Taking a different approach to biobanks - genetic databases that
combine genetic information derived from blood samples with
personal data about environment, medical history, lifestyle or
genealogy, this book draws attention to their political and
governance implications. It argues that for biobanks to be created,
shaped, maintained, and to operate properly, a number of
interrelated conditions need to exist, from legal environment to
funding mechanisms and social acceptance.
The book takes a comparative focus, with chapters on biobanks in
Iceland, Estonia, Scandinavia, France, US, Japan, UK, Germany,
Australia and Israel, and is divided into three parts which:
- introduce the conceptual framework that underpins the
volume
- focus on biobanks as a challenge for governance
- emphasize biobanks as a tool and site for governance.
This groundbreaking book makes clear that biobanks are a
phenomenon that cannot be disconnected from considerations of
power, politics, and the reshaping of current practices in
governance. It will be a valuable read for scholars and students of
genetics, bioethics, risk, public health and the sociology of
health and illness.
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