the most important and illuminating examples of civil society engagement and participation in scientific research and research politics. Influencing the research agenda, and initiating, funding and accelerating the development of diagnostic tools, effective therapies and appropriate health-care for their area of interest, they may champion alternative, sometimes controversial, programs or critique dominant medical paradigms. Some movements and organizations advocate for medical recognition of contested illnesses, as with fibromyalgia orADHD, while some attempt to "de-medicalize" others, such as obesity or autism. Bringing together an international selection of leading scholars and representatives from patients' organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. It takes stock of the key findings of the research conducted in the field over the past two decades and addresses emerging problems and future challenges concerning the interrelations between health movements and patient organisations on the one hand, and biomedical research and research policies on the other hand. Combining empirical case studies with conceptual discussion, the book discusses how public participation can contribute to, as well as restrict, the democratization of scientific knowledge production. This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge, medical ethics or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.

Patient organizations and social health movements offer one of the most important and illuminating examples of civil society engagement and participation in scientific research and research politics. Influencing the research agenda, and initiating, funding and accelerating the development of diagnostic tools, effective therapies and appropriate health-care for their area of interest, they may champion alternative, sometimes controversial, programs or critique dominant medical paradigms. Some movements and organizations advocate for medical recognition of contested illnesses, as with fibromyalgia orADHD, while some attempt to "de-medicalize" others, such as obesity or autism. Bringing together an international selection of leading scholars and representatives from patients' organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. It takes stock of the key findings of the research conducted in the field over the past two decades and addresses emerging problems and future challenges concerning the interrelations between health movements and patient organisations on the one hand, and biomedical research and research policies on the other hand. Combining empirical case studies with conceptual discussion, the book discusses how public participation can contribute to, as well as restrict, the democratization of scientific knowledge production. This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge, medical ethics or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.

Dass Gedachtnis, Erinnern und Vergessen eine koerperliche Seite haben oder sogar koerperliche Vorgange sind, ist eine Einsicht, die auch von der Soziologie geteilt wird. Gesellschaftliche und gesellschaftlich gepragte individuelle Erlebnisse hinterlassen ihre Spuren im Koerper, Spuren, die an Vergangenes erinnern und Verhalten wie Handeln in Gegenwart und im Hinblick auf die Zukunft zu orientieren vermoegen. Die in diesem Band enthaltenen Beitrage nehmen sich der Frage nach dem Koerpergedachtnis jenseits der Vorstellung eines Koerper-Geist-Dualismus an. Dabei werden sowohl sozialtheoretische Fragen des Zusammenhangs von Koerper und Gedachtnis als auch unterschiedliche Facetten des Koerpergedachtnisses in konkreten praktischen Zusammenhangen behandelt.

Das Buch mochte mit den beiden Konzepten "Soziologie des wissenschaftlichen Nichtwissens" und "Science Assessment" einen Beitrag zur Analyse der gegenwartigen Situation der Wissensgesellschaft leisten und damit neue Perspektiven fur die Wissenschaftsforschung sowie Impulse zur politischen Gestaltung des Verhaltnisses von Wissenschaft und Gesellschaft geben."