This book provides healthcare professionals with a practice theory for the care and management of patients who have been diagnosed with cancer. It explores what patients experience and how healthcare professionals can assist them in dealing with their uncertainty and fear as well as planning for the future. Unique to the book is its explication of the emerging theory, 'The Omnipresence of Cancer', which is set in the context of a discussion of earlier theories also concerned with cancer care. Chapters demonstrate how 'The Omnipresence of Cancer' has been developed, validated through research and being further tested in relation to cancer care. In particular, a chapter on philosophical reflections using theory to produce knowledge for practice is included. Each chapter provides essential background, a synthesis of the current state of knowledge, and practice examples associated with cancer care. The combination of theoretical reflection and practice examples is designed to promote comprehension and guidance on implementation of the theory, as well as recommendations for practice. This book will be of significant interest to healthcare students and professionals working in the field of cancer care and oncology, particularly healthcare professionals working in advanced practice roles and nurse educators. It is also anticipated that professionals working in pastoral care, occupational therapy, social work and radiography will be interested in this book.

Eight years has passed since the first edition of The Handbook of Psychiatry in Palliative Medicine
was published. In that time, psychiatric (or psychosocial) palliative care has evolved; the net effect on palliative medicine has been transformative. Palliation that neglects psychosocial dimensions of patient and family experience, de facto, fails to meet contemporary standards of comprehensive palliative care. While a focus on somatic issues has sometimes overshadowed attention to psychological, existential, and spiritual end-of-life challenges, the past decade has seen an all encompassing, multi-disciplinary approach to care for the dying beginning to take hold.
The first comprehensive textbook of psychiatric palliative care, this new edition has been fully updated, reorganized and expanded to include eleven new chapters. Written by 67 internationally known psychiatry and palliative care experts, the book is truly an essential reference for all providers of palliative care including psychiatrists, psychologists, mental health counselors, oncologists, hsopice workers and social workers. Each chapter has been updated to address new therapeutic modalities and approaches as well as new research trends and opportunities for each topic.

Ethics in Hospice Care: Challenges to Hospice Values in a Changing Health Care Environment explores the pressures and challenges facing hospice and aims to produce new studies and educational materials on hospice ethics to help professionals in the field. Many of the tensions felt by caregivers and practitioners in hospice stem from uncertainty about the ethical mission of hospice and the ethical dilemmas arising in practice. This volume, a result of The Hastings Center and the Hospice Foundation of America's project on Ethical and Policy Issues in Hospice Care, addresses these issues in a clear, accessible way.Ethics in Hospice Care outlines the economic, social, and cultural challenges facing hospice care in a changing society and a changing health care environment. Issues of concern include: financial pressures as policymakers limit Medicare spending organizational pressures as hospice organizations enter a variety of new relationships with managed care organizations, home health agencies, and hospitals cultural and social challenges as Americans wrestle with moral and legal issues of death and dying and physician-assisted suicide the rapid and unplanned growth of the movement--from a single hospice in 1973 to over 2500 todayWhile primarily for practicing hospice professionals, Ethics in Hospice Care is vital reading for everyone concerned with assisted suicide, patients'rights, quality of life, managed care, physician referral, professional development, pain management, quality of care, and ethics committees.

The third edition of Hospice and Palliative Care is the essential guide to the hospice and palliative care movement both within the United States and around the world. Chapters provide mental-health and medical professionals with a comprehensive overview of the hospice practice as well as discussions of challenges and the future direction of the hospice movement. Updates to the new edition include advances in spiritual assessment and care, treatment of prolonged and complicated grief, provision of interdisciplinary palliative care in limited-resource settings, significant discussion of assisted suicide, primary healthcare including oncology, and more. Staff and volunteers new to the field along with experienced care providers and those using hospice and palliative care services will find this essential reading.

This book is a guide to help clinicians caring for people with advanced heart failure develop a team approach for a group of people who, despite the increased awareness, remains disadvantaged in accessing support to help them live with, and support them as they die from, this serious illness.

Two cogent arguments about end-of-life careand carefully reasoned responses from experts End-of-Life Care: Bridging Disability and Aging with Person Centered Care features two primary papers on the controversial issue of end-of-life care within the disabled and aging populations. Each paper explainsclearly and honestlythe multitude of issues involved in using person centered care. The first is from a father and nationally known advocate for the disabledRud Turnbullspeaking from a disability perspective about his disabled son. The second is from respected theologian M. J. Iozzio speaking from the aging perspective about her father's Alzheimer's disease. Responses from experts in the field follow, thoughtfully raising further points to consider about policies, ethics, quality of life, and consent. The two central papers from End-of-Life Care focus on person centered, interdependent care using the personal reflections of two close family members and their views about end-of-life care. The responses that follow each are direct, thoughtful, and concentrate on the issues in end-of-life planning using person centered care. This difficult and important issue is discussed in detail by lawyers, theologians, clinical practitioners, and professional service providers, and includes several revealing personal stories about end-of-life experiences. Helpful resources for both policy and practice are also presented to assist the reader to learn more. End-of-Life Care discusses: who, how, and on what grounds end-of-life decisions should be made for the developmentally/intellectually disabled best practices information from Volunteers of America's Last Passages project the unique challenges faced by individuals with disabilities and their families when confronting issues of death and dying the protection of the rights of the disabled from discrimination person centered care for the aging with complicating health conditions like Alzheimer's Disease helping all people to clearly communicate their end-of-life wishes End-of-Life Care explores explores policy, theological, and personal dimensions of end of life care, and the ways that person centered care can bridge the fields of aging and disabilty.

Enter the world of organ transplantation and develop a new understanding of processes and techniques for working effectively with patients in this increasing medical population. This multidisciplinary overview of organ transplantation contains chapters by major figures in the medical arena, internationally known bioethics writers, and experienced chaplains from the clinical setting of transplantation, as well as respected pastoral theologians. The authors, who include Art Caplan, Donald Capps, and Jack Copeland, explain transplantation completely for the nonmedical person and delve into the myriad ethical and religious issues and controversies surrounding organ donation and transplantation. Enlightening chapters clarify issues and help readers better understand the transplantation process, making them more effective in their work with transplant patients.Organ Transplantation in Religious, Ethical and Social Context is divided into three sections. The first emphasizes transplantation as a team effort. Chapters focus on the various roles of chaplains and other team members. Section two addresses ethical questions which arise from transplantation and organ donation and includes interfaith perspectives. The third section is dedicated to theological and pastoral views concerning transplantation.Some specific topics discussed in this book include: a surgeon's perspective of the role of the chaplain influence of psychosocial factors in the heart transplantation decision process ministry to organ recipients and their families the special relationship between the transplant coordinator and the transplant patient Catholic and interfaith perspectives on organ donation using the Psalms as a pastoral resource with transplant patientsHospital chaplains, transplant social workers, transplant coordinators, and other professionals interested or involved in the process of organ transplantation will find this book to be full of interesting and thought-provoking insights and information.

Here is an overview of many of the ethical challenges facing health care practitioners today. Health providers striving for the appropriate balance between human rights and values and the objectives within their professions confront many ethical dilemmas. This helpful book explores such dilemmas from practical and philosophical perspectives and helps practitioners successfully navigate through the maze of concerns they face on a daily basis. With Ethics and Values in Long Term Health Care, readers can develop new modes of ethical thinking that will enhance their practice as they improve the quality of life of the elderly they serve. The book presents information that can be used as a catalyst for innovative thinking and a guide for positive action. Readers are encouraged to apply the lessons contained in this book to practical decisionmaking in their respective health professions. Chapters assist health practitioners and others in thinking more in-depth about the impact of their personal ethics and values on service delivery, and help them to broaden their views and enhance their decisionmaking skills. The book has a broad scope and is divided into four sections which address: Practitioner Knowledge Caregiving End of Life Choices Health Care ReformEthics and Values in Long Term Health Care helps prepare health care professionals to confront some of the major ethics and values challenges of the 1990s and beyond. This book can be used as a guide to ethical awareness, as well as a tool for teaching ethics and values or for developing programs and workshops.

Spirituality and Coping with Loss: End of Life Healthcare Practice describes a research study that reflects nurses' experience of the nature of loss encountered in end of life care settings as well as the ways in which spirituality is a resource in coping in these situations. Key findings indicate how nurses' spiritual development impacts their proficiency in spiritual care. These findings will be of interest to nurses and nurse educators as well as other healthcare professionals.

The concept of a "good death" has been hotly debated in medical circles for decades. This volume delves into the possibility and desirability of a "good death" by presenting the psychosocial measures of care as a crucial component, such as religion, existentialism, hope and meaning-making. The volume also focuses on oncologic psychiatry and the influence of technology as a means to alleviate pain and suffering, and potentially provide relief to those at the end of life. Such initiatives are aimed at diminishing pain and are socially bolstering and emotionally comforting to ensure a peaceful closure with life as opposed to a battle waged. Utilizing the most recent information from medical journals and books to present the latest on healthcare and dying today, this volume crosses the boundaries of thanatology, psychology, religion, spirituality, medical ethics and public health.

This book is a successor to J Griffiths, A Bood and H Weyers, Euthanasia and Law in the Netherlands (Amsterdam University Press 1998) which was widely praised for its thoroughness, clarity, and accuracy. The new book emphasises recent legal developments and new research, and has been expanded to include a full treatment of Belgium, where since 2002 euthanasia has also become legal. The book also includes descriptions written by local specialists of the legal situation and what is known about actual practice in a number of other European countries (England and Wales, France, Italy, Scandinavia, Spain, Switzerland). The book strives for as complete and dispassionate a description of the situation as possible. It covers in detail: - the substantive law applicable to euthanasia, physician-assisted suicide, withholding and withdrawing treatment, use of pain relief in potentially lethal doses, palliative and terminal sedation, and termination of life without a request (in particular in the case of newborn babies); -the process of legal development that has led to the current state of the law; -the system of legal control and its operation in practice; -the results of empirical research concerning actual medical practice. A concluding part deals with some general questions that arise out of the material presented: Is the legalisation of euthanasia an example of the decline of law or should it, on the contrary, be seen as part and parcel of the increasing juridification of the doctor-patient relationship? Does the Dutch experience with legalised euthanasia support the idea of a 'slippery slope' toward a situation in which life-especially of the more vulnerable members of society-is less effectively protected? Is it possible to explain and to predict when a society will decide to legalise euthanasia?

The long history of medical care for the dying has largely been neglected by scholars. Physicians were first challenged to provide medical and personal care that would enable patients to die peacefully. Today it involves sophisticated palliation of symptoms, various ways of offering emotional care, and respect for the wishes and cultural backgrounds of patients and families. This book chronicles four centuries of professional and personal advances in the quest for a good death, covering the fight against futile end-of-life treatments, the history of life-extending treatments and technologies, the liberation of the dying from isolation in hospitals and hard-won victories to secure patients' right to choose.

Palliative care is rapidly evolving as a multidimensional therapeutic model devoted to improving the quality of life of all patients with life-threatening illness. Symptom control, management of psychosocial and spiritual concerns, decision making consistent with values and goals, and care of the imminently dying that is appropriate and sensitive to the unique needs of the individual and family - these are among the critical issues addressed through palliative care. As this discipline has evolved, the need for research in all these areas has become widely acknowledged. Issues in Palliative Care Research describes both the progress that already has been made in the investigation of these issues and the methodological elements that must be addressed in future studies. The perspective is broad and the overriding goal is to inform about the state of the art in these rapidly evolving areas of research.

As we live longer and die slower and differently than our ancestors, we have come to rely more and more on end-of-life caregivers. These workers navigate a changing landscape of old age and death that many of us have little preparation to encounter. "How We Die Now" is an absorbing and sensitive investigation of end-of-life issues from the perspectives of patients, relatives, medical professionals, and support staff.aKarla Erickson immersed herself in the daily life of workers and elders in a Midwestern community for over two years to explore important questions around the theme of OC how we die now.OCO She moves readers through and beyond the many fears that attend the social condition of old age and reveals the pleasures of living longer and the costs of slower, sometimes senseless ways of dying.aFor all of us who are grappling with the OC elder boom, OCO "How We Die Now" offers new ways of thinking about our longer lives."

* Provides valuable guidance for all student and practising SLTs who are working with older people with communication and swallowing difficulties. * Offers a holistic approach, not only looking at the physiological/biological effects, but taking into account the psychological and social impacts of aging. * Bridges theory and practice, with an emphasis on practical strategies and advice for clinicians to use in their daily work. * Dispels the myths which sound aging (due to a lack of knowledge of what is considered to be within normal range), which can lead to misdiagnosis.

"I found this book to be a well-written, sensitively presented, and important resource for those engaged in this critical area of work. Thank you, Dr. Werth, for making such a substantial contribution to this field."--Journal of Palliative Care

" This book offers] over 20 contributors, all with impeccable credentials, covering many perspectives that we need to consider more frequently and in greater depth...There is much that awaits you in this book."--Illness, Crisis, and Loss

""Counseling Clients Near the End of Life" is a marvelous resource for mental health providers who are searching for useful information in areas such as the following: resolving ethical dilemmas; assisting clients in planning for the end of life; counseling caregivers of clients who are near the end of life; and assisting people in dealing with grief. The editor of this work, Dr. James Werth, has done a splendid job of gathering various experts to share their perspectives on end of life care and choices at this time of life--and he has also written an excellent chapter on counseling clients who are dying." Gerald Corey, EdD, ABPP
Professor Emeritus of Human Services and Counseling
California State University, Fullerton

This highly accessible guide to counseling people who are terminally ill and their families fills a critical need in the counseling literature. Written for front-line mental health professionals and counseling graduate students, the text integrates research with practical guidance. It is replete with the experiences of contributing authors who are leaders in counseling terminally ill individuals, real-life case examples, clinical pearls of wisdom, and tables of practice pointers that provide quick access to valuable knowledge.

The text offers information that is requisite for all counselors who provide services to persons who are terminally ill and their families. It addresses common issues that influence different types of counseling approaches, such as how the age, ethnicity, or religion of a client affects counselor conceptualizations and actions. The book discusses how to manage symptoms of depression, anxiety, and cognitive impairment near the end of life. It explains how advance directives can be used to assist dying individuals and their loved ones. The counseling needs of family members before and after death are addressed as well as counseling loved ones experiencing complicated grief. The text also examines the particular concerns of counselors regarding self-care and the benefits of working as part of a professional team. Woven throughout are important considerations such as cultural diversity, ethical challenges, laws, and regulations; and advocacy at client and social policy levels. Readers will also benefit from the inclusion of additional references for more in-depth study. Key Features:

Integrates research with practical and accessible information Provides clinical "pearls" that can be put to use immediately Provides a reader-friendly format that includes real-life case studies and tables with important pointers Describes the counseling experiences of leading practitioners that include examples of successful and unsuccessful interventions Based on a comprehensive framework developed by a Working Group of the American Psychological Association

New York Times Bestseller A poignant love letter to Bloom's husband and a passionate outpouring of grief, In Love reaffirms the power and value of human relationships. In January 2020, Amy Bloom travelled with her husband Brian to Switzerland, where he was helped by Dignitas to end his life while Amy sat with him and held his hand. Brian was terminally ill and for the last year of his life Amy had struggled to find a way to support his wish to take control of his death, to not submerge 'into the darkness of an expiring existence'. Written with piercing insight and wit, In Love is Bloom's intimate, authentic and startling account of losing Brian, first slowly to the disease of Alzheimer's, and then on becoming a widow. It charts the anxiety and pain of the process that led them to Dignitas, while never avoiding the complex ethical problems that are raised by assisted death. 'Poignant, kind, funny and ultimately redemptive' - Alain de Botton, author of The Course of Love 'In Love is a thrillingly beautiful, laser-eyed book about love, life, mortality and, most remarkably, about the ways in which no one of the three can be separated from the others' - Michael Cunningham, author of The Hours and A Home at the End of the World

This educational workbook helps people who build compassionate relationships with dying people. Accompanied by its trainer's guide, it presents a comprehensive, sequential learning program for caregivers in non-medical capacities covering everything from self-understanding to spiritual issues, listening skills and expressive activities, developing the skills, awareness and resilience needed for this privileged and sensitive role. The program includes a variety of learning experiences, including large and small group activities, discussion, close reading, creative writing, self exploration, and skill development and practice. This is an invaluable resource for small groups of individuals who wish to volunteer in hospice or palliative care settings. A copy of the guide for trainers is included in each pack of workbooks, and is also freely available online. 'The best resource I have seen to guide teachers and learners in this complex training process. I predict that those of you who try it with your staffs and trainees will find that it bears fruit both for your patients and their families, but also for the sustenance and personal development of the staff members themselves.' Timothy Quill, M.D., in his Foreword

Collaborative Practice in Palliative Care explores how different professions work collaboratively across professional, institutional, social, and cultural boundaries to enhance palliative care. Analysing palliative care as an interaction between different professionals, clients, and carers, and the social context or community within which the interaction takes place, it is grounded in up-to-date evidence, includes global aspects of palliative care and cultural diversity as themes running throughout the book, and is replete with examples of good and innovative practice. Drawing on experiences from within traditional specialist palliative care settings like hospices and community palliative care services, as well as more generalist contexts of the general hospital and primary care, this practical text highlights the social or public health model of palliative care. Designed to support active learning, it includes features such as case studies, summaries, and pointers to other learning resources. This text is an important reference for all professionals engaged in palliative care, particularly those studying for post-qualification programmes in the area.

Fear and Primordial Trust explores fear as an existential phenomenon and how it can be overcome. Illustrated by clinical examples from the author's practice as a psychotherapist and spiritual caregiver working with the severely ill and dying, the book outline theoretical insights into how primordial trust and archaic fear unconsciously shape our personality and behaviour. This book discusses in detail how in our everyday world, we lack primordial trust. Nevertheless, all of us have internalized it: as experiences of another non-dual world, of being unconditionally accepted, then sheltered and nurtured. The book outlines how from a spiritual viewpoint, we come from the non-dual world and experience a transition by becoming an ego, thereby experiencing archaic fear. This book explains fear in terms of two challenges encountered in this transition: firstly, leaving the non-world world when everything changes and we feel forlorn. Secondly, on awakening in the ego when we feel dependent and overwhelmed by otherness. The book also helps readers to understand trust as the emotional and spiritual foundation of the human soul, as well as how fear shapes us and how it can be outgrown. The book makes the case that understanding fear and primordial trust improves care and helps us to better understand dying. It will be of interest to academics, scholars and students in the fields of psychiatry, counselling, psychotherapy and palliative care and to all those interested in understanding fear, trust and the healing potential of spiritual experiences. Chapters 1 and 3 of this book are freely available as a downloadable Open Access PDF under a Creative Commons Attribution 4.0 license available at https://www.taylorfrancis.com/books/mono/10.4324/9781003176572

Living with Uncertainty gives a broad perspective on the complexities and challenges of the practice of end-of-life care, as well as the perceived benefits and limitations of medical intervention. Drawn from research and clinical and pastoral experience, the book examines the feelings associated with the end of life, highlighting the demands that people are faced with and their consequences. It moves into the difficult area of people who feel defeated by their illness and can or want to live no longer, as well as the family, caregivers and professionals who surround them. These perspectives have been built upon around a hundred narratives of lived experience, combined with the wider clinical and practical range of voices. A topical post-script Lessons from Covid-19 captures the choices and challenges on a personal, professional and systemic level which the pandemic acutely revealed with a multiplicity of examples. This will be essential reading for students and professionals in palliative and end-of-life care. Families and friends will also benefit from this book as they try to come to terms with the delicate but universal issues of death and dying.

Palliative Care: Bringing Comfort and Hope is a textbook written by nurses for nurses. It will be of value to those undertaking palliative care diplomas and degrees, as well as be of interest to other disciplines who have an active role in delivering palliative care in a variety of settings. The book reflects the rapid development of palliative nursing as an emerging specialty. It helps in the process of defining palliative nursing and how it interfaces with other disciplines within the specialty. The text is divided into three sections and comprehensively, yet sensitively, covers all aspects of palliative nursing. Key themes covered include pain control, symptom control, loss and grief, and handling loss. . A strong emphasis is placed on the integration of theory and practice and evidence based care. . Reconciliation of the theory and practice is achieved by the use of case studies. . It addresses malignant and non-malignant palliative care. . Research and extensive literature support each chapter. Content has been thoroughly revised and updated in line with changes in practice and policy both locally and internationally, particularly the UK NICE guidance on Supportive and palliative care for people with cancer and the Care of the Dying Pathway . Three new chapters on: . Sexuality . Care of the Dying Pathway . Changing roles of the nurse in palliative care . New appendix on North American drug names equivalents for the international market

High quality instruction in an authentic clinical environment is a must for all healthcare programs. Packed with strategies to help clinical instructors develop as educators and strengthen their teaching practice, this text is a key resource for those new to educating in a clinical setting. The first part of this practical book explores becoming a clinical instructor. It looks at the responsibilities of the role as well as the traits of effective clinical instructors. Introducing the concept of teacher identity, it offers suggestions for making the transition from healthcare practitioner to clinical educator. The book's second part provides information on teaching in the healthcare environment. It introduces principles of curriculum design and planning, pedagogy and teaching strategies, performance assessment, and the delivery of constructive feedback. The final chapter in this part discusses helping students prepare for entry into the healthcare workforce. The book ends with a chapter on ways to support clinical instructors. Including reflective practice exercises, practical tips for dealing with challenging situations, and sample rubrics and templates, this useful book provides a foundation for the healthcare practitioner who is beginning a career in clinical education. It is also a valuable guide for more experienced instructors and those who manage clinical instructors.

This book has been written for those who must work with and give care to the dying. Our discussion is not simple narrative or description; it is a "rendition of reality," informed by a rather densely woven and fairly abstract theoretical scheme. This scheme evolved gradually during the course of our research. The second audience for this volume is social scientists who are less interested in dying than they are in useful substantive theory. Our central concern is with the temporal aspects of work. The theory presented here may be useful to social scientists interested in areas far removed from health, medicine, or hospitals. The training of physicians and nurses equips them for the technical aspects of dealing with illness. Medical students learn not to kill patients through error, and to save lives through diagnosis and treatment. But their teachers put little or no emphasis on how to talk with dying patients; how-or whether-to disclose an impending death; or even how to approach the subject with the wives, husbands, children, and parents of the dying. Students of nursing are taught how to give nursing care to terminal patients, as well as how to give "post-mortem care." But the psychological aspects of dealing with the dying and their families are virtually absent from training. Although physicians and nurses are highly skilled at handling the bodies of terminal patients, their behavior to them otherwise is actually outside the province of professional standards. Much, if not most, nontechnical conduct toward, and in the presence of, dying patients and their families is profoundly influenced by "common sense" assumptions, essentially untouched by professional or even rational considerations or by current advancement in social-psychological knowledge. The process of dying in hospitals is much affected by professional training and codes, and by the particular conditions of work generated by hospitals as places of work. A third important consideration in interpreting dying as a temporal process is that dying is a social as well as a biological and psychological process. The term "social" underlines that the dying person is not simply leaving life. Unless he dies without kin or friends, and in such a way that his death is completely undiscovered his death is recorded. His dying is inextricably bound up with the life of society, however insignificant his particular life may have been or how small the impact his death makes upon its future course. This aspect of dying is treated in relationship to what the authors call "status passage." "Time for Dying" is an illumination of the "temporal features of dying in hospitals"uas related both to the work of hospital personnel and to dying itself as a social process. "Barney G. Glaser" is the founder of the Grounded Theory Institute in Mill Valley, California, and has also been a research sociologist at the University of California Medical Center, San Francisco. He is the author or coauthor of several books, including "The Grounded Theory Perspective II and Experts versus Laymen: A Study of the Patsy and the Subcontractor," published by Aldine Transaction. "Anselm L. Strauss" (1916-1996) was emeritus professor of sociology at the University of California, San Francisco. He was the author of numerous books, including "Professions, Work and Careers, Mirrors and Masks: The Search for Identity, and Creating Sociological Awareness: Collective Images and Symbolic Representations, " all published in new editions by Transaction.

This book explores the experiences of Muslims in the United States as they interact with the health care system during serious illness and end-of-life care. It shifts "actively dying" from a medical phrase used to describe patients who are expected to pass away soon or who exhibit signs of impending death, to a theoretical framework to analyze how end-of-life care, particularly within a hospital, shapes the ways that patients, families, and providers understand Islam and think of themselves as Muslim. Using the dying body as the main object of analysis, the volume shows that religious identities of Muslim patients, loved ones, and caregivers are not only created when living, but also through the physical process of dying and through death. Based on ethnographic and qualitative research carried out mainly in the Washington, D.C. region, this volume will be of interest to scholars in anthropology, sociology, public health, gerontology, and religious studies.