Increasing attention is being paid to the needs of cancer patients who present acutely with issues relating to their diagnosis an management, complications of their cancer, complications arising from their treatment, or who require appropriate symptom control or palliative care. Recent years have seen substantial service development to ensure acute oncology is appropriately provided, to improve outcomes and wellbeing of patients. A team of experts in cancer care have completely revised and updated the previous edition of this book to produce a template that can be used by any professional involved in the planning and delivery of acute oncology care around the world. This title is formally supported by the Association of Cancer Physicians (ACP). This highly patient-centred, readable text will be of value to clinicians and healthcare professionals, healthcare strategic and operations managers, and doctors in training, in their daily work.

The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and evidence-based reference for all members of the palliative care team. The book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care.Encompassing the perspectives of neonatologists, maternal-fetal medicine and other physicians, neonatal and perinatal nurse practitioners, midwives, nurses in all sectors of perinatal care, and child life specialists, chaplains, social workers, genetic counselors, lactation consultants, and others, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision making, and effective support for grief and bereavement. It addresses all palliative and neonatal palliative care settings, including home care, and covers elements of comfort care, such as pain medication and oxygen. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking-focused questions. Some chapters also include supportive online materials, such as video clips of interactions between healthcare professionals and the family, demonstrating family support and clinician skills. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words. Key Features: Comprehensive and authoritative knowledge from recognized leaders in the field Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions

Kidney Disease: From advanced disease to bereavement provides guidance to renal and palliative care professionals dealing with patients with advanced kidney disease, who are approaching end of life. The book describes the tools used to achieve a good death including advance care planning, symptom control law and ethics, recognizing dying, withdrawal of treatment, and a holistic approach to patient care. By using case histories, the book highlights how to facilitate good communication between patients, families and their renal and palliative teams. There are also chapters on support for carers and bereavement. Revised and updated, this new edition is written in a bullet point style to provide an indispensable guide to the day-to-day management of patient care. This pocketbook will be an essential guide for nephrologists, renal nurses, nephrologist trainees, and doctors and nurses working in palliative care.

Handbook of Supportive Oncology and Palliative Care is a practical guide to providing evidence-based and value-based care to adult and pediatric cancer patients experiencing severe symptoms and stressors due to cancer diagnosis, cancer treatment, and comorbid conditions. This accessible reference provides the art and science behind the whole-person and family approach to care by delivering the best practices to relieving a cancer patient's symptoms across physical, psychosocial, and spiritual dimensions. Unlike other resources, this book covers all dimensions of palliative care but with a special emphasis on primary palliative care. Part One of the handbook provides the essential background and principles of supportive oncology and palliative care, including chapters on understanding the adult and pediatric patient and family illness experience, the roles and responsibilities of the palliative care team, and the art of the palliative care assessment interview. Part Two covers symptom management and includes ten chapters considering the major physical and psychosocial symptoms a cancer patient may face-neurologic, cardiac, respiratory, gastrointestinal, genitourinary, psychiatric, sleep and fatigue, pain, and psychosocial and spiritual distress. Part Three addresses special considerations and issues that an oncologist, physician, nurse or other healthcare provider often face in these settings, including chapters on intimacy, sexuality, and fertility issues, grief and bereavement, running a family meeting, care for the caregiver, and survivorship.Written by expert clinicians, this state-of-the-art handbook is a necessary resource for any oncologist, nurse, primary care physician, psychosocial expert, or related practitioner who endeavors to improve quality of life and provide healing to those suffering from cancer and its treatment. Key Features: Provides the binding principles of palliative care for pediatrics, adults and families from diverse cultures and spiritual beliefs Easy-to-read format makes extracting content fast and convenient for both the clinical and educational setting Guides the clinician and practitioner through the palliative care assessment process, including the appropriate questions for the palliative care interview Interdisciplinary team approach to psychosocial and spiritual care Includes access to the fully searchable downloadable eBook

This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.

Palliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness.

Diane E. Meier, M.D., one of the field's leaders and a recipient of a MacArthur Foundation "genius award" in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care.

Dr. Meier's essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of the field's pioneers, such as Eric Cassel, Balfour Mount, and Elizabeth Kubler-Ross, to influential newer articles on topics such as caregiving and cost savings of palliative care. The reprints cover a wide range of topics including:

Why the care of the seriously ill is so important

Efforts to cope with advanced illness

Legal and ethical issues

Pain management

Cross-cultural issues

Philosophical perspective

The demand for palliative care has been nothing short of stunning--largely because of palliative care's positive impact on both the quality and the cost of care provided to seriously ill individuals. By providing a wide-ranging perspective on this growing field, this book will serve as a guide for developing meaningful approaches that will lead to better health care for all Americans.

The long history of medical care for the dying has largely been neglected by scholars. Physicians were first challenged to provide medical and personal care that would enable patients to die peacefully. Today it involves sophisticated palliation of symptoms, various ways of offering emotional care, and respect for the wishes and cultural backgrounds of patients and families. This book chronicles four centuries of professional and personal advances in the quest for a good death, covering the fight against futile end-of-life treatments, the history of life-extending treatments and technologies, the liberation of the dying from isolation in hospitals and hard-won victories to secure patients' right to choose.

"I found this book to be a well-written, sensitively presented, and important resource for those engaged in this critical area of work. Thank you, Dr. Werth, for making such a substantial contribution to this field."--Journal of Palliative Care

" This book offers] over 20 contributors, all with impeccable credentials, covering many perspectives that we need to consider more frequently and in greater depth...There is much that awaits you in this book."--Illness, Crisis, and Loss

""Counseling Clients Near the End of Life" is a marvelous resource for mental health providers who are searching for useful information in areas such as the following: resolving ethical dilemmas; assisting clients in planning for the end of life; counseling caregivers of clients who are near the end of life; and assisting people in dealing with grief. The editor of this work, Dr. James Werth, has done a splendid job of gathering various experts to share their perspectives on end of life care and choices at this time of life--and he has also written an excellent chapter on counseling clients who are dying." Gerald Corey, EdD, ABPP
Professor Emeritus of Human Services and Counseling
California State University, Fullerton

This highly accessible guide to counseling people who are terminally ill and their families fills a critical need in the counseling literature. Written for front-line mental health professionals and counseling graduate students, the text integrates research with practical guidance. It is replete with the experiences of contributing authors who are leaders in counseling terminally ill individuals, real-life case examples, clinical pearls of wisdom, and tables of practice pointers that provide quick access to valuable knowledge.

The text offers information that is requisite for all counselors who provide services to persons who are terminally ill and their families. It addresses common issues that influence different types of counseling approaches, such as how the age, ethnicity, or religion of a client affects counselor conceptualizations and actions. The book discusses how to manage symptoms of depression, anxiety, and cognitive impairment near the end of life. It explains how advance directives can be used to assist dying individuals and their loved ones. The counseling needs of family members before and after death are addressed as well as counseling loved ones experiencing complicated grief. The text also examines the particular concerns of counselors regarding self-care and the benefits of working as part of a professional team. Woven throughout are important considerations such as cultural diversity, ethical challenges, laws, and regulations; and advocacy at client and social policy levels. Readers will also benefit from the inclusion of additional references for more in-depth study. Key Features:

Integrates research with practical and accessible information Provides clinical "pearls" that can be put to use immediately Provides a reader-friendly format that includes real-life case studies and tables with important pointers Describes the counseling experiences of leading practitioners that include examples of successful and unsuccessful interventions Based on a comprehensive framework developed by a Working Group of the American Psychological Association

Given our aging population, there will sadly be an increasing number of terminally-ill patients over the next ten to twenty years. A Patient-Centered Approach to Medicine for the Terminally-Ill explains that a more humane patient-centered approach is necessary to ensure that terminally-ill patients are cared for effectively at the end of life. It is a well-known fact that terminally-ill patients are very difficult to care for by their physicians and other medical specialists, and paternalism is no longer a viable way of caring for the terminally-ill. In this book, Switankowsky argues that there are five conditions for physicians to bring about patient-centered medicine. These are: effective physician-patient disclosure of treatments, successful decision-making, effective communication, development of effective physician-patient relationships, and advance directives. By following these five necessary conditions, physicians could ensure that all terminally-ill patients die with some degree of dignity and are given essential, humane care until the end of their days.

This Second Edition of The Psychiatry of Palliative Medicine remains a practical and pragmatic distillation of the psychiatry relevant to the terminally ill. Revised throughout and greatly expanded by the addition of two entirely new chapters, it reviews the major psychiatric syndromes encountered in palliative care - depression, anxiety, delirium - and examines psychopharmacological and psychological interventions in detail. It succinctly considers the psychiatric aspects of pain, sleep, cognitive impairment, terminal neurodegenerative diseases, sedation, artificial feeding and euthanasia. The dying, chronically ill psychiatric patient is also discussed. The author has drawn on his great experience in both consultation-liaison psychiatry and palliative medicine to produce an essential, evidence-based guide for all healthcare professionals involved in palliative care. These include consultants and senior nurses, as well as psychiatrists, especially consultation-liaison psychiatrists, and trainees. 'I find this an immensely sympathetic book, beautifully written. It is a testimony to the summation of specialist psychiatric knowledge, broad scholarship and a rich personal practice in bedside palliation.' From the Foreword by Ian Maddocks Reviews of the first edition: '...a relevant, highly readable and reasonably priced book which will be of interest to all, whether from a psychiatric or palliative care background, who seek to improve the care of dying patients INTERNATIONAL PSYCHOGERIATRICS 'Practical, scientifically based and scholarly, addressing a comprehensive set of common and important clinical problems in palliative care. The book will doubtlessly be highly valued by palliative care clinicians for its practical and thorough overview of some of the most challenging clinical problems they face. Excellent and timely.' AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY

Sterben, Sterbehilfe (Beschaftigung mit "Dignitas") und Tod sind in den letzten Jahren - (auch) durch die Thematisierung in den Medien - verstarkt zu Objekten kontroverser Diskussionen in Deutschland geworden. Im Kontext dieser Entwicklung differenziert diese Arbeit elementare Wortbedeutungen, ordnet diese Begriffe in die aktuelle Debatte um unterschiedliche Formen der Sterbehilfe ein und entwickelt hieraus eine eigene Perspektive zum individuellen und gesellschaftlichen Umgang mit Sterben und Tod. Die Arbeit mit Sterbenden und deren Angehoerigen stellt unter anderem fur AErzte, Juristen, Theologen und Sozialarbeiter eine besondere Aufgabe dar. Trotz der oeffentlichen Diskussion uber Sterben, Sterbehilfe und Tod werden diese Themen im gesellschaftlichen und privaten Zusammenleben meist tabuisiert. Dieses Buch dient der Professionalisierung zuvor genannter Berufsgruppen und moechte einen Teil zur gesellschaftlichen Enttabuisierung von Sterben und Tod beitragen.

Two cogent arguments about end-of-life careand carefully reasoned responses from experts End-of-Life Care: Bridging Disability and Aging with Person Centered Care features two primary papers on the controversial issue of end-of-life care within the disabled and aging populations. Each paper explainsclearly and honestlythe multitude of issues involved in using person centered care. The first is from a father and nationally known advocate for the disabledRud Turnbullspeaking from a disability perspective about his disabled son. The second is from respected theologian M. J. Iozzio speaking from the aging perspective about her father's Alzheimer's disease. Responses from experts in the field follow, thoughtfully raising further points to consider about policies, ethics, quality of life, and consent. The two central papers from End-of-Life Care focus on person centered, interdependent care using the personal reflections of two close family members and their views about end-of-life care. The responses that follow each are direct, thoughtful, and concentrate on the issues in end-of-life planning using person centered care. This difficult and important issue is discussed in detail by lawyers, theologians, clinical practitioners, and professional service providers, and includes several revealing personal stories about end-of-life experiences. Helpful resources for both policy and practice are also presented to assist the reader to learn more. End-of-Life Care discusses: who, how, and on what grounds end-of-life decisions should be made for the developmentally/intellectually disabled best practices information from Volunteers of America's Last Passages project the unique challenges faced by individuals with disabilities and their families when confronting issues of death and dying the protection of the rights of the disabled from discrimination person centered care for the aging with complicating health conditions like Alzheimer's Disease helping all people to clearly communicate their end-of-life wishes End-of-Life Care explores explores policy, theological, and personal dimensions of end of life care, and the ways that person centered care can bridge the fields of aging and disabilty.

Helping others to learn about caring for people with advanced disease has always been a fundamental part of effective palliative care. This flexible learning material, formally evaluated by the Open University, is based on the Current Learning in Palliative Care (CLIP) worksheets to cover all aspects of palliative care. Easy to use, with activities throughout, they can be reproduced as handouts when presenting to a group, or used individually alongside a tutor, or within a group setting. Each worksheet is carefully structured and assigned a learning level from introductory to advanced, to give the reader an indication of how much experience or knowledge is needed to carry out the exercise. This book provides an essential resource to arm health professionals, carers and teams with the knowledge and skills needed in their daily work.

A widely adopted practitioner resource and course text, this book shows how to apply knowledge about behavior change in general -- and the stages-of-change model in particular -- to make substance abuse treatment more effective. The authors are leaders in the field who describe ways to tailor interventions for clients with varying levels of motivation or readiness to change. They draw on cutting-edge theory and research on the transtheoretical model to explain what works (and what doesn't work) at different stages of change. Rich clinical examples illustrate the "whats," "whys," and "how-tos" of using the stages-of-change model to inform treatment planning and intervention for individuals, groups, couples, and families. New to This Edition *Reflects the ongoing development of the stages-of-change model and research advances over the past decade. *Chapter on stage-based brief interventions in health care, social service, and community settings. *Group treatment chapter has been significantly revised. *Expanded coverage of the change processes relevant to each stage. See also Group Treatment for Substance Abuse, Second Edition, by Mary Marden Velasquez et al., a manual for a group-based approach grounded in the transtheoretical model.

This volume is a practical resource for all those responsible for caring for older people across health and social care. It provides a comprehensive and holistic approach helping nurses, therapists and social care professionals to better understand the impact of ageing upon the person and wider society. A unique feature of this text is the focus upon positive ageing and the attempt to dispel and challenge some of the myths, prejudices and negative attitudes that still prevail towards ageing and older people. A key objective of the book is to introduce practitioners to some of the neglected or under-addressed aspects of ageing such as spirituality, sexuality, and LGBT.Chapters are written in an engaging and interactive style and where appropriate draw upon case studies and scenarios to maximize engagement developing competence, by informing knowledge, attitudes and skills. The text introduces the practitioner to key dimensions of what it is to be a person, physically, psychologically, socially and spiritually and how these contribute to the ageing process and can enhance the quality of life of older people.Irrespective of whether one cares for older people in an acute hospital setting or domiciliary, home care, this text will be of relevance. The material and content transcend health and social care boundaries, providing valuable, contemporary evidence that can inform and shape practice. Above all this text will encourage reflection, dialogue and engagement with some fundamental aspects of ageing, challenging, attitudes, values and behaviour so that a more positive and balanced insight towards ageing is fostered. This book will ensure that self-awareness and professional practice are enriched and informed and the practitioner has a holistic understanding of ageing that will enable them to care for older people with compassion, dignity and respect.

Portrait therapy reverses the traditional roles in art therapy, utilising Edith Kramer's concept of the art therapist's 'third hand' to collaboratively design and paint their clients' portraits. It addresses 'disrupted' self-identity, which is common in serious illness and characterised by statements like 'I don't know who I am anymore' and 'I'm not the person I used to be'. This book explores the theory and practice of portrait therapy, including Kenneth Wright's theory of 'mirroring and attunement'. Case studies, accompanied by colour portraits, collages and prose-poems, provide insight into the intervention and the author highlights the potential for portrait therapy to be used with other client groups in the future.

This book helps nursing and healthcare students to prepare for the challenges of working with the increasing number of patients requiring palliative care, so that they can work in partnership with patients and their carers, providing care that is compassionate, practical and backed up by the latest evidence. Delivering palliative care can be emotionally challenging and the book focuses on supporting healthcare staff, allowing them to provide the care that is needed. Key features include: * case studies in every chapter, helping students to practically work through difficult scenarios * reflective activities that assist readers in thinking critically about their care and how to improve it * a holistic approach to palliative care that includes family, carers and interprofessional work * up to date theory and policy. Palliative Care in Nursing and Healthcare is suitable for undergraduate nursing students and allied health students and practitioners. Michelle Brown is Senior Lecturer at the University of Derby.

The quality of cancer and palliative care is going through unprecedented change and development as a result of policy initiatives. The impact of these policies on education is unparalleled and it is essential that clinicians and educationalists are aware of the policy formation processes and educational strategies that meet the demands of these changing times. This book takes a holistic approach to patient care and draws on the diverse experience in hospices and highlights best practice to present a comprehensive and practical guide. However, it does more. New topics are given an educational perspective; those with limited educational experience are given sound advice; the implication of policy change is outlined. This is an important book and one which should be read by all clinicians, educators and managers responsible for improving services in cancer and palliative care.

Music therapy can be a profound physical, emotional and spiritual support at the end of life. This book looks at a wide variety of cases, explaining how music therapy can be used effectively. It highlights particular components of working with this group, such as creating a therapeutic relationship, helping patients to reach final goals, working within cultural contexts and dealing with difficult emotions, all within the parameters of the musical experience. It also explores the unique needs of people with disabilities or mental illness, and how to support the families of the dying. Therapeutic and philosophical insights related to the dying process are included. This will be a supportive and insightful guide for anyone working with people who are at the end of life, especially music therapists and other complementary therapists, caregivers, hospice workers and medical professionals.

Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.

`There is much to learn about easing suffering from John's reflective narrative. The journal is both evocative and illuminating. The attention given to individuals patients experiences and to the manner in which practitioners can help to relieve suffering is the main strength of the book' -Journal of Advanced Nursing `Christopher Johns has written an exquisite book detailing the experience of being a palliative care nurse. He has taken a unique approach in chronicling his practice through a journal, which serves a model for the reader on reflective practice. Johns' book is insightful on several levels. He offers a poignant book about the practice of palliative care, which will certainly evoke deep feelings and memories for many who have cared for dying patients. The narrative serves a model for reflective practice for students and practitioners alike who wish to explore this method of research and self-inquiry. John also, as the postscript writer describe, addresses some of the lessons that can be learned in palliative care work, the importance of living in the moment, and acknowledgement of the constantly changing nature of life.' - Mary L. Wilby, MSN, CRNP, La Salle University School of Nursing `Chris Johns has produced a book that is, I believe, unique in the field of nursing practice. In his personal and philosophical reflections on palliative care he pin-points...the very essence of nursing practice... This text should be at the heart not only of nursing but also the way in which we should live our lives.' - Denise Rankin-Box, Editor in Chief, Complementary Therapies in Nursing and Midwifery Written by an experienced palliative care nurse, trainer, and complementary therapist, Being Mindful, Easing Suffering is an essential resource for professionals working with the seriously ill and the dying. Chris Johns describes how he has combined traditional medical, and more reflective models in his palliative practice, enabling him to work mindfully to alleviate physical and non-physical pain and suffering throughout the health-illness cycle. With reference to ideas from Buddhist philosophy around compassion and reflective knowing, this important book shows how the core task of those working in palliative care is to nurture the spiritual growth and development of their patients and, in turn, themselves.

Education of healthcare professionals is the cornerstone of specialist palliative services. This book is a practical toolbox of teaching techniques. Accessible, practical and easy to use it will encourage busy clinicians to teach by increasing their confidence in their training abilities. It provides a resource of various tools and describes how to approach teaching in a team, planning, methods and evaluation. Each chapter presents a menu of tried and tested techniques and closes with examples of lesson plans. The multidisciplinary experiences of the contributors are reflected in the book and healthcare professionals working in palliative care, hospitals, hospices or the community will find it to be essential reading.

The first study guide for the CHPN (R) certification exam! This must-have study guide for nurses seeking to obtain Certified Hospice and Palliative Nurse (CHPN (R)) status provides state-of-the-art information about all aspects of this specialty. It features 300 carefully selected Q&As that offer a detailed rationale for each question, along with tips and strategies to promote exam mastery and frequently asked questions about the exam. Additional questions are arranged in chapters mirroring the exam blueprint and the number of questions for each category correlates with the exam matrix. Case-based scenarios embodied within the questions facilitate the application of knowledge in a problem-solving format. A complete practice exam is included as well. Brief topical reviews address hospice and palliative care nursing practice in all of its dimensions, including physical, spiritual, and psychosocial. The resource highlights information that forms the basis of end-of-life care, such as communication and family-centered care. Additionally, high-level skills used by hospice and palliative care nurses, such as drug and dosage conversion and the use of infusion therapy, are covered as well. Key Features: Delivers the first study guide for hospice and palliative nurses seeking CHPN (R) certification Provides concise, up-to-date knowledge on all aspects of the specialty Includes information about the exam, answers to commonly asked questions, and tips and strategies for exam mastery Includes practice questions and answers following each chapter Provides a final comprehensive practice exam that offers 300 Q&As with detailed answer rationales that mirror the exam format Presents case-based scenarios within the questions that facilitate the application of knowledge