**NOW WITH AN AFTERWORD AND ADVICE FOR A NEW MOTHER** 'A powerful,
moving and inspiring story - it opens up a whole new world of
understanding.' Esther Freud 'This is wonderful. I urge you to read
it. It is life enhancing and I defy you not to fall in love with
Ben!' Natasha Poliszczuk, Books Editor, YOU Magazine 'An honest and
unflinching account of Jessica's journey as the mother of a child
born with complex needs. Essential reading... and a source of
solace for those who may find themselves on a similar path.' Leah
Hazard, author of Hard Pushed: A Midwife's Story 'Jessica's
beautiful words gave me a deeper understanding about embracing
disability. I am inspired and will be recommending this book to
parents as a testament to following your parenting instincts.'
Arabella Carter-Johnson, author of Iris Grace 'A gripping and vital
insight into the lives of families trying to thrive in bureaucratic
systems that all too often add to the challenges of providing
disabled children with basic care and human rights. Impossible to
put down.' Hannah Barham-Brown, deputy leader of the Women's
Equality Party 'Rooted in love and is a moving story about the
transformative power of adapting, practically and emotionally to
changing circumstances. As a disabled adult, it was a joy to join
the parent of a disabled child as they embrace Disability Culture
and allyship.' Jess Thom, Touretteshero 'A courageous, heartrending
story of grief, love and ultimately hope.' The Sun, 5 star review
*** Jessica thought she was prepared for the experience of
motherhood. Armed with advice from friends and family, parenting
books and antenatal classes, she felt ready. After giving birth,
she found herself facing a different, more uncertain reality. Her
son, Ben, was fighting to stay alive. Jessica shares her journey
raising Ben. His disability means he will never be able to move or
communicate without assistance. Jessica has to learn how to feed
Ben when he can't eat, wrestle with red tape to secure his
education and defend his basic rights in the face of
discrimination. But the act of reading to Ben enriches both their
lives and brings them joy. As Ben begins to thrive, alongside his
two younger siblings, Jessica finds that caring for a child with
unique needs teaches her about appreciating difference and doing
things your own way. This uplifting story is about the power of
family love, finding inner strength and, above all, hope.
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