First published in 1999, this volume examines the inclusion of
disabled children as a category of children in need under the
Children Act 1989 and as eligible for assessments of need under the
NHS and Community Care Act 1990 has drawn renewed attention to the
plight of these children and their families. This book presents the
findings from a study of parents whose child has cerebral palsy.
The research undertaken at the cost of social policy change focuses
on the apparent gap between the well-argued proposals for community
care and the experiences of carers. A bewildering picture emerges
of inadequate services and treatments from the health, education
and social services in the public, voluntary and private sectors.
Parents experience isolation and stress as they explore ways to
improve the quality of their children's lives by experimenting with
unregulated and under-researched treatments for an incurable
physical condition. The conclusion that there has been
deterioration in provision for these families is a serious
indictment on current social policy direction.
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