For sixty years genetic counselors have served as the messengers
of important information about the risks, realities, and
perceptions of genetic conditions. More than 2,500 certified
genetic counselors in the United States work in clinics, community
and teaching hospitals, public health departments, private biotech
companies, and universities. "Telling Genes" considers the purpose
of genetic counseling for twenty-first century families and society
and places the field into its historical context.
Genetic counselors educate physicians, scientific researchers,
and prospective parents about the role of genetics in inherited
disease. They are responsible for reliably translating test results
and technical data for a diverse clientele, using scientific acumen
and human empathy to help people make informed decisions about
genomic medicine.
Alexandra Minna Stern traces the development of genetic
counseling from the eugenics movement of the early twentieth
century to the current era of human genomics. Drawing from archival
records, patient files, and oral histories, Stern presents the
fascinating story of the growth of genetic counseling practices,
principles, and professionals.
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