Alexandra Deford, a precious and precocious girl, was just eight
years old when she died in 1980 following a battle against the
debilitating effects of cystic fibrosis, the number-one genetic
killer of children. Her poignant and uplifting story touched the
hearts of millions when it was first published and then made into a
memorable television movie. A new introduction contains information
on the latest cystic fibrosis research, and a touching postcript
reveals how the Deford family came to terms with the loss of
Alex.
Whenever he speaks, sportswriter Frank Deford knows people will
bring articles for him to sign. But what makes him happiest is when
someone attends a sports-oriented lecture and brings a copy of
"Alex: The Life of a Child "for him to sign. "Invariably, and
happily, there's usually someone at each appearance who either
brings that book or wants to talk about their connection to cystic
fibrosis." Deford says. "It's tremendously gratifying to me. Rarely
does a week go by that I don't get a letter about that book. People
leave things at her grave. They really do. I have people tell me
that she changed their lives. It's terribly dramatic, but they
literally say that. I heard from a woman who became a pediatric
nurse after reading the book. Hearing from people like that means
more to me than anything."
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