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Books > Medicine > Other branches of medicine > Palliative medicine
Given our aging population, there will sadly be an increasing number of terminally-ill patients over the next ten to twenty years. A Patient-Centered Approach to Medicine for the Terminally-Ill explains that a more humane patient-centered approach is necessary to ensure that terminally-ill patients are cared for effectively at the end of life. It is a well-known fact that terminally-ill patients are very difficult to care for by their physicians and other medical specialists, and paternalism is no longer a viable way of caring for the terminally-ill. In this book, Switankowsky argues that there are five conditions for physicians to bring about patient-centered medicine. These are: effective physician-patient disclosure of treatments, successful decision-making, effective communication, development of effective physician-patient relationships, and advance directives. By following these five necessary conditions, physicians could ensure that all terminally-ill patients die with some degree of dignity and are given essential, humane care until the end of their days.
This Second Edition of The Psychiatry of Palliative Medicine remains a practical and pragmatic distillation of the psychiatry relevant to the terminally ill. Revised throughout and greatly expanded by the addition of two entirely new chapters, it reviews the major psychiatric syndromes encountered in palliative care - depression, anxiety, delirium - and examines psychopharmacological and psychological interventions in detail. It succinctly considers the psychiatric aspects of pain, sleep, cognitive impairment, terminal neurodegenerative diseases, sedation, artificial feeding and euthanasia. The dying, chronically ill psychiatric patient is also discussed. The author has drawn on his great experience in both consultation-liaison psychiatry and palliative medicine to produce an essential, evidence-based guide for all healthcare professionals involved in palliative care. These include consultants and senior nurses, as well as psychiatrists, especially consultation-liaison psychiatrists, and trainees. 'I find this an immensely sympathetic book, beautifully written. It is a testimony to the summation of specialist psychiatric knowledge, broad scholarship and a rich personal practice in bedside palliation.' From the Foreword by Ian Maddocks Reviews of the first edition: '...a relevant, highly readable and reasonably priced book which will be of interest to all, whether from a psychiatric or palliative care background, who seek to improve the care of dying patients INTERNATIONAL PSYCHOGERIATRICS 'Practical, scientifically based and scholarly, addressing a comprehensive set of common and important clinical problems in palliative care. The book will doubtlessly be highly valued by palliative care clinicians for its practical and thorough overview of some of the most challenging clinical problems they face. Excellent and timely.' AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY
Palliative care is within the remit of all health care professionals in any setting. "An Integrated Approach to Generic Palliative Care" is an accessible practical guide to the delivery of good palliative care, combining theory and practice, aimed at all members of the multidisplinary team. It explains and complements the government led End of Life Care programme which is being coordinated by Strategic health Authorities, incorporating the Gold Standards Framework, the Preferred Place of Care and the Liverpool Care Pathway. An integrated approach is advocated throughout this book- in all sections the orthodox approach to treatments and care is discussed alongside a complementary approach. This text provides a highly practical approach to pain and symptom approach support including a pain assessment tool for the severely cognitively impaired and a detailed account on how to titrate morphine to individual patients. It also explores hope and spiritual pain showing that these two existential notions are actually part of every day practice.e
Two cogent arguments about end-of-life careand carefully reasoned responses from experts End-of-Life Care: Bridging Disability and Aging with Person Centered Care features two primary papers on the controversial issue of end-of-life care within the disabled and aging populations. Each paper explainsclearly and honestlythe multitude of issues involved in using person centered care. The first is from a father and nationally known advocate for the disabledRud Turnbullspeaking from a disability perspective about his disabled son. The second is from respected theologian M. J. Iozzio speaking from the aging perspective about her father's Alzheimer's disease. Responses from experts in the field follow, thoughtfully raising further points to consider about policies, ethics, quality of life, and consent. The two central papers from End-of-Life Care focus on person centered, interdependent care using the personal reflections of two close family members and their views about end-of-life care. The responses that follow each are direct, thoughtful, and concentrate on the issues in end-of-life planning using person centered care. This difficult and important issue is discussed in detail by lawyers, theologians, clinical practitioners, and professional service providers, and includes several revealing personal stories about end-of-life experiences. Helpful resources for both policy and practice are also presented to assist the reader to learn more. End-of-Life Care discusses: who, how, and on what grounds end-of-life decisions should be made for the developmentally/intellectually disabled best practices information from Volunteers of America's Last Passages project the unique challenges faced by individuals with disabilities and their families when confronting issues of death and dying the protection of the rights of the disabled from discrimination person centered care for the aging with complicating health conditions like Alzheimer's Disease helping all people to clearly communicate their end-of-life wishes End-of-Life Care explores explores policy, theological, and personal dimensions of end of life care, and the ways that person centered care can bridge the fields of aging and disabilty.
Helping others to learn about caring for people with advanced disease has always been a fundamental part of effective palliative care. This flexible learning material, formally evaluated by the Open University, is based on the Current Learning in Palliative Care (CLIP) worksheets to cover all aspects of palliative care. Easy to use, with activities throughout, they can be reproduced as handouts when presenting to a group, or used individually alongside a tutor, or within a group setting. Each worksheet is carefully structured and assigned a learning level from introductory to advanced, to give the reader an indication of how much experience or knowledge is needed to carry out the exercise. This book provides an essential resource to arm health professionals, carers and teams with the knowledge and skills needed in their daily work.
This volume is a practical resource for all those responsible for caring for older people across health and social care. It provides a comprehensive and holistic approach helping nurses, therapists and social care professionals to better understand the impact of ageing upon the person and wider society. A unique feature of this text is the focus upon positive ageing and the attempt to dispel and challenge some of the myths, prejudices and negative attitudes that still prevail towards ageing and older people. A key objective of the book is to introduce practitioners to some of the neglected or under-addressed aspects of ageing such as spirituality, sexuality, and LGBT.Chapters are written in an engaging and interactive style and where appropriate draw upon case studies and scenarios to maximize engagement developing competence, by informing knowledge, attitudes and skills. The text introduces the practitioner to key dimensions of what it is to be a person, physically, psychologically, socially and spiritually and how these contribute to the ageing process and can enhance the quality of life of older people.Irrespective of whether one cares for older people in an acute hospital setting or domiciliary, home care, this text will be of relevance. The material and content transcend health and social care boundaries, providing valuable, contemporary evidence that can inform and shape practice. Above all this text will encourage reflection, dialogue and engagement with some fundamental aspects of ageing, challenging, attitudes, values and behaviour so that a more positive and balanced insight towards ageing is fostered. This book will ensure that self-awareness and professional practice are enriched and informed and the practitioner has a holistic understanding of ageing that will enable them to care for older people with compassion, dignity and respect.
A widely adopted practitioner resource and course text, this book shows how to apply knowledge about behavior change in general -- and the stages-of-change model in particular -- to make substance abuse treatment more effective. The authors are leaders in the field who describe ways to tailor interventions for clients with varying levels of motivation or readiness to change. They draw on cutting-edge theory and research on the transtheoretical model to explain what works (and what doesn't work) at different stages of change. Rich clinical examples illustrate the "whats," "whys," and "how-tos" of using the stages-of-change model to inform treatment planning and intervention for individuals, groups, couples, and families. New to This Edition *Reflects the ongoing development of the stages-of-change model and research advances over the past decade. *Chapter on stage-based brief interventions in health care, social service, and community settings. *Group treatment chapter has been significantly revised. *Expanded coverage of the change processes relevant to each stage. See also Group Treatment for Substance Abuse, Second Edition, by Mary Marden Velasquez et al., a manual for a group-based approach grounded in the transtheoretical model.
Portrait therapy reverses the traditional roles in art therapy, utilising Edith Kramer's concept of the art therapist's 'third hand' to collaboratively design and paint their clients' portraits. It addresses 'disrupted' self-identity, which is common in serious illness and characterised by statements like 'I don't know who I am anymore' and 'I'm not the person I used to be'. This book explores the theory and practice of portrait therapy, including Kenneth Wright's theory of 'mirroring and attunement'. Case studies, accompanied by colour portraits, collages and prose-poems, provide insight into the intervention and the author highlights the potential for portrait therapy to be used with other client groups in the future.
This book helps nursing and healthcare students to prepare for the challenges of working with the increasing number of patients requiring palliative care, so that they can work in partnership with patients and their carers, providing care that is compassionate, practical and backed up by the latest evidence. Delivering palliative care can be emotionally challenging and the book focuses on supporting healthcare staff, allowing them to provide the care that is needed. Key features include: * case studies in every chapter, helping students to practically work through difficult scenarios * reflective activities that assist readers in thinking critically about their care and how to improve it * a holistic approach to palliative care that includes family, carers and interprofessional work * up to date theory and policy. Palliative Care in Nursing and Healthcare is suitable for undergraduate nursing students and allied health students and practitioners. Michelle Brown is Senior Lecturer at the University of Derby.
This book helps nursing and healthcare students to prepare for the challenges of working with the increasing number of patients requiring palliative care, so that they can work in partnership with patients and their carers, providing care that is compassionate, practical and backed up by the latest evidence. Delivering palliative care can be emotionally challenging and the book focuses on supporting healthcare staff, allowing them to provide the care that is needed. Key features include: * case studies in every chapter, helping students to practically work through difficult scenarios * reflective activities that assist readers in thinking critically about their care and how to improve it * a holistic approach to palliative care that includes family, carers and interprofessional work * up to date theory and policy. Palliative Care in Nursing and Healthcare is suitable for undergraduate nursing students and allied health students and practitioners. Michelle Brown is Senior Lecturer at the University of Derby.
The quality of cancer and palliative care is going through unprecedented change and development as a result of policy initiatives. The impact of these policies on education is unparalleled and it is essential that clinicians and educationalists are aware of the policy formation processes and educational strategies that meet the demands of these changing times. This book takes a holistic approach to patient care and draws on the diverse experience in hospices and highlights best practice to present a comprehensive and practical guide. However, it does more. New topics are given an educational perspective; those with limited educational experience are given sound advice; the implication of policy change is outlined. This is an important book and one which should be read by all clinicians, educators and managers responsible for improving services in cancer and palliative care.
Music therapy can be a profound physical, emotional and spiritual support at the end of life. This book looks at a wide variety of cases, explaining how music therapy can be used effectively. It highlights particular components of working with this group, such as creating a therapeutic relationship, helping patients to reach final goals, working within cultural contexts and dealing with difficult emotions, all within the parameters of the musical experience. It also explores the unique needs of people with disabilities or mental illness, and how to support the families of the dying. Therapeutic and philosophical insights related to the dying process are included. This will be a supportive and insightful guide for anyone working with people who are at the end of life, especially music therapists and other complementary therapists, caregivers, hospice workers and medical professionals.
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Illuminating the Diversity of Cancer and Palliative Care Education examines a myriad of original approaches, techniques, methods, educational strategies and imaginative innovations within this vital field of medicine. Its contributors share a range of educational techniques and tactics from Neuro-Linguistic Programming to creative teaching strategies for bereavement support, allowing readers to reflect on best practice and inventive ways of working which can be used or adapted to suit. This book is an ideal companion to its sister volumes Innovations in Cancer and Palliative Care Education and Delivering Cancer and Palliative Care Education.
`There is much to learn about easing suffering from John's reflective narrative. The journal is both evocative and illuminating. The attention given to individuals patients experiences and to the manner in which practitioners can help to relieve suffering is the main strength of the book' -Journal of Advanced Nursing `Christopher Johns has written an exquisite book detailing the experience of being a palliative care nurse. He has taken a unique approach in chronicling his practice through a journal, which serves a model for the reader on reflective practice. Johns' book is insightful on several levels. He offers a poignant book about the practice of palliative care, which will certainly evoke deep feelings and memories for many who have cared for dying patients. The narrative serves a model for reflective practice for students and practitioners alike who wish to explore this method of research and self-inquiry. John also, as the postscript writer describe, addresses some of the lessons that can be learned in palliative care work, the importance of living in the moment, and acknowledgement of the constantly changing nature of life.' - Mary L. Wilby, MSN, CRNP, La Salle University School of Nursing `Chris Johns has produced a book that is, I believe, unique in the field of nursing practice. In his personal and philosophical reflections on palliative care he pin-points...the very essence of nursing practice... This text should be at the heart not only of nursing but also the way in which we should live our lives.' - Denise Rankin-Box, Editor in Chief, Complementary Therapies in Nursing and Midwifery Written by an experienced palliative care nurse, trainer, and complementary therapist, Being Mindful, Easing Suffering is an essential resource for professionals working with the seriously ill and the dying. Chris Johns describes how he has combined traditional medical, and more reflective models in his palliative practice, enabling him to work mindfully to alleviate physical and non-physical pain and suffering throughout the health-illness cycle. With reference to ideas from Buddhist philosophy around compassion and reflective knowing, this important book shows how the core task of those working in palliative care is to nurture the spiritual growth and development of their patients and, in turn, themselves.
Education of healthcare professionals is the cornerstone of specialist palliative services. This book is a practical toolbox of teaching techniques. Accessible, practical and easy to use it will encourage busy clinicians to teach by increasing their confidence in their training abilities. It provides a resource of various tools and describes how to approach teaching in a team, planning, methods and evaluation. Each chapter presents a menu of tried and tested techniques and closes with examples of lesson plans. The multidisciplinary experiences of the contributors are reflected in the book and healthcare professionals working in palliative care, hospitals, hospices or the community will find it to be essential reading.
Kidney Disease: From advanced disease to bereavement provides guidance to renal and palliative care professionals dealing with patients with advanced kidney disease, who are approaching end of life. The book describes the tools used to achieve a good death including advance care planning, symptom control law and ethics, recognizing dying, withdrawal of treatment, and a holistic approach to patient care. By using case histories, the book highlights how to facilitate good communication between patients, families and their renal and palliative teams. There are also chapters on support for carers and bereavement. Revised and updated, this new edition is written in a bullet point style to provide an indispensable guide to the day-to-day management of patient care. This pocketbook will be an essential guide for nephrologists, renal nurses, nephrologist trainees, and doctors and nurses working in palliative care.
A collection of accounts exploring the personal and professional experiences of palliative care workers. The contributors, who are based at hospices such as St Joseph's in Hackney, demonstrate the positive impact of reflective practice for families and individuals who have experienced or are experiencing bereavement. They explain how and why they came to work in palliative care and what they bring to the work - as well as the ways in which the work has enriched their own lives Including descriptive examples of their own work with clients and families they discuss: how to deal with your own emotions as well as those of the client; moral dilemmas you may come up against in your work; managing denial in patients and carers; general ethical questions in cancer and palliative care work; and the use of narrative and story-telling in care work.
English summary: A hospital team of nurses, doctors and therapists are working together to provide the best possible care for the terminally ill patients whose progressive, late-stage illnesses are no longer susceptible to curative treatment. The aim of palliative medicine is to preserve qualitiy of living through optimised pain management and control of symptoms. Hospices allow patients to die in dignity. Both institutions allow for the, often processual, use of music and music therapy to support and comfort patients.This volume demonstrates current research approaches and gives and overview of support through music therapy in both areas. The theme of dying and grieving is approached through texts about inner and outer attitudes, mindfulness and the supportive use of music as well as the wholesome atmosphere created with its help in listening to and empathising with terminally ill patients. German description: Ein Krankenhausteam von Pflegern, Arzten und Therapeuten sind um die bestmogliche Versorgung der schwerstkranken Patienten bemuht, die mit progredienten, weit fortgeschrittenen Erkrankungen nicht mehr auf eine kurative Behandlung ansprechen. Ziel der Palliativmedizin ist der Erhalt der Lebensqualitat durch optimale Schmerztherapie und Symptomkontrolle. Die Hospize ermoglichen ein Sterben in Wurde, in beiden Institutionen ist der begleitende und trostende, oft prozesshafte Einsatz mit Musik und Musiktherapie moglich.Der vorliegende Band zeigt aktuelle Forschungsansatze und gibt einen Uberblick uber musiktherapeutische Begleitungen in beiden Bereichen. Wir nahern uns der Thematik des Sterbens und Trauerns durch Beitrage uber innere und aussere Haltungen, Achtsamkeit und den unterstutzenden Einsatz von Musik sowie die daraus entstehende heilsame Atmosphare beim Zuhoren und Einfuhlen in die Lebenssituation Schwerstkranker an. |
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