THE SUNDAY TIMES BESTSELLER 'Impossible to read with dry eyes or an unaltered mindset' Sunday Times 'Illuminating and beautiful' Cathy Rentzenbrink What if everything you thought you knew about death was wrong? How should we prepare for the facts of dying and saying our goodbyes? And what if understanding death improved your life? By turns touching and tragic, funny and wise, With the End in Mind brings together Kathryn Mannix ' s lifetime of medical experience to tell powerful stories of life and death.

On a blustery night, detectives from the Massachusetts State Police knocked on Amy Gleason's door. Gleason, along with fellow nurse Kim Hoy, had helped a patient deal with pain and suffering at the end of her life. Now the patient was dead, and the two nurses were being investigated for murder. Both believed they had done the right thing, but they had no idea what it would cost them. In this captivating and powerful true story, Dr. Lewis M. Cohen uses the experiences of Gleason, Hoy, and the nursing assistant who accused them of murder to explore what happens when decisions about end-of-life care shift from the hospital to the courtroom and the church. Tracing this issue from the uproar over Terri Schiavo's feeding tube to the controversial figure of Jack Kevorkian, and to the legitimate threat of serial killer medical professionals, Cohen goes behind the scenes on both sides of this debate. He examines how advances in modern medicine have given us tremendous tools for prolonging life but have also forced us to address how we treat patients who are dying and suffering.

This book is a seminal guide to loneliness and social isolation in old age, providing a comprehensive overview of the important correlates of socioeconomic, health and lifestyle factors upon loneliness and social isolation in old age. Bringing together contributions from leading authorities, the book showcases expertise from medicine, psychology, epidemiology, sociology, economics and gerontology. It shows the importance of identifying factors associated with loneliness and social isolation among older adults from a broader perspective, and includes discussion of a range of topics including income poverty, physical activity, family care and frailty. The chapters are evidence-based and offer a mix of empirical studies as well as reviews of international research. The book also discusses policy implications and provides an overview of nationally representative cohort studies around the world available to researchers quantifying loneliness or social isolation. This book is unique in examining loneliness and social isolation from such wide-ranging perspectives and will be essential reading for researchers and postgraduate students in the areas of mental health research, social work, and psychiatry. Health professionals involved with gerontology and geriatrics will also find this book of benefit.

A focus throughout on lifespan perspectives and a consideration of palliative care across all ages. Consideration of different cultural perspectives, beliefs, thoughts and practices outside Western societies and dominant paradigms. Integrates primary research throughout, including a focus on contemporary research from social media. Complements mainstream psychological approaches to life-limiting illness by exploring death, dying and palliative care with a critical health psychology lens.

A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

The Collaborative for Palliative Care ("Collaborative") is a grassroots consortium of public and private organizations that came together in 2005 for the purposes of studying the increasing need for palliative care and the methods for such care. It has grown from a small fledgling group to a membership of over 50 community-based organizations and volunteers dedicated to improving care of the seriously ill through education, research and advocacy. The Collaborative bridges policy, research and practice in its initiatives and vision for the future. Partners in Palliative Care examines specific areas of concern that the Collaborative has addressed in its education programs and advocacy, as well as the collaborative processes that have been so successful in building community assets. Areas of concentration have been diverse and include advance care planning, relational communication paradigms, community capacity building, the role of culture and spirituality in palliative care, the meaning of pain and suffering for seriously ill individuals, and the ethics of health care costs in palliative and end-of-life systems of care. This book was originally published as a special issue of the Journal of Social Work in End-of-Life and Palliative Care.

1. Clinical cases set out as questions that are mapped directly to the curriculum and following the order of the RCoA curriculum 2. A focus on clinical anaesthesia with common cases, that can be used in the clinical environment either for teaching or as a refresher 3. Short, quick-fire cases that enable learning and retention of information with a summary of key points to remember for each question

This book has been written for those who must work with and give care to the dying. Our discussion is not simple narrative or description; it is a "rendition of reality," informed by a rather densely woven and fairly abstract theoretical scheme. This scheme evolved gradually during the course of our research. The second audience for this volume is social scientists who are less interested in dying than they are in useful substantive theory. Our central concern is with the temporal aspects of work. The theory presented here may be useful to social scientists interested in areas far removed from health, medicine, or hospitals. The training of physicians and nurses equips them for the technical aspects of dealing with illness. Medical students learn not to kill patients through error, and to save lives through diagnosis and treatment. But their teachers put little or no emphasis on how to talk with dying patients; how-or whether-to disclose an impending death; or even how to approach the subject with the wives, husbands, children, and parents of the dying. Students of nursing are taught how to give nursing care to terminal patients, as well as how to give "post-mortem care." But the psychological aspects of dealing with the dying and their families are virtually absent from training. Although physicians and nurses are highly skilled at handling the bodies of terminal patients, their behavior to them otherwise is actually outside the province of professional standards. Much, if not most, nontechnical conduct toward, and in the presence of, dying patients and their families is profoundly influenced by "common sense" assumptions, essentially untouched by professional or even rational considerations or by current advancement in social-psychological knowledge. The process of dying in hospitals is much affected by professional training and codes, and by the particular conditions of work generated by hospitals as places of work. A third important consideration in interpreting dying as a temporal process is that dying is a social as well as a biological and psychological process. The term "social" underlines that the dying person is not simply leaving life. Unless he dies without kin or friends, and in such a way that his death is completely undiscovered his death is recorded. His dying is inextricably bound up with the life of society, however insignificant his particular life may have been or how small the impact his death makes upon its future course. This aspect of dying is treated in relationship to what the authors call "status passage." "Time for Dying" is an illumination of the "temporal features of dying in hospitals"uas related both to the work of hospital personnel and to dying itself as a social process. "Barney G. Glaser" is the founder of the Grounded Theory Institute in Mill Valley, California, and has also been a research sociologist at the University of California Medical Center, San Francisco. He is the author or coauthor of several books, including "The Grounded Theory Perspective II and Experts versus Laymen: A Study of the Patsy and the Subcontractor," published by Aldine Transaction. "Anselm L. Strauss" (1916-1996) was emeritus professor of sociology at the University of California, San Francisco. He was the author of numerous books, including "Professions, Work and Careers, Mirrors and Masks: The Search for Identity, and Creating Sociological Awareness: Collective Images and Symbolic Representations, " all published in new editions by Transaction.

A focus throughout on lifespan perspectives and a consideration of palliative care across all ages. Consideration of different cultural perspectives, beliefs, thoughts and practices outside Western societies and dominant paradigms. Integrates primary research throughout, including a focus on contemporary research from social media. Complements mainstream psychological approaches to life-limiting illness by exploring death, dying and palliative care with a critical health psychology lens.

Fear and Primordial Trust explores fear as an existential phenomenon and how it can be overcome. Illustrated by clinical examples from the author's practice as a psychotherapist and spiritual caregiver working with the severely ill and dying, the book outline theoretical insights into how primordial trust and archaic fear unconsciously shape our personality and behaviour. This book discusses in detail how in our everyday world, we lack primordial trust. Nevertheless, all of us have internalized it: as experiences of another non-dual world, of being unconditionally accepted, then sheltered and nurtured. The book outlines how from a spiritual viewpoint, we come from the non-dual world and experience a transition by becoming an ego, thereby experiencing archaic fear. This book explains fear in terms of two challenges encountered in this transition: firstly, leaving the non-world world when everything changes and we feel forlorn. Secondly, on awakening in the ego when we feel dependent and overwhelmed by otherness. The book also helps readers to understand trust as the emotional and spiritual foundation of the human soul, as well as how fear shapes us and how it can be outgrown. The book makes the case that understanding fear and primordial trust improves care and helps us to better understand dying. It will be of interest to academics, scholars and students in the fields of psychiatry, counselling, psychotherapy and palliative care and to all those interested in understanding fear, trust and the healing potential of spiritual experiences. Chapters 1 and 3 of this book are freely available as a downloadable Open Access PDF under a Creative Commons Attribution 4.0 license available at https://www.taylorfrancis.com/books/mono/10.4324/9781003176572

This book brings a fresh approach and conversation to the practice of professional supervision for human services by specifically articulating its often performed, but unnamed and under-explored therapeutic function. The discussion of the therapeutic function is timely given the rising complexities in our world, and the increasing awareness of emotional impacts of human service work. These impacts include stress, distress, emotional labour, indirect trauma, and direct trauma. Posing a challenge and invitation to supervisors to comfortably inhabit the therapeutic function of supervision to increase emotional support to workers, it places safe practice and worker wellbeing at the heart of supervision to enable high quality service delivery for often the most vulnerable in society. While underpinned by theory, it is written to be practically applied and is developed from a 'lived experience' perspective, offering a unique glimpse into actual practice. By modelling one of the main aims of professional supervision, which is to facilitate and enable the integration of experience into learning and knowledge, it will be of interest to all practitioners across a broad range of human services, particularly both new and experienced supervisors.

This book brings a fresh approach and conversation to the practice of professional supervision for human services by specifically articulating its often performed, but unnamed and under-explored therapeutic function. The discussion of the therapeutic function is timely given the rising complexities in our world, and the increasing awareness of emotional impacts of human service work. These impacts include stress, distress, emotional labour, indirect trauma, and direct trauma. Posing a challenge and invitation to supervisors to comfortably inhabit the therapeutic function of supervision to increase emotional support to workers, it places safe practice and worker wellbeing at the heart of supervision to enable high quality service delivery for often the most vulnerable in society. While underpinned by theory, it is written to be practically applied and is developed from a 'lived experience' perspective, offering a unique glimpse into actual practice. By modelling one of the main aims of professional supervision, which is to facilitate and enable the integration of experience into learning and knowledge, it will be of interest to all practitioners across a broad range of human services, particularly both new and experienced supervisors.

* Provides valuable guidance for all student and practising SLTs who are working with older people with communication and swallowing difficulties. * Offers a holistic approach, not only looking at the physiological/biological effects, but taking into account the psychological and social impacts of aging. * Bridges theory and practice, with an emphasis on practical strategies and advice for clinicians to use in their daily work. * Dispels the myths which sound aging (due to a lack of knowledge of what is considered to be within normal range), which can lead to misdiagnosis.

This volume speaks to the issue of occupational therapy practice with the patient in pain. The hows and whys of treatment are explored in a broad range of chapters written by and for professionals in the field of occupational therapy.

This book gives readers an understanding of the theoretical foundations of social support communication along with practical tools to ethically and justly connect with and support others in daily life. Incorporating research, real-world examples, and autoethnographic methods, this book examines how social hierarchies, personal power dynamics, and relational and social histories can be better understood to create stronger social support messages across all our relationships, including family, friend, workplace, and health provider-patient relationships. The book translates theories of social support communication into practical application, examining how support messaging goes wrong and how to do it right. Intended as a supplementary text in interpersonal communication, psychology, and social work undergraduate courses, the book is also ideal for professionals who engage in caretaking and support tasks and wish to enhance their knowledge of social support theory.

Focussing on end-of-life care for people who use, or have used, substances, this book explores their social and health care needs and the multiple disadvantages they have often experienced, discussing the complexities around access to care that result. Presenting models of good practice, case studies and empirically based evidence, Substance Use, End-of-Life Care is informative, rigorous and useful for policy and practice development. The first section foregrounds the personal experiences of people living with substance use, their families and friends, and the health and social care professionals who work with them. The second section looks at how health inequalities can impact people in need of palliative care, including chapters on health literacy, mental health and learning disabilities. The final section explores social challenges that may be experienced, including homelessness, sex work, racism and incarceration. This interdisciplinary volume is essential for researchers, practitioners, students and educators working around substance use, mental health and palliative and end-of-life care, who are looking for guidance and a reference for their work in supporting people at the end of their lives who have multiple and often complex needs.

- features research that is uniquely existential and spiritual - there's not yet a lot available on the topic of reconciliation and forgiveness (aspects of the aging process that need to be explored)

This book explores the experiences of Muslims in the United States as they interact with the health care system during serious illness and end-of-life care. It shifts "actively dying" from a medical phrase used to describe patients who are expected to pass away soon or who exhibit signs of impending death, to a theoretical framework to analyze how end-of-life care, particularly within a hospital, shapes the ways that patients, families, and providers understand Islam and think of themselves as Muslim. Using the dying body as the main object of analysis, the volume shows that religious identities of Muslim patients, loved ones, and caregivers are not only created when living, but also through the physical process of dying and through death. Based on ethnographic and qualitative research carried out mainly in the Washington, D.C. region, this volume will be of interest to scholars in anthropology, sociology, public health, gerontology, and religious studies.

1. Clinical cases set out as questions that are mapped directly to the curriculum and following the order of the RCoA curriculum 2. A focus on clinical anaesthesia with common cases, that can be used in the clinical environment either for teaching or as a refresher 3. Short, quick-fire cases that enable learning and retention of information with a summary of key points to remember for each question

This new evidence-based model, derived from a study of parents and exemplary clinicians, offers a clear presentation of the complex process of interaction between healthcare providers and parents of seriously ill children. A unique aspect of the book is that it is based on the study of excellence rather than focusing on what did not go well. This model gives clinicians practical strategies for optimizing interactions with parents of seriously ill children. Moving beyond the prevalent idea of communication as a step-by-step procedure, this book demonstrates the complex and holistic nature of interaction in healthcare.

The explosion of literature on the once taboo topic of death and dying in the late 1970s had tended to pass the professional social worker by. Originally published in 1981, it was to fill this important gap that Towards Death with Dignity was written. Not since Kubler-Ross's now classic On Death and Dying has a book in the field of terminal care been informed by so much first-hand experience, and so much case material, allowing the caregiver to learn from the dying person himself how best to help him towards a dignified death. Sylvia Poss's sensitive elucidation of what the dying person must do for himself in order to master his terminal crisis was welcomed as a major contribution to psychosocial knowledge at the time. Having outlined the dying person's side of the crisis, she turns to the perspective of those who hope to help him towards death - other patients, nurses, doctors, paramedical staff and social workers, chaplains, volunteers, employers, relatives and friends. Towards Death with Dignity focuses on three of social work's major methods: social casework, community work and teaching. Not only does Sylvia Poss outline what may need to be done by the caregiver, but she also illustrates how; she further outlines how to prepare for social work in the terminal care field and suggests an effective method for teaching terminal care skills. Her book also provided, for the first time, a synthesis of other recent work in the field, to help social workers through what had become a plethora of specialist psychosocial and medical literature. Towards Death with Dignity was thus a useful, practical guide, both for laymen and for the many professionals involved in this aspect of the health care field. It will also be valuable for those who are involved personally in moving towards their own death, or are being called upon to be involved in some way in the death of a relative, neighbour or friend.

Vitamin C holds a unique place in scientific and cultural history. In this book, a group of leading scientific researchers describe new insights into the myriad ways vitamin C is employed during normal physiological functioning. In addition, the text provides an extensive overview of the following: the rationale for utilizing vitamin C in the clinic, updates on recent uses of vitamin C in cancer treatment through high-dose intravenous therapies, the role vitamin C plays in the treatment of sepsis and infectious disease, management of the ways vitamin C can improve stem cell differentiation, as well as vitamin C use in other important health situations. Features Includes chapters from a team of leading international scholars Reviews the history and recent research on the functions, benefits, and uses of vitamin C Focuses special attention on the way vitamin C can be used in the treatment of cancers Discusses how vitamin C can be employed against infectious disease

Perinatal hospice is a novel form of care for an unborn child who has been diagnosed with a significantly life-limiting condition. In this book, Aaron D. Cobb develops a virtue-based defense of the value of perinatal hospice. He characterizes its promotion and provision as a common project of individuals, local communities, and institutions working together to provide exemplary care. Engaging with important themes from the work of Alasdair MacIntyre and Robert Adams, he shows how perinatal hospice manifests virtues crucial to meeting the needs of families in these difficult circumstances. As a work of applied virtue ethics, this book has important normative, social, and political implications for the creation and development of structured programs of care. It grounds the view that communities ought (i) to devote resources to ensure that these programs are widely available and (ii) to develop social structures that promote awareness of and accessibility to these forms of care. A Virtue-Based Defense of Perinatal Hospice will be of interest to philosophers working in bioethics and applied virtue ethics, as well as scholars in the fields of neonatology, nursing, palliative and hospice care, and counseling who are interested in the study of perinatal hospice.

A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

This book examines the central structures in medicine-medical knowledge, economics, technological innovation, and medical authority-from the perspective of an ethics of care. The author analyzes each of these structures in detail before considering the challenges they present to end of life care. The perspective of an ethics of care allows for a careful focus on how these structures affect the capacity of the health care system to provide the care patients need, on the impact they have on the relationships between patients and care-givers, and on how they affect the care-givers in terms of their own sense of identity and capacity for care. This book offers one of the first focused discussions of an ethics of care across a wide range of social issues and structures in contemporary medicine. It will be of keen interest to advanced students and scholars in bioethics and health care ethics who are interested in these important issues.