THE SUNDAY TIMES BESTSELLER 'Impossible to read with dry eyes or an unaltered mindset' Sunday Times 'Illuminating and beautiful' Cathy Rentzenbrink What if everything you thought you knew about death was wrong? How should we prepare for the facts of dying and saying our goodbyes? And what if understanding death improved your life? By turns touching and tragic, funny and wise, With the End in Mind brings together Kathryn Mannix ' s lifetime of medical experience to tell powerful stories of life and death.

A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

On a blustery night, detectives from the Massachusetts State Police knocked on Amy Gleason's door. Gleason, along with fellow nurse Kim Hoy, had helped a patient deal with pain and suffering at the end of her life. Now the patient was dead, and the two nurses were being investigated for murder. Both believed they had done the right thing, but they had no idea what it would cost them. In this captivating and powerful true story, Dr. Lewis M. Cohen uses the experiences of Gleason, Hoy, and the nursing assistant who accused them of murder to explore what happens when decisions about end-of-life care shift from the hospital to the courtroom and the church. Tracing this issue from the uproar over Terri Schiavo's feeding tube to the controversial figure of Jack Kevorkian, and to the legitimate threat of serial killer medical professionals, Cohen goes behind the scenes on both sides of this debate. He examines how advances in modern medicine have given us tremendous tools for prolonging life but have also forced us to address how we treat patients who are dying and suffering.

Respiratory symptoms such as breathlessness and cough are common in patients with advancing and incurable disease. For example, cancer, chronic cardiac and pulmonary disease, progressive neuromuscular disorders and degenerative disorders all give rise to varying degrees of respiratory distress which adversely affects the patient's quality of life. In recent years, there has been significant growth into the palliation of respiratory symptoms leading to practical ways of giving relief in hospices, hospitals and at home. The second edition of this popular title in the Supportive Care series includes non-malignant respiratory diseases such as tuberculosis in AIDS patients, cystic fibrosis and ventilator-dependent patients, and focuses on aetiology and diagnosis and management, emphasising symptoms, quality of life and psychosocial support. The underlying theme of the book is the application of modern research-based knowledge, in a humane way, for patients with advancing disease.

New York Times Bestseller A poignant love letter to Bloom's husband and a passionate outpouring of grief, In Love reaffirms the power and value of human relationships. In January 2020, Amy Bloom travelled with her husband Brian to Switzerland, where he was helped by Dignitas to end his life while Amy sat with him and held his hand. Brian was terminally ill and for the last year of his life Amy had struggled to find a way to support his wish to take control of his death, to not submerge 'into the darkness of an expiring existence'. Written with piercing insight and wit, In Love is Bloom's intimate, authentic and startling account of losing Brian, first slowly to the disease of Alzheimer's, and then on becoming a widow. It charts the anxiety and pain of the process that led them to Dignitas, while never avoiding the complex ethical problems that are raised by assisted death. 'Poignant, kind, funny and ultimately redemptive' - Alain de Botton, author of The Course of Love 'In Love is a thrillingly beautiful, laser-eyed book about love, life, mortality and, most remarkably, about the ways in which no one of the three can be separated from the others' - Michael Cunningham, author of The Hours and A Home at the End of the World

aThis is a beautifully written account from the front lines of a struggle between a federal drug war complex determined to keep demonizing marijuana and the growing movement of patients and doctors who have found marijuana to be a valuable medicine. Voters in California and many other states have strongly supported the patients. The moving stories in this book show why.a
--Craig Reinarman, co-author of "Crack in America: Demon Drugs and Social Justice"

aChapkis and Webb have done a masterful job in describing the intricacies of the drug debate and offer brilliant analysis on a complex and controversial subject. Both baby boomers and the current teenage population will find this book important and compelling reading.a
--Terry Williams, author of "Crackhouse: Notes from the End of the Line"

Marijuana as medicine has been a politically charged topic in this country for more than three decades. Despite overwhelming public support and growing scientific evidence of its therapeutic effects (relief of the nausea caused by chemotherapy for cancer and AIDS, control over seizures or spasticity caused by epilepsy or MS, and relief from chronic and acute pain, to name a few), the drug remains illegal under federal law.

In Dying to Get High, noted sociologists Wendy Chapkis and Richard J. Webb investigate one community of seriously-ill patients fighting the federal government for the right to use physician-recommended marijuana. Based in Santa Cruz, California, the Wo/Menas Alliance for Medical Marijuana (WAMM) is a unique patient-caregiver cooperative providing marijuana free of charge to mostly terminally ill members. For a brief period in 2004, it even operated the only legalnon-governmental medical marijuana garden in the country, protected by the federal courts against the DEA.

Using as their stage this fascinating profile of one remarkable organization, Chapkis and Webb tackle the broader, complex history of medical marijuana in America. Through compelling interviews with patients, public officials, law enforcement officers and physicians, Chapkis and Webb ask what distinguishes a legitimate patient from an illegitimate apothead, a agooda drugs from abad, a medicinal effects from ajust getting high.a Dying to Get High combines abstract argument and the messier terrain of how people actually live, suffer and die, and offers a moving account of what is at stake in ongoing debates over the legalization of medical marijuana.

Palliative medicine was first recognised as a specialist field in 1987. One hundred years earlier, London based doctor William Munk published a treatise on 'easeful death' that mapped out the principles of practical, spiritual, and medical support at the end of life. In the intervening years a major process of development took place which led to innovative services, new approaches to the study and relief of pain and other symptoms, a growing interest in 'holistic' care, and a desire to gain more recognition for care at the end of life. This book traces the history of palliative medicine, from its nineteenth-century origins, to its modern practice around the world. It takes in the changing meaning of 'euthanasia', assesses the role of religious and philanthropic organisations in the creation of homes for the dying, and explores how twentieth-century doctors created a special focus on end of life care. To Comfort Always traces the rise of clinical studies, academic programmes and international collaborations to promote palliative care. It examines the continuing need to support development with evidence, and assesses the dilemmas of unequal access to services and pain relieving drugs, as well as the periodic accusations of creeping medicalization within the field. This is the first history of its kind, and the breadth of information it encompasses makes it an essential resource for those interested in the long-term achievements of palliative medicine as well as the challenges that remain.

A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

A focus throughout on lifespan perspectives and a consideration of palliative care across all ages. Consideration of different cultural perspectives, beliefs, thoughts and practices outside Western societies and dominant paradigms. Integrates primary research throughout, including a focus on contemporary research from social media. Complements mainstream psychological approaches to life-limiting illness by exploring death, dying and palliative care with a critical health psychology lens.

The Collaborative for Palliative Care ("Collaborative") is a grassroots consortium of public and private organizations that came together in 2005 for the purposes of studying the increasing need for palliative care and the methods for such care. It has grown from a small fledgling group to a membership of over 50 community-based organizations and volunteers dedicated to improving care of the seriously ill through education, research and advocacy. The Collaborative bridges policy, research and practice in its initiatives and vision for the future. Partners in Palliative Care examines specific areas of concern that the Collaborative has addressed in its education programs and advocacy, as well as the collaborative processes that have been so successful in building community assets. Areas of concentration have been diverse and include advance care planning, relational communication paradigms, community capacity building, the role of culture and spirituality in palliative care, the meaning of pain and suffering for seriously ill individuals, and the ethics of health care costs in palliative and end-of-life systems of care. This book was originally published as a special issue of the Journal of Social Work in End-of-Life and Palliative Care.

When the first edition of this book published in 1994, the psychoimmunology of cancer was still emerging as a topic for serious scientific study. Now, less than ten years later, there is a huge quantity of academic literature about the relationships between psychological variables, the immune system and cancer growth, accompanied by a lively popular interest.

In this new edition leading specialists have provided broad critical reviews of the different aspects. Part I, which presents the biological background, will be of particular interest to those with technical knowledge of the relevant laboratory based disciplines. It covers mechanisms mediating the effects of psychological status in the immune system, and anti-cancer mechanisms involving the immune system. Part II is clinically orientated, and accessible to a wide audience. Whether psychotherapeutic interventions can help patients live longer, as well as coping better, is obviously the key question and several contributors consider the clinical evidence for this. A new, speculative chapter on the spiritual context of immunity and cancer has also been added.

The psychoimmunology of cancer involves many complex issues, understanding of which remains far from complete. However, the contributors, besides reviewing the current state of knowledge and the implications for cancer patients, offer predictions for the future and ideas about further research.

From reviews of the first edition:

'The chief quality of this book is its presentation of an excellent but critical overview of the entire range of what is today called 'psychoimmunology', and it is to be recommended to all who are interested in the subject.' Annals of Oncology

Written by an international team of authors the Oxford Textbook of Communication in Oncology and Palliative Care integrates clinical wisdom with empirical findings. It draws upon the history of communication science, providing the reader with a comprehensive curriculum for applied communication skills training. An essential resource, the Oxford Textbook of Communication in Oncology and Palliative Care is filled with tips and strategies for effective communication about difficult and challenging communication. In focusing on cancer and the end-of-life, it deals with the existential and spiritual challenges found across all of medicine, providing deep insights into what is at stake and how clinicians might optimally respond. This authoritative and wide-ranging book provides clinicians with state-of-the-art and evidence-based guidelines to achieve effective, patient-centred communication in the clinical settings of oncology and palliative care. Thoroughly revised and updated, this new edition includes sections on the curriculum for nurses, the core curriculum, and an introductory section on communication science. The chapters embrace specialty issues across the clinical disciplines, from enrolling in clinical trials, working in teams, and discussing genetic risk, to talking about sexuality, infertility, and intercultural issues. An educational perspective is also provided, with chapters covering communication skills training, how to evaluate courses, and international models of training.

Nutrition, appetite, and involuntary weight loss are issues that affect a large number of cancer patients and cancer survivors. Aspects such as symptom management, behavioural modification, exercise and medication are all important aspects of cancer care, but nutritional issues at the end of life can be accompanied by contentious ethical factors as well as religious and cultural influences that need to be addressed by health professionals. This book enables physicians, nurses and also dieticians to better discuss these complex issues with patients and their families.
This comprehensive reference book provides both background information and practical, clinical advice for managing the cancer patient at all stages of their disease trajectory. It includes information that relates to patients who are continuing to receive disease-specific therapy, the cancer survivor, as well as patients with advanced or recurrent cancer receiving palliative care.
Basic principles such as epidemiology and physiology set the scene, leading into the cachexia/anorexia syndrome, treatment options, nutritional counselling, enteral and parenteral nutrition, complementary/alternative therapies, exercise, clinical outcomes measures in each of the clinical groups, and focus on special populations and their specific needs. Multidimensional, interdisciplinary clinical evaluation and treatment is emphasised, and ethical, religious, and cultural factors are also addressed.
Multidisciplinary in nature, this book draws on the experience of the editors' work across the fields of oncology, palliative care, surgery, primary care, nursing, dietetics and nutritional science. It will prove invaluable to all general practitioners, internists, medical oncologists and surgeons, nurses, palliative care specialists and related professionals involved in the care of the cancer patient.

Designed for easy use at the bedside, this manual contains the practical information health care professionals need to provide optimal end-of-life care. The book presents a multidimensional, holistic approach to assessment and management of the physical, psychological, social, and spiritual needs of the patient and family. Topics covered include cultural diversity in end-of-life care; communicating with patients and families; predicting life expectancy; terminal care; non-pain symptom management; pain control; palliative interventions; pediatric palliative care; record keeping; and ethics.

The succinct, user-friendly presentation features bullet points and numerous quick-reference tables. Each chapter includes an "In a Nutshell" summary of key points.

This volume speaks to the issue of occupational therapy practice with the patient in pain. The hows and whys of treatment are explored in a broad range of chapters written by and for professionals in the field of occupational therapy.

This book is a seminal guide to loneliness and social isolation in old age, providing a comprehensive overview of the important correlates of socioeconomic, health and lifestyle factors upon loneliness and social isolation in old age. Bringing together contributions from leading authorities, the book showcases expertise from medicine, psychology, epidemiology, sociology, economics and gerontology. It shows the importance of identifying factors associated with loneliness and social isolation among older adults from a broader perspective, and includes discussion of a range of topics including income poverty, physical activity, family care and frailty. The chapters are evidence-based and offer a mix of empirical studies as well as reviews of international research. The book also discusses policy implications and provides an overview of nationally representative cohort studies around the world available to researchers quantifying loneliness or social isolation. This book is unique in examining loneliness and social isolation from such wide-ranging perspectives and will be essential reading for researchers and postgraduate students in the areas of mental health research, social work, and psychiatry. Health professionals involved with gerontology and geriatrics will also find this book of benefit.

* Provides valuable guidance for all student and practising SLTs who are working with older people with communication and swallowing difficulties. * Offers a holistic approach, not only looking at the physiological/biological effects, but taking into account the psychological and social impacts of aging. * Bridges theory and practice, with an emphasis on practical strategies and advice for clinicians to use in their daily work. * Dispels the myths which sound aging (due to a lack of knowledge of what is considered to be within normal range), which can lead to misdiagnosis.

This book explores the concept of relational care, what it feels like for older people and for carers, why it makes life happier and how those involved in residential or community care can make it work. Relational care is gaining traction as its benefits to individuals and society become recognised. This accessible book, based on real-life models and in-depth interviews, explores fresh ways that relational care can be facilitated in a variety of settings. It looks at practice in terms of team management, support for care workers, technology, design and architecture, intergenerational and multidisciplinary models, and their implications for resilience, wellbeing, policy and future funding. Chapters are arranged by theme and provide descriptions, learning points and resources for each model, as well as incorporating a wealth of interviews giving insights into the lived experience of relational care. This is a lively book full of realistic ideas and information for everyone who wants to find out more about, access or implement the best in care - the best for older people, their families, care workers, management and society.

A focus throughout on lifespan perspectives and a consideration of palliative care across all ages. Consideration of different cultural perspectives, beliefs, thoughts and practices outside Western societies and dominant paradigms. Integrates primary research throughout, including a focus on contemporary research from social media. Complements mainstream psychological approaches to life-limiting illness by exploring death, dying and palliative care with a critical health psychology lens.

This book brings a fresh approach and conversation to the practice of professional supervision for human services by specifically articulating its often performed, but unnamed and under-explored therapeutic function. The discussion of the therapeutic function is timely given the rising complexities in our world, and the increasing awareness of emotional impacts of human service work. These impacts include stress, distress, emotional labour, indirect trauma, and direct trauma. Posing a challenge and invitation to supervisors to comfortably inhabit the therapeutic function of supervision to increase emotional support to workers, it places safe practice and worker wellbeing at the heart of supervision to enable high quality service delivery for often the most vulnerable in society. While underpinned by theory, it is written to be practically applied and is developed from a 'lived experience' perspective, offering a unique glimpse into actual practice. By modelling one of the main aims of professional supervision, which is to facilitate and enable the integration of experience into learning and knowledge, it will be of interest to all practitioners across a broad range of human services, particularly both new and experienced supervisors.

This book gives readers an understanding of the theoretical foundations of social support communication along with practical tools to ethically and justly connect with and support others in daily life. Incorporating research, real-world examples, and autoethnographic methods, this book examines how social hierarchies, personal power dynamics, and relational and social histories can be better understood to create stronger social support messages across all our relationships, including family, friend, workplace, and health provider-patient relationships. The book translates theories of social support communication into practical application, examining how support messaging goes wrong and how to do it right. Intended as a supplementary text in interpersonal communication, psychology, and social work undergraduate courses, the book is also ideal for professionals who engage in caretaking and support tasks and wish to enhance their knowledge of social support theory.

Fear and Primordial Trust explores fear as an existential phenomenon and how it can be overcome. Illustrated by clinical examples from the author's practice as a psychotherapist and spiritual caregiver working with the severely ill and dying, the book outline theoretical insights into how primordial trust and archaic fear unconsciously shape our personality and behaviour. This book discusses in detail how in our everyday world, we lack primordial trust. Nevertheless, all of us have internalized it: as experiences of another non-dual world, of being unconditionally accepted, then sheltered and nurtured. The book outlines how from a spiritual viewpoint, we come from the non-dual world and experience a transition by becoming an ego, thereby experiencing archaic fear. This book explains fear in terms of two challenges encountered in this transition: firstly, leaving the non-world world when everything changes and we feel forlorn. Secondly, on awakening in the ego when we feel dependent and overwhelmed by otherness. The book also helps readers to understand trust as the emotional and spiritual foundation of the human soul, as well as how fear shapes us and how it can be outgrown. The book makes the case that understanding fear and primordial trust improves care and helps us to better understand dying. It will be of interest to academics, scholars and students in the fields of psychiatry, counselling, psychotherapy and palliative care and to all those interested in understanding fear, trust and the healing potential of spiritual experiences. Chapters 1 and 3 of this book are freely available as a downloadable Open Access PDF under a Creative Commons Attribution 4.0 license available at https://www.taylorfrancis.com/books/mono/10.4324/9781003176572

Focussing on end-of-life care for people who use, or have used, substances, this book explores their social and health care needs and the multiple disadvantages they have often experienced, discussing the complexities around access to care that result. Presenting models of good practice, case studies and empirically based evidence, Substance Use, End-of-Life Care is informative, rigorous and useful for policy and practice development. The first section foregrounds the personal experiences of people living with substance use, their families and friends, and the health and social care professionals who work with them. The second section looks at how health inequalities can impact people in need of palliative care, including chapters on health literacy, mental health and learning disabilities. The final section explores social challenges that may be experienced, including homelessness, sex work, racism and incarceration. This interdisciplinary volume is essential for researchers, practitioners, students and educators working around substance use, mental health and palliative and end-of-life care, who are looking for guidance and a reference for their work in supporting people at the end of their lives who have multiple and often complex needs.

- features research that is uniquely existential and spiritual - there's not yet a lot available on the topic of reconciliation and forgiveness (aspects of the aging process that need to be explored)

This book explores the experiences of Muslims in the United States as they interact with the health care system during serious illness and end-of-life care. It shifts "actively dying" from a medical phrase used to describe patients who are expected to pass away soon or who exhibit signs of impending death, to a theoretical framework to analyze how end-of-life care, particularly within a hospital, shapes the ways that patients, families, and providers understand Islam and think of themselves as Muslim. Using the dying body as the main object of analysis, the volume shows that religious identities of Muslim patients, loved ones, and caregivers are not only created when living, but also through the physical process of dying and through death. Based on ethnographic and qualitative research carried out mainly in the Washington, D.C. region, this volume will be of interest to scholars in anthropology, sociology, public health, gerontology, and religious studies.