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The Stored Tissue Issue - Biomedical research, ethics and law in the era of genomic medicine (Hardcover, New)
Loot Price: R1,945
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The Stored Tissue Issue - Biomedical research, ethics and law in the era of genomic medicine (Hardcover, New)
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Genetics research with stored human tissues provides many benefits
and holds much promise. Yet how this critical research is conducted
sometimes raises serious ethical, legal, and social concerns, and
it is difficult to balance the promise of biomedical research with
our time-honored commitments to individual choice in such
fundamental matters as control over personal health information and
the disposition of our bodily tissues.
Weir and Olick provide a thorough analysis of this critical phase
in the era of genomic medicine. While strongly supportive of the
biomedical research enterprise, they develop a critique of many
common research practices with banked tissues, DNA, and genetic
data. Noting numerous examples of beneficial human tissue research,
they focus on problematic research practices, controversial cases,
and federal and institutional policies that limit the informed
choices of patients and research participants. The authors offer a
series of recommendations intended to limit the risks of inadequate
informed consent to research for individuals, families, and groups,
and to strengthen the bonds of trust between the research
enterprise and the public upon which biomedical progress
depends.
This book offers a wealth of information plus well-reasoned
recommendations that will be of keen interest to geneticists, other
biomedical scientists, research institutions, policymakers,
students and others. It will serve as a clarion call to move beyond
traditional policies and practices toward a richer understanding of
partnership between patients and research participants and the
biomedical research enterprise - a partnership for the benefit of
all.
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