Genetic counseling is fairly new. The fact that the field is an
accepted professional enterprise in universities, clinics, and
hospitals throughout the United States is remarkable. The
contributors argue that genetics and medicine rest on beliefs
widely held in American society. Scientific progress is good, and
highly sophisticated technologies are appropriate means to solving
medical problems. The better understanding they gain about the
nature and evolution of disease, the more prepared clinicians will
be to treat and prevent future occurrence of disease. A belief that
medicine, including genetic medicine, is clear, factually based,
and objective undergirds the strategies and norms of genetic
counseling. This collection of original papers explores the
history, values, and norms of that process, with focus on the value
of non-directiveness in counseling practice. The contributors'
examination of genetic counseling issues serves as a foundation
from which to address the ethical, legal, and policy considerations
of clinical genetics.
Dianne M. Bartels is associate director of the Center for
Bioethics and assistant professor of medicine and bioethics at the
University of Minnesota. She is the author or co-author of numerous
books, including Beyond Baby M, Facilitating the Genetic Counseling
Process, and Genetic Counseling Practice.
Bonnie S. LeRoy is director of the graduate program in genetic
counseling and professor of genetics, cell biology, and development
at the University of Minnesota. Her major area of research interest
involves ethical and social challenges associated with genetic
counseling.
Arthur L. Caplan is Emanuel and Robert Hart Professor of
Bioethics at the University of Pennsylvania. His work has appeared
in numerous publications, including Th e American Journal of
Bioethics, Addiction, and Lancet.
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