"The Gift of Experience" captures the lives and perspectives of
twenty-one men, born with hemophilia, and their caregivers, in ways
that other resources have failed to do. In vital and personal
stories, these individuals speak about the experience of coping
with hemophilia. Their accounts capture the impact of the dramatic
advances in the treatment of the disease as well as the challenges
of chronic pain, joint damage and HIV and hepatitis C infection
resulting from the tainted blood supply between the late 1960s and
the mid-1980s." Laura Gray and Christine Chamberlain have done a
tremendous job weaving these oral histories into a narrative that
allows their subjects to speak for themselves. "The Gift of
Experience" is a 'must read' for anyone interested in the illness
and disability experiences of people with chronic diseases as well
as those with bleeding disorders. "The Gift of Experience" is
moving and inspiring, a hopeful account of the human experience.
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