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31st Hemophilia Symposium - Hamburg 2000 (Paperback)
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31st Hemophilia Symposium - Hamburg 2000 (Paperback)
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Some 23. 5% of all members and patients of treatment centers
completed the questionnaire. One striking fact is that
participation was highest amongst elderly patients with severe
hemophilia, whereas only 12. 2% of family members responded.
Evaluation of the results revealed that the majority of
participants prefer treat ment in a hemophilia treatment center
with a high reputation, whereas only 2. 7% consider treatment in a
specialized practice to be sufficient. The reasons for that are the
necessity of the 24-h-availability of a physician, regular
qualified examination of joints and muscles, documentation of
product batches, laboratory tests and good cooperation with other
faculties. As many as 68. 9% of the patients sometimes travel more
than 200 km. What certainly plays a role here is trust in the
treatment center and its physicians, for it is noticeable that
irrespective of the fact that 74. 3% re quested standardized
treatment regimens for all treatment centers, only about 20% would
change to a nearer center. Treatment with factor concentrates is
generally considered to be very safe. That is to say, 58. 1 %
regard recombinant products to be very safe, whereas only 24. 3%
assume this for plasma products. When compared, there were usually
no major differences observed regarding outcome (factor
consumption, duration of treat ment). Increase in maximum storage
temperature (47. 2%) and half-life (73%) were the most frequent
answers to the question of what features the products should have."
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