Are you involved in caring for people at the end of their life? Do
you have a role in supporting the families of those who are dying,
or is this an area of your work you find personally difficult?This
book is an accessible guide for all those working in health or
social care and caring for people at the end of their lives. This
will include people in roles such as healthcare assistant, hospice
worker, volunteer, nurse or other carers.Written by experts with
extensive experience in delivering high quality end of life care,
this book is full of real life examples, reflection exercises and
case studies. It also includes insights into what can help make a
good death, and how to help support families at the end of life.The
easy to read chapters emphasise treating people who are dying with
dignity using a person centred approach.The book supports the
delivery of quality care by recognising physical and non-physical
symptoms, and thinking about various emotional and physical needs
people might have. It is also important that care givers look after
themselves and advice is given on how best to do this.An essential
purchase for anyone looking for guidance or support in this area,
and suitable for those working in the community, care homes,
hospices, hospitals or other settings where people are cared for.
With a Foreword from Dr. Ros Taylor, MBE, National Director for
Hospice Care, Hospice UK."The book strikes a balance between the
factual and the personal, and gives the reader detailed information
and time to think through reflection exercises. It highlights
essential elements of end of life care, including communication,
symptom management and personal care during bereavement. It
emphasises the importance of adopting a person-centred approach of
people who are dying. The book supports the delivery of quality
care by recognizing the physical and non-physical symptoms, and
thinking about people's emotional and physical needs. It also makes
clear that caregivers should look after themselves and how they
should do so." Deborah Preshaw, doctoral nursing student, Queens
University Belfast, UK "This is a beautifully presented learning
tool to support the delivery of end of life care. I particularly
like the 'signposts' which reinforce the intention of the book to
enable 'carers' to apply what they read to their role in practice."
Liz Bryan, Director of Education and Training, St Christopher's
Hospice, UK "This book is a very welcome addition to the literature
on end of life care, as it does exactly what it says - it is a
practical guide. It is written by an inter-professional group of
clinical experts who have managed to create a concise, accessible
resource which would be perfect for carers, volunteers, Health Care
Support Workers or health care student working in any clinical
setting who wants to make a difference for individuals approaching
the end of their lives. The book addresses all of the important
aspects of care at this crucial time, including attitudes to death
and dying, communication issues, common physical and psycho-social
symptoms, and care in the last hours of life. The case studies of
three individuals are threaded throughout the book and are an
excellent way to illustrate theoretical content and demonstrate its
clinical application. The glossary of terms is particularly useful
for a non-specialist audience, as are the resources for further
reading. I particularly welcome the use of 'signposts' to different
activities at key points which encourage the reader to reflect and
apply the knowledge to their own situation. I highly recommend this
book to any individual who wants to develop their confidence and
competence in this challenging, but critically important area of
care." Mick Coughlan, Programme Leader, The Royal Marsden School,
UK "I found the chapters easy to read and the link to a case study
really brought the words 'to life'. The chapter on self-care was
helpful - this is an area hospice managers are having to focus on
in detail as our staff strive to maintain the high levels of
quality care hospices are renowned for with compassion and dignity
. Giving emotional support throughout a shift to patients, families
and colleagues can lead to a feeling of 'exhaustion' and 'fatigue',
which if not recognised and addressed leads to time off sick and a
feeling of being 'powerless' for staff . Healthcare professionals
must recognise this as well as their managers, who then need to
provide different levels of interventions that staff can access -
as described in the book. I think all palliative care libraries
should have this book on their shelves and perhaps it could be a
'core' reading book for training. I also used it on the ward to
discuss with nurses - it's not that what is written is necessarily
new but it is well written, concise and relevant. I feel this book
would be very useful for those new to palliative care as well as
those studying the subject. Relating theory to practice is always
powerful and for new nurses and other healthcare professionals this
provides context and meaning." Clodagh Sowton, Director of Patient
Services, Phyllis Tuckwell Hospice Care, UK "This is a welcome book
to the field of end of life care. This practical guide is
accessible and is an excellent bridge between the 'Lay Person' and
those health care professionals caring for the individual as they
approach the end of life. The authors present their subject areas
in a most readable and engaging style. While reviewing the case
studies (which are weaved throughout the whole book); you feel they
have come from experienced carers who have had 'lived experiences'
of end of life care. This therefore, makes the chapters much more
relatable and applicable to practice and real world life. This is
also a personable book and I would recommend it to health care
professionals and lay persons alike- who need to address or who may
require further insight into the realms of: Physical/psycho-social
symptoms, communication challenges and differential perspectives on
dying and death. Finally, I will also be directing students of
healthcare towards this impressive, insightful book." Robert
Murphy, Senior Lecturer - Adult Nursing, London South Bank
University, UK "The material covered is very helpful and the range
of authors has been well selected from individuals who are active
in clinical practice. The book is practical and clear, and Clair
deserves high praise for the contribution it will make to
clinicians seeking to improve their palliative care knowledge and
skills." Professor Max Watson, Medical Director Northern Ireland
Hospice, Visiting Professor University of Ulster, UK
General
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