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Transforming the Culture of Dying - The Work of the Project on Death in America (Hardcover, New)
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Transforming the Culture of Dying - The Work of the Project on Death in America (Hardcover, New)
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Over a period of almost 10 years, the work of the Project on Death
in America (PDIA) played a formative role in the advancement of end
of life care in the United States. The project concerned itself
with adults and children, and with interests crossing boundaries
between the clinical disciplines, the social sciences, arts and
humanities. PDIA engaged with the problems of resources in poor
communities and marginalized groups and settings, and it attempted
to foster collaboration across a range of sectors and
organizations. Authored by medical sociologist David Clark, whose
research career has focused on mapping, archiving and analyzing the
history and development of hospice, palliative care and related end
of life issues, this book examines the broad, ambitious conception
of PDIA - which sought to 'transform the culture of dying in
America' - and assesses PDIA's contribution to the development of
the palliative care field and to wider debates about end of life
care within American society. Chapters consider key issues and
topics tackled by PDIA grantees which include: explorations of the
meanings of death in contemporary American culture; the varying
experiences of care at the end of life (in different settings,
among different social and ethnic groups); the innovations in
service development and clinical practice that have occurred in the
US in response to a growing awareness of and debate about end of
life issues; the emerging evidence base for palliative and end of
life care in the US; the maturation of a field of academic and
clinical specialization; the policy and legal issues that have
shaped development, including the ethical debate about assisted
suicide and the Oregon experience; the opportunities and barriers
that have been encountered; and the prospects for future
development. A final chapter captures developments and milestones
in the field since PDIA closed in 2003, and some of the challenges
going forward.
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