Here is an overview of many of the ethical challenges facing health care practitioners today. Health providers striving for the appropriate balance between human rights and values and the objectives within their professions confront many ethical dilemmas. This helpful book explores such dilemmas from practical and philosophical perspectives and helps practitioners successfully navigate through the maze of concerns they face on a daily basis. With Ethics and Values in Long Term Health Care, readers can develop new modes of ethical thinking that will enhance their practice as they improve the quality of life of the elderly they serve. The book presents information that can be used as a catalyst for innovative thinking and a guide for positive action. Readers are encouraged to apply the lessons contained in this book to practical decisionmaking in their respective health professions. Chapters assist health practitioners and others in thinking more in-depth about the impact of their personal ethics and values on service delivery, and help them to broaden their views and enhance their decisionmaking skills. The book has a broad scope and is divided into four sections which address: Practitioner Knowledge Caregiving End of Life Choices Health Care ReformEthics and Values in Long Term Health Care helps prepare health care professionals to confront some of the major ethics and values challenges of the 1990s and beyond. This book can be used as a guide to ethical awareness, as well as a tool for teaching ethics and values or for developing programs and workshops.

This open access book outlines the challenges of supporting the health and wellbeing of older adults around the world and offers examples of solutions designed by stakeholders, healthcare providers, and public, private and nonprofit organizations in the United States. The solutions presented address challenges including: providing person-centered long-term care, making palliative care accessible in all healthcare settings and the home, enabling aging-in-place, financing long-term care, improving care coordination and access to care, delivering hospital-level and emergency care in the home and retirement community settings, merging health and social care, supporting people living with dementia and their caregivers, creating communities and employment opportunities that are accessible and welcoming to those of all ages and abilities, and combating the stigma of aging. The innovative programs of support and care in Aging Well serve as models of excellence that, when put into action, move health spending toward a sustainable path and greatly contribute to the well-being of older adults.

Within the context of long-range planning, this book examines the changing responsibilities of the state and family toward elders in different societies around the world. International Perspectives on State and Family Support for the Elderly presents a fresh range of lucid analyses of family caregiving policy from Canada, the United States, Sweden, the United Kingdom, Hong Kong, Austria, Denmark, Israel, and the People's Republic of China. Different institutional structures, levels of economic development, and cultural values, among other factors, impact policy development in various countries. With the information examined in this book, readers can gain an understanding of elder care in other societies, which can help them in developing policies for their own countries.Authors of International Perspectives on State and Family Support for the Elderly address questions such as: Who is responsible for caring for the aged? What are the policy issues that determine how such care is handled in various countries? Are the underlying principles upon which policy is based changing? Who pays for the care of the aged? What is the balance of the roles of government, family, and community? Along with these questions, authors discuss: the importance of family care the well-being, payment, and rights of informal caregivers providing services for informal caregivers shifting the burden of care from formal organizations to families the effects of governmental frameworks on caregiving the impact of the political agenda on caregiving caregiving and the welfare stateInternational Perspectives on State and Family Support for the Elderly contains information for all professionals interested or involved in developing policy for the elderly. Demographers, sociologists, social workers, health care and public health professionals, gerontologists, and advanced students in these fields will find this book a helpful guide in their studies.

Born at the end of World War One into a prosperous London family, Cicely Saunders struggled at school before gaining entry to Oxford University to read Politics, Philosophy and Economics. As World War Two gained momentum, she quit academic study to train as a nurse, thereby igniting her lifelong interest in caring for others. Following a back injury, she became a medical social worker, and then in her late 30s, qualified as a physician. By now her focus was on a hugely neglected area of modern health services: the care of the dying. When she opened the world's first modern hospice in 1967 a quiet revolution got underway. Education, research, and clinical practice were combined in a model of 'total care' for terminally ill patients and their families that quickly had a massive impact. In Cicely Saunders: A Life and Legacy, David Clark draws on interviews, correspondence, and the publications of Cicely Saunders to tell the remarkable story of how she pursued her goals through the complexity of her personal life, the skepticism of others, and the pervasive influence of her religious faith. When she died in 2005, her legacy was firmly established in the growing field of hospice and palliative care, which had now gained global recognition.

As an essential and emerging practice, Pediatric palliative care seeks to prevent and relieve suffering for children with life-threatening conditions. Palliative care teams are composed of providers of various disciplines, including social workers, who collaborate to address the medical, social-emotional, and spiritual needs of the child, and their families. Social workers are especially accustomed to interdisciplinary care and may counsel, provide resources, facilitate communication, and promote person- and family-centered practices that are the basis of effective pediatric palliative care. This book presents practice strategies, experiential knowledge, and research related to practicing in collaborative teams, ICU settings, and hospice. It also presents research that is informed by the perceptions and perspectives of bereaved parents, parents who have suffered a stillbirth, and parent caregivers of children with life-limiting illness. This book highlights the unique role social workers play, within care teams and in relationship with children who have life-limiting illness, and their families. This book was originally published as a special issue of the Journal of Social Work in End-of-Life & Palliative Care.

When Professionals Weep speaks to the humbling and often transformational moments that clinicians experience in their careers as caregivers and healers-moments when it is often hard to separate the influence of our own emotional responses and worldviews from the patient's or family's. When ProfessionalsWeep addresses these poignant moments-when the professional's personal experiences with trauma, illness, death, and loss can subtly, often stealthily, surface and affect the helping process. This edition, like the first, both validates clinicians' experiences and also helps them process and productively address compassion fatigue, burnout, and secondary traumatic stress. New material in the second edition includes increased emphasis on the burgeoning fields of hospice and palliative care, organizational countertransference, mindfulness, and compassionate practice. It includes thought-provoking cases, self-assessments, and exercises that can be used on an individual, dyadic, or group basis. This volume is an invaluable handbook for practitioners in the fields of medicine, mental health, social work, nursing, chaplaincy, the allied health sciences, psychology, and psychiatry.

This established and well-regarded Guide describes the management of patients with advanced disease. Its foundation is a clinical decision-making approach in which the patient's information guides the professional's approach to appropriate management. This Sixth Edition has been fully updated, reflecting the latest advances in knowledge and care of cancer and non-cancer patients with advanced disease, including children and people with severe communication difficulties. Sections on symptoms other than pain and emergencies are set out alphabetically, with the Emergencies section now located at the end of the book for ease of reference. The Drug Information section has been extensively updated, and colour and design refinements introduced throughout for greater clarity and emphasis. All references continue to be categorised to make their evidence base clearer. Maintaining the high standard set by previous editions over the past quarter-century, this continues to be the definitive guide to palliative care symptom relief for professionals in a wide variety of caring environments.

The particular needs of people with progressive long-term neurological conditions - including Parkinson's Disease, Motor Neurone Disease (MND), Multiple Sclerosis (MS) and Huntington's disease - may make care delivery and planning the last stages of life ethically, practically and clinically challenging. However, only in recent years has serious attention been paid to palliative care approaches for people affected by conditions other than cancer. This unique and comprehensive book builds bridges between palliative and neurological care expertise, recognising that such people may require intensive input from rehabilitation and therapy teams at the same time as complex symptom management and supportive non clinical care. Its comprehensive guidance on managing these complex conditions aims to enable those living with them to enjoy the best quality of life for as long as possible.

Care home workers increasingly work with people nearing the end of their lives, including people with medically complex conditions. However, many do not have a medical background and find that practical advice on how to address these people's very specific needs is scarce. In this book, Christine Reddall draws on almost four decades of nursing experience to create a clear and easy-to-read handbook primarily for workers caring for the dying in care homes, but which will also be of interest to family members caring for relatives with life-threatening conditions.'This is a resource book to provide information on palliative care. It is designed primarily to help carers who work in care homes of all categories. To my knowledge, this is the first book written solely for carers working in care homes that addresses the issues of caring for someone with palliative care needs. However, people with whom I have spoken to about this book, or who have read parts of it, have all said that it would also be a helpful resource to non-professional family carers who care for a family member in their own home. The style of this book is designed to be readable by all levels of carers, and I have endeavoured to keep the language and text as 'non-medical' as possible. I have tried to put myself in the shoes of carers, especially those without medical training, and think of what they want to know when caring for someone with a life threatening illness' - Christine Reddall in her Preface.

This book gives readers an understanding of the theoretical foundations of social support communication along with practical tools to ethically and justly connect with and support others in daily life. Incorporating research, real-world examples, and autoethnographic methods, this book examines how social hierarchies, personal power dynamics, and relational and social histories can be better understood to create stronger social support messages across all our relationships, including family, friend, workplace, and health provider-patient relationships. The book translates theories of social support communication into practical application, examining how support messaging goes wrong and how to do it right. Intended as a supplementary text in interpersonal communication, psychology, and social work undergraduate courses, the book is also ideal for professionals who engage in caretaking and support tasks and wish to enhance their knowledge of social support theory.

This book provides the best information available on the ways priorities are currently set for health care around the world. It describes the methods now used in the six countries leading the process, and contrasts the differences between them. It shows how, except in the UK, frameworks have now been developed to set priorities. Making Choices for Health Care sets forth the key issues that need to be tackled in the years ahead. Descriptions of the leading trends are accompanied by suggestions to resolve outstanding difficulties. Topics include: the need for national research and development funding for new treatments, ways to shift resources permanently towards prevention and chronic care, and how DALYs may replace QALYs. While the concepts and values underlying priority setting have been discussed elsewhere, Making Choices for Health Care highlights real current practice. It is a vital tool for policy-makers, health care managers, clinicians, patient organizations, academics, and executives in pharmaceutical and medical supply industries.

Behavioral Intervention Research in Hospice and Palliative Care: Building an Evidence Base sets forth research considerations and guidelines to build evidence-based interventions to improve end-of-life care. It is an in-depth introduction to implementation research and showcases how a clinical need is identified to inform an intervention. The book extensively examines the various phases of intervention research, including design, implementation, evaluation, dissemination and translation. The book focuses on methodological, ethical and practical issues. The science behind the quality of hospice and palliative care lags behind that of traditional medical practice, despite the continuous growth of palliative care interdisciplinary teams. Researching, developing and testing strategies is essential to advancing the effectiveness and value of this care.

The rapidly evolving field of Palliative Care focuses on the management of phenomena that produce discomfort and that undermine the quality of life of patients with incurable medical disorders. The interdisciplinary clinical purview includes those factors - physical, psychological, social, and spiritual - that contribute to suffering, undermine the quality of life, and prevent a death with comfort and dignity. Palliative Care is a fundamental part of clinical practice, the "parallel universe" to therapies directed at cure or prolongation of life. All clinicians who treat patients with chronic life threatening diseases are engaged in palliative care, continually attempting to manage complex symptomatology and functional disturbances. The scientific foundation of palliative care is advancing, and similarly, methods are needed to highlight, for practioners at the bedside, the findings of empirical research. Topics in Palliative Care Series is divided into sections that address a range of issues. Addressing aspects of sumptom control, psyshocsoical functioning, spiritual or existential concerns, ethics, and other topics, the chapters in each section review the given area and focus on a small number of salient issues for analysis. The authors present and evaluate existing data, provide a context drawn from clinical and research settings, and integrate knowledge in a manner that is both practical and readable. The specific topics covered in Volume 5 are Cultural issues in Palliative Care, Palliative Care in Geriatrics, Communication Issues in Palliative Care, Outcomes Research in Palliative Care, Opiod Tolerance; Reality of Myth?, and Pain and other symptoms: Treatment Challenges.

The second edition of this highly successful text has been greatly expanded and updated, and is now available in two companion volumes. Stepping into Palliative Care 2 focuses on symptom management, emergencies, bereavement and spirituality. This practical guide with numerous examples, illustrations and thorough references, includes boxes, tables, figures, self-assessment questions, points for reflection and case studies to aid comprehension. The clear layout and straightforward approach is ideal for all those working in community care, including nurses, nursing students, doctors and social workers, and those already involved to some extent in palliative care.

Series Editors: Moira Stewart, Judith Belle Brown and Thomas R Freeman As the population in western cultures ages, more people suffer chronic, ultimately life-limiting diseases and medical professionals need to be equipped to cope with the ever growing pressure of palliative care. This book gives guidance on how to approach patients with life limiting illness. While the problems most people present to the doctor appear relatively straightforward, a whole person approach to understanding the complex interaction between the person, their illness and their environment should lead to a more complete consideration of the illness and better health outcomes. For issues of palliative care, such an approach is essential to identify and meet the many needs of desperately ill people. Palliative Care offers a fresh look at the management of patients. With international, evidence-based contributions, the book suggests practical and challenging ways to care for the dying. It is ideal for all healthcare professionals working in palliative care, General Practitioners and medicine and healthcare students.

Use of the arts in palliative care settings is a powerful and effective way of addressing the practical, psychological, social and spiritual issues faced by service users in end-of-life care. The Creative Arts in Palliative Care uncovers the possibilities for using the creative arts and provides guidance on how to implement arts projects successfully. Part 1 focuses on designing objectives for the creative arts in palliative care - such as self-fulfilment, social participation, diversion from pain and other common symptoms - and managing creative arts services. Part 2 demonstrates the theory and principles in practice, with detailed case studies: each chapter draws on a real-life project, the approaches it employed and the outcomes achieved. This book will be essential reading for healthcare professionals, arts practitioners and all those involved in providing palliative care services.

Sportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for an inter-disciplinary approach for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application.
Supportive Care of the Person with Dementia provides just such a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia. Making use of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of this type can bring to the complex problems that are frequently encountered when treating this condition.
It is an ideal resource for all clinicians who are part of an interdisciplinary team caring for sufferers with this debilitating illness.

This new evidence-based model, derived from a study of parents and exemplary clinicians, offers a clear presentation of the complex process of interaction between healthcare providers and parents of seriously ill children. A unique aspect of the book is that it is based on the study of excellence rather than focusing on what did not go well. This model gives clinicians practical strategies for optimizing interactions with parents of seriously ill children. Moving beyond the prevalent idea of communication as a step-by-step procedure, this book demonstrates the complex and holistic nature of interaction in healthcare.

This book examines the ethics of end of life care, focusing on the kinds of decisions that are commonly made in clinical practice. Specific attention is paid to the intensification of treatment for terminal symptoms, particularly pain relief, and the withdrawal and withholding of care, particularly life-saving or life-prolonging medical care. The book is structured into three sections. The first section contains essays examining end of life care from the perspective of moral theory and theology. The second sets out various conceptual terms and distinctions relevant to decision-making at the end of life. The third section contains chapters that focus on substantive ethical issues. This format not only provides for a comprehensive analysis of the ethical issues that arise in the context of end of life care but allows readers to effectively trace the philosophical, theological and conceptual underpinnings that inform their specific interests. This work will be of interest to scholars working in the area as well as clinicians, specialists and healthcare professionals who encounter these issues in the course of their practice.

Loss and Grief: Personal Stories of Doctors and Other Healthcare Professionals is a unique collection of personal narratives that chronicle the journeys of doctors and other healthcare professionals who have been personally impacted by life-altering losses. Edited by internationally recognized practitioners of supportive care medicine and grief counseling, these are unflinching, first-person narratives of authors walking in their own shoes. The narratives reveal losses of cherished loved ones, integrity, dreams, naive views of colleagues, and the lack of institutional support for these inevitable experiences. Although the narrators are well-established leaders in their fields, serious loss brought each back to the exposed core of their most basic selves. They learned that the professional veneer was too thin to be instructive or protective. Readers might resonate with their own painful experiences and memories, and others might wonder how they will imagine their own future when these inevitable aspects of being human-loss and grief-strike them, too. In Loss and Grief, it is our hope that such openly shared feelings of isolation and suffering will humanize the loss experience, ignite prospective discussions, and illuminate opportunities for education, research and interventions to prepare us for multiple loss experiences endemic to life.

Collaborative Practice in Palliative Care explores how different professions work collaboratively across professional, institutional, social, and cultural boundaries to enhance palliative care. Analysing palliative care as an interaction between different professionals, clients, and carers, and the social context or community within which the interaction takes place, it is grounded in up-to-date evidence, includes global aspects of palliative care and cultural diversity as themes running throughout the book, and is replete with examples of good and innovative practice. Drawing on experiences from within traditional specialist palliative care settings like hospices and community palliative care services, as well as more generalist contexts of the general hospital and primary care, this practical text highlights the social or public health model of palliative care. Designed to support active learning, it includes features such as case studies, summaries, and pointers to other learning resources. This text is an important reference for all professionals engaged in palliative care, particularly those studying for post-qualification programmes in the area.

This book will be the first of its kind to offer intensive conversation analysis on patient-clinician interactions in the context of palliative medicine. The book focuses on a series of individual case studies of conversations that revolve, in each case, around one key critical term that is often evoked or understood differently by clinicians and patients.

This book provides detailed analysis of the manifold ways in which COVID-19 has influenced death, dying and bereavement. Through three parts: Reconsidering Death and Grief in Covid-19; Institutional Care and Covid-19; and the Impact of COVID-19 in Context, the book explores COVID-19 as a reminder of our own and our communities' fragile existence, but also the driving force for discovering new ways of meaning-making, performing rites and rituals, and conceptualising death, grief and life. Contributors include scholars, researchers, policymakers and practitioners, accumulating in a multi-disciplinary, diverse and international set of ideas and perspectives that will help the reader examine closely how Covid-19 has invaded social life and (re)shaped trauma and loss. It will be of interest to all scholars and students of death studies, biomedicine, and end of life care as well as those working in sociology, social work, medicine, social policy, cultural studies, anthropology, psychology, counselling and nursing more broadly.

Written by leading American practitioners, the Oxford American Handbooks of Medicine each offer a pocket-sized overview of an entire specialty, featuring instant access to guidance on the conditions that are most likely to be encountered. Precise and prescriptive, the handbooks offer up-to-date advice on examination, investigations, common procedures, and in-patient care. These books will be invaluable resources for residents and students, as well as a useful reference for practitioners.
The essential reference for medical students, residents, and clinical oncologists seeking a current, portable resource on the delivery of sophisticated cancer care. Chapters focus on the immediate information needs in clinical decision making including treatment choices. Algorithms, best practice guidelines, highlight tables, and targeted lists of landmark references enhance concise text. The Handbook covers solid tumors and hematologic malignancies plus cancer biology, genetics, prevention and screening, cancer staging, complications, and supportive care.

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This volume speaks to the issue of occupational therapy practice with the patient in pain. The hows and whys of treatment are explored in a broad range of chapters written by and for professionals in the field of occupational therapy.