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Books > Medicine > General issues > Medical ethics
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The Public Shaping of Medical Research - Patient Associations, Health Movements and Biomedicine (Paperback)
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The Public Shaping of Medical Research - Patient Associations, Health Movements and Biomedicine (Paperback)
Series: Routledge Studies in the Sociology of Health and Illness
Expected to ship within 12 - 19 working days
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Patient organizations and social health movements offer one of the
most important and illuminating examples of civil society
engagement and participation in scientific research and research
politics. Influencing the research agenda, and initiating, funding
and accelerating the development of diagnostic tools, effective
therapies and appropriate health-care for their area of interest,
they may champion alternative, sometimes controversial, programs or
critique dominant medical paradigms. Some movements and
organizations advocate for medical recognition of contested
illnesses, as with fibromyalgia orADHD, while some attempt to
"de-medicalize" others, such as obesity or autism. Bringing
together an international selection of leading scholars and
representatives from patients' organizations, this comprehensive
collection explores the interaction between civil society groups
and biomedical science, technology development, and research
politics. It takes stock of the key findings of the research
conducted in the field over the past two decades and addresses
emerging problems and future challenges concerning the
interrelations between health movements and patient organisations
on the one hand, and biomedical research and research policies on
the other hand. Combining empirical case studies with conceptual
discussion, the book discusses how public participation can
contribute to, as well as restrict, the democratization of
scientific knowledge production. This volume is an important
reference for academics and researchers with an interest in the
sociology of health and illness, science and technology studies,
the sociology of knowledge, medical ethics or healthcare management
and research, as well as medical researchers and those involved
with health-related civil society organizations.
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