Compassionately written by an experienced team of professionals,
this book offers parents and families essential information about
the causes, diagnosis, and treatment of disorders of sex
development, or DSD.
DSD refers to medical conditions, usually discovered at birth,
in which there is disagreement between a person's genetic sex
(i.e., chromosomes) and the appearance of the person's external or
internal reproductive structures. After their child is diagnosed
with DSD, parents need answers to a host of questions,
including
- What is DSD, why does it occur, how is it identified, and how
is it treated?- Did we do something to cause our child's DSD?- Is
my baby a boy or a girl?- Will my child grow up to be normal and
healthy?- Does my child need surgery?
This concise book answers parents' questions in a reassuring and
forthright way, giving affected individuals, their families, and
their health care providers a current and evidence-based picture of
DSD. It offers clear explanations of how newborns with DSD are
evaluated, diagnosed, and treated; describes the different kinds of
DSD; and pays close attention to both psychosocial and medical
aspects of DSD. This guide also includes information about the
importance of support groups and education for affected individuals
and their families.
In their daily work, the authors treat, support, and educate
people with DSD and their families. This resource gives parents and
families access to the authors' expertise so they can reach a
meaningful understanding of their child's DSD and make informed
decisions about their child's health.
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