The main question explored by the book is: How can cross-border access to human genetic resources, such as blood or DNA samples, be governed in such a way as to achieve equity for vulnerable populations in developing countries? The book situates the field of genomic and genetic research within global health and research frameworks, describing the concerns that have been raised about the potential unfairness in exchanges during recent decades. Access to and sharing in the benefits of human biological resources are aspects not regulated by any international legal framework such as the Convention on Biological Diversity, which applies only to the exchange of plants, animals and microorganisms, as well as to associated traditional knowledge. Examples of genetic research perceived as exploitative are provided in order to illustrate the legal vacuum concerning the global governance of human genetic resources. The main conclusions drawn from the legal and ethical analysis are: * Benefit sharing is crucial in order to avoid the exploitation of developing countries in human genetic research. * With functioning research ethics committees, undue inducement is less of a concern in genetic research than in other areas of medical research (e.g. clinical trials). * Concerns remain over research involving indigenous populations; accordingly, recommendations are provided. In drawing these conclusions, the book addresses in detail a highly pressing topic in global bioethics and international law. In this regard, it combines bioethical arguments with jurisprudence, in particular with reference to the law of equity and the legal concepts of duress (coercion), unconscionable dealing, and undue inducement.

Contemporary Catholic Health Care Ethics, Second Edition, integrates theology, methodology, and practical application into a detailed and practical examination of the bioethical issues that confront students, scholars, and practitioners. Noted bioethicists Gerard Magill, Henk ten Have, and David F. Kelly contribute diverse backgrounds and experience that inform the richness of new material covered in this second edition. The book is organized into three sections: theology (basic issues underlying Catholic thought), methodology (how Catholic theology approaches moral issues, including birth control), and applications to current issues. New chapters discuss controversial end-of-life issues such as forgoing treatment, killing versus allowing patients to die, ways to handle decisions for incompetent patients, advance directives, and physician-assisted suicide. Unlike anthologies, the coherent text offers a consistent method in order to provide students, scholars, and practitioners with an understanding of ethical dilemmas as well as concrete examples to assist in the difficult decisions they must make on an everyday basis.

In ALLOCATING HEALTH CARE RESOURCES, leading authorities and researchers expose the basic philosophical, ethical, and economic issues underlying the current health care debate. The contributors wrestle with such complicated issues as whether it is ethical to ration health care, the morality of the worldwide bias against children in allocating health care resources, whether sin taxes can be defended morally, and how to achieve a just health care system. The book also includes an insightful analysis of the Clinton health care reform plan.
ALLOCATING HEALTH CARE RESOURCES will be of interest to philosophers, health policy experts, medical ethicists, health professionals, and concerned citizens. It serves to clarify and illuminate the logic and rhetoric of health care reform, and so to help us all achieve a fair and equitable distribution of these precious resources.

Anyone who has been diagnosed with breast cancer or knows someone who has been diagnosed with breast cancer recognizes that cancer raises a host of questions concerning its nature and how we treat it. Such questions frame the difficult decisions that patients must make about their treatment and care. Thinking Through Breast Cancer is a philosophical investigation of how breast cancer is described, explained, evaluated, and socialized in medicine. Written by a breast cancer survivor, the book interweaves personal experience with a systematic breakdown of key and highly pertinent philosophical concepts, and brings to light insights that emerge in metaphysics, epistemology, ethics, social and political philosophy, and bioethics. Further, it is an investigation of the ethical implications of understanding breast cancer. Cutter seamlessly combines clinical information with philosophical analysis and makes recommendations as to how we can navigate the complex and, at times, uncertain terrain of breast cancer knowledge and care. In this way, the book is not simply a survey of what we know about breast cancer, but a personal search for guidance about navigating the complex, confusing, and frightening terrain of breast cancer diagnosis, treatment, and survival.

In Suffering Narratives of Older Adults, Mary Beth Quaranta Morrissey turns to the traditions of phenomenology, humanistic psychology and social work to provide an in-depth exploration of the deep structure of the suffering experience. She draws upon the notion of maternal holding to develop an original construct of maternal affordances - the ground of possibility for human development, agency and relational practices. The conceptual analysis is based on the life narratives of several elders receiving chronic care in facility environments. Creating new fields of communication for patients, their family members and health professionals in processes of reflection and shared decision making, this book builds on knowledge about suffering to help guide ethical action in preventing and relieving chronic pain and improving systems of care. It offers a phenomenological approach to understanding the maternal as a primary domain of moral experience in serious illness and suffering, and implications for policy, practice and research. A series of applied chapters, looking at individual experiences of suffering and care experiences, present critical areas of ethical inquiry, including: pain and suffering maternal relational ethics evaluation and moral deliberation about care options decision-making and moral agency end-of-life experiences of care. Exploring how an ecological relational perspective grounded in phenomenology may provide fruitful alternatives to traditional frameworks in bioethics, this is an important contribution to the ongoing development of an ecological ethic of care. It will be of interest to scholars and students of bioethics and phenomenological methods in the health and human services, as well as practitioners in the field.

Increasingly globalization has meant that decisions made regarding medical care and health in one country may influence health and disease outcomes in other parts of the world. Recognizing that medical law should not be confined to national silos this handbook approaches medical law and ethics from a global perspective. Whilst respecting and analyzing national developments the chapters take a concerted international approach, looking comparatively at developments within each area. The book brings together leading scholars from both medical law and ethics backgrounds who have contributed specially commissioned pieces in order to present a critical overview and analysis of the current state of the field. The Handbook offers comprehensive coverage of longstanding and traditional topics in medical law and ethics, as well as providing dynamic insights into contemporary and emerging issues in this heavily debated field.Topics covered include: Human-animal medicine and medical research Public Health Access to resources and medicines Traditional, complementary and alternative medicines Regenerative Medicine This advanced level reference work will prove invaluable to scholars, students and researchers in the disciplines of law, medicine, dentistry, nursing, ethics and theology .

Medical or hio- ethics has in recent years been a growth industry. Journals, Centers and Associations devoted to the subject proliferate. Medical schools seem increasingly to be filling rare positions in the humanities and social sciences with ethicists. Hardly a day passes without some media scrutiny of one or another ethical dilemma resulting from our new-found ability to transform the natural conditions of life. Although bioethics is a self-consciously interdisciplinary field, it has not attracted the collaboration of many social scientists. In fact, social scientists who specialize in the study of medicine have in many cases watched its development with a certain ambivalence. No one disputes the significance and often the painfulness of the issues and choices being addressed. But there is something about the way these issues are usually handled which seems somehow inappropri ate if not wrong-headed to one trained in a discipline like sociology or history. In their analyses of complex situations, ethicists often appear grandly oblivious to the social and cultural context in which these occur, and indeed to empirical referents of any sort. Nor do they seem very conscious of the cultural specificity of many of the values and procedures they utilize when making ethical judg ments. The unease felt by many in the social sciences was given articulate expression in a paper by Renee Fox and Judith Swazey which appeared in 1984."

Most people think the risks of reproductive cloning are so high as to make trying to clone a person immoral. Even if the medical risks could be reduced greatly, many believe a clone would still risk great psychological harm, and that the practice of reproductive cloning would also be detrimental to society. Others dismiss these concerns as speculative, and point to the possible good they believe it could do. But we need not wait for the first clone to be born to systematically consider the possible psychological and social ramifications of cloning. Marshalling psychological and sociological theory and research, and drawing upon extensive clinical experiences as a psychiatrist and psychotherapist, Levick explores the various dimensions of cloning. Clone Being attempts to anticipate possible consequences for a clone, his or her 'parents' and family, and society. Psychotherapy case material enlivens and illustrates the book and the reader is helped to identify 'clone-like' aspects of his or her own experience and mental life, and of contemporary life. Through this process, the book comes to important conclusions about human nature, including the crucial roles of intimacy, sex, and sexuality for society. The clinical and scientifically grounded insights of this book should help inform the reader's ethical judgments and attitudes about cloning people.

In The Moral Discourse of Health in Modern Cairo: Persons, Bodies, and Organs, Mohammed Tabishat posits that health care practices in Egypt constitute an index to read the way political, economic, and social conditions are experienced by those who use, embody, or live them and cope with their outcomes. These practices carry the code of the socio-cultural matrix in which they are embedded; they speak of the rationalities of different help-seeking efforts. In doing so, they represent the moral principles underlying the social efforts to alleviate pain and maintain life as a whole. Health-related practices in this sense constitute a critical platform to know, feel and live in both the physical and moral sense.

It is difficult to think of an example of an advancement in the biological sciences that has had an impact on society similar to that of the new genetics. Recent developments in biotechnology have occasioned much discussion among academics, professionals, and lay people alike. In particular, many questions and concerns have arisen over the acquisi tion, access, and control of genetic information. There are several reasons why the new genetics has commanded such widespread attention, and why it is now the subject of con siderable debate. Special reference is given in this volume to the implications of genetic information for five different subject areas: eugenics, the insurance industry, the commer cialisation of genetic testing, strategies for raising public awareness, and the value of theo retical ethical and sociological frameworks in the debate. This diverse collection of papers attempts to address and critically discuss issues surrounding the control of, and access to, genetic information from ethical, medical, legal, and theoretical points of view. The first and shortest section of the book attempts to address concerns over the eugenic potential of new biotechnologies. It also provides a historical context for the de bate, for controversy over the subject of eugenics predates the current debate over genetic information by a considerable length of time. Indeed, by the time the first patent was is sued for Chakrabarty's strain of oil eating bacteria in the early 1970s, the term eugenics had already acquired strong pejorative connotations."

With the advances of medicine, questions of medical ethics have become more urgent and are now considered of great social and political significance. An innovatively designed, activity-based workbook, this text was prepared using papers and case studies collected from several countries in the European Union. It reflects the issues and concerns that confront clinical practitioners throughout Europe and elsewhere today and presents varying national responses in law and policy to these concerns, as identified by ethicists, lawyers, theologians and practitioners. The problems they examine include the relationship between medical research and medical practice, elementary regulations of medical research, the complexity of informed consent, and the role of the sponsor or scientific community.

In 1976, five years after his death, serious charges were leveled against the distinguished British scientist Sir Cyril Burt. His research on the nature of intelligence was challenged as fraudulent by a number of respected commentators, among them Leon Kamin, Oliver Gillie, Ann and Alan Clarke, and Leslie Hearnshaw. The evidence they marshaled, and the charges themselves are examined here in scrupulous detail. Written as a straightforward defense of Burt, this volume also tells a second story: the intrusion of the mass media into science, the power of the new media, and the success of this invasion, which threatens to replace intellectual authority.

Convinced that a great injustice had been done, Fletcher examines each of the charges in detail, subjecting each of Burt's detractors to a symbolic cross-examination. He exposes carelessness and errors of interpretation, and reveals areas of evidence the critics failed to take into account. Each interrogation ends with a list of questions that call for clear public answer. Fletcher's closing argument calls for the restoration of Burt's reputation, so that justice is done.

The broader significance of this case study goes far beyond the Burt controversy itself, and has implications for the conduct of science in an increasingly contentious social environment. Fletcher describes how ideology, in alliance with a receptive popular journalism and the media, is able to establish itself as a powerful third force in scientific discourse. The Burt Affair demonstrates what happens when the media establish a viewpoint that permeates not only the scientific community, but also entrenches that perspective so thoroughly in public understanding that its assumptions are not even questioned.

The new reproductive technologies (NRTs) have given rise to new ethical questions that are widely debated. This book, the outcome of a European Union-wide collaborative process, draws on the experience and expertise of ethicists, lawyers, and clinical practitioners and focuses on some of the "burning issues" in different European countries. These include: donor insemination; surrogacy; preimplantation genetic diagnosis; embryo research; access to IVF treatment; and parental, professional and social responsibility. Familiar notions such as quality of life, parenthood, mothering, responsibility and personal identity surface at many points throughout the book and are refashioned to accommodate new questions. This book introduces and probes ethical questions and challenges in a hands-on way by working through relevant case studies with key commentaries and activities. It engages the reader directly in ethical reasoning and decision-making and provides clear explanations, insightful commentaries and informed debate on NRTs.

Genetic information plays an increasingly important role in ourlives. As a result of the Human Genome Project, knowledge ofthe genetic basis of various diseases is growing, withimportant consequences for the role of genetics in clinicalpractice, health care systems and for society at large. In theclinical setting genetic testing may result in a better insightinto susceptibility for inheritable diseases, not only before orafter birth, but also at later stages in life. Besides prenataltesting and pre-conceptional testing, predictive testing hasresulted in new possibilities for the early detection, treatmentand prevention of inheritable diseases. However, not all inheritable diseases that can be predicted onthe basis of genetic information can be treated or cured.Should we offer genetic tests to people for untreatablediseases? Should we test every individual who wants to knowhis or her genetic status? Should we inform family membersabout the results of genetic tests of individuals, even whenthere are no possibilities for treatment? What, in such cases,is the role of the "right-not-to-know"? Should we informfamily members when there is only an increased risk of adisease? This book deals with the ethical issues of clinicalgenetics, as well as ethical issues that arise in geneticscreening, the research of populations, and the use of geneticinformation for access to insurance and the workplace.

This textbook provides a brief history of human experimentation and reviews various theories of ethics from which the principles and rules that govern this research are derived. All relevant international documents and national regulations, policies and memoranda are referred to extensively to assist in addressing issues that regularly arise during the course of research involving human subjects. It includes case examples and exercises and is of interest to students and experienced researchers.

This book delves into risks that can easily bedevil any psychotherapist and what can happen if they are ignored. Dramatic storytelling, based on actual incidents from the author's experiences as a member of ethics committees and as an ethics teacher and consultant, explores actions prompting clients to issue formal complaints. Set in the context of an ethics committee meeting over the course of a weekend, twelve psychologists face their peers who will stand in judgment. Issues include the fallout from losing one's temper with a difficult client, a personal disclosure gone terribly wrong, a bartering arrangement that literally falls apart, a private life revealed in a most public way, a vengeful act that sullies the reputation of an entire department, breaking confidentiality when a client threatened harm, and the slippery slope to sexual exploitation. The stories are absorbing, enlightening, sometimes shocking, and often stranger than fiction. Narrative nonfiction puts human faces and emotions on what would otherwise be cursory statistics. What led to the formal complaint from both the vantage point of the complainant and the psychologist offers insights not otherwise available unless the dynamics of their private lives leading up to the conflict are revealed. An author's commentary and discussion questions follow every story. Both new and seasoned practitioners, as well as those still in training, will find this to be an invaluable resource.

This book examines the question of what parental obligations procreators incur by bringing children into being. Prusak argues that parents, as procreators, have obligations regarding future children that constrain the liberty of would-be parents to do as they wish. Moreover, these obligations go beyond simply respecting a child's rights. He addresses in turn the ethics of adoption, child support, gamete donation, surrogacy, prenatal genetic enhancement, and public responsibility for children.

Medical futility is a controversial issue not only in its definition but also in its application. There are few books on the subject, and those in existence mostly focus on the situation in the United States. This title, however, provides extensive international perspectives on medical futility.This book will benefit healthcare professionals as well as health policy makers around the world. It allows them to see how different countries approach the issue of medical futility and their experiences in dealing with this issue. The complexity of the issue, and in particular how some countries innovatively address it in an ethically sound manner, is clearly presented.

Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concepts such as notions of what constitute the personal, the context of privacy, the significance and impact of the relational interests of others who may share the same genetic inheritance, and mechanisms for the protection of privacy (as well as of their limitations), among others. More specifically, the discussions in this volume encourages us to think broadly about privacy, as encompassing values that are entailed in the sociality of context and of relations, and also as freedom from illegitimate and excessive surveillance. A long-standing question that continues to challenge us is whether genetic information should be regarded as exceptional, as it is often perceived. A conclusion that could be derived from this volume is that while genetic information may be significant, it is not exceptionally so. The work presented in this volume underlines the continuing and growing relevance of notions of privacy to genomic science, and the need to take ownership of a genetic privacy for the future through broad, rigorous and open discussion.Contributors: Alastair V Campbell, Benjamin Capps, Jacqueline JL Chin, Oi Lian Kon, Kenji Matsui, Thomas H Murray, Nazirudin Mohd Nasir, Dianne Nicol, Anh Tuan Nuyen, Onora O'Neill, Margaret Otlowski, Yvette van der Eijk, Chunshui Wang, Ross S White.

This is the first book that analyzes and systematizes all the general ideas of medicine, in particular the philosophical ones, which are usually tacit. Instead of focusing on one or two points - typically disease and clinical trial - this book examines all the salient aspects of biomedical research and practice: the nature of disease; the logic of diagnosis; the discovery and design of drugs; the design of lab and clinical trials; the crafting of therapies and design of protocols; the moral duties and rights of physicians and patients; the distinctive features of scientific medicine and of medical quackery; the unique combination of basic and translational research; the place of physicians and nurses in society; the task of medical sociology; and the need for universal medical coverage. Health care workers, medicine buffs, and philosophers will find this thought-provoking book highly useful in their line of work and research.

Deckhead: An important examination of the theological, spiritual and ethical issues surrounding death.

What do faithful living and faithful dying mean as we near life's end? With all the technology and choices available to us today, making decisions about the end of life grows ever more difficult. As a result of all the theological and ethical issues that have arisen around the dying process in recent years, the 72nd General Convention of the Episcopal Church created a task force to study and report on these concerns. This is the report of the End-of-Life Task Force. In it, the Task Force responds to the broad range of theological, ethical, pastoral and policy issues that are generated by the need to provide loving and fitting care at the end of life.

Intended as a teaching document, Faithful Living, Faithful Dying will be useful as a discussion tool for the church, for individuals facing difficult decisions, for professionals, such as clergy and health care providers, and for those who make public policy.

Many counselors learn about ethics in graduate school by applying formal, step-by-step ethical decision-making models that require counselors to be aware of their values and refrain from imposing personal values that might harm clients. However, in the real world, counselors often make split-second ethical decisions based upon personal values. Values and Ethics in Counseling illustrates the ways in which ethical decisions are values-but more than that, it guides counselors through the process of examining their own values and analyzing how these values impact ethical decision making. Each chapter presents ethical decision making as what it is: a very personal, values-laden process, one that is most effectively illustrated through the real-life stories of counselors at various stages of professional development-from interns to seasoned clinicians-who made value-based decisions. Each story is followed by commentary from the author as well as analysis from the editors to contextualize the material and encourage reflection.

This volume in "The SAGE Reference Series on Disability "explores ethical, legal, and policy issues of people with disabilities, and is one of eight volumes in the cross-disciplinary and issues-based series, which examines topics central to the lives of individuals with disabilities and their families. With a balance of history, theory, research, and application, specialists set out the findings and implications of research and practice for others whose current or future work involves the care and/or study of those with disabilities, as well as for the disabled themselves. The presentational style (concise and engaging) emphasizes accessibility. Taken individually, each volume sets out the fundamentals of the topic it addresses, accompanied by compiled data and statistics, recommended further readings, a guide to organizations and associations, and other annotated resources, thus providing the ideal introductory platform and gateway for further study. Taken together, the series represents both a survey of major disability issues and a guide to new directions and trends and contemporary resources in the field as a whole.

New Harvest includes contributions from specialists in medical, philosophical, psychological, religious, and legal fields. These essays are not simply a collection, but were developed from a single conception of the four ethical concerns of trans plan tation described in the first chapter. The indi vid ual chapters are all parts of a structure unified by the search for ethical foundations basic to the four concerns. Transplantation is surrounded by a great deal of under standable emotional sensitivi ty. The authors trust that words like "procurement," "harvest," and possibly other expressions found in this book will not offend. We use the current lan but do so with objectivity and respect for those who guage, are personally involved in transplantation. We have made room for, and indeed have invited, different and sometimes conflicting points of view on the complicated ethical ques tions raised by transplant operations. We can not assume that there is one right answer to these questions, at least at our present level of scientific knowledge and ethical wisdom. We do not presume to have identified and analyzed all the ethical questions raised with equal thoroughness. There are four ways in which the scope of the book is limited. Identifying these limitations also helps designate what it is in its own right. First, some questions have been given more attention than others."

Clearly argued and written in nontechnical language, this book provides a definitive account of informed consent. It begins by presenting the analytic framework for reasoning about informed consent found in moral philosophy and law. The authors then review and interpret the history of informed consent in clinical medicine, research, and the courts. They argue that respect for autonomy has had a central role in the justification and function of informed consent requirements. Then they present a theory of the nature of informed consent that is based on an appreciation of its historical roots. An important contribution to a topic of current legal and ethical debate, this study is accessible to everyone with a serious interest in biomedical ethics, including physicians, philosophers, policy makers, religious ethicists, lawyers, and psychologists. This timely analysis makes a significant contribution to the debate about the rights of patients and subjects.